Access For All Ireland

If what was said in my previous video was true, then I have one question. Why, in 2025, did I have to stand in front of Micheál Martin and confront him face to face, begging for help to get Katie her surgery? Why did it take a mother having to publicly fight, chase, plead and push before anyone would even listen? In 2024, we were told there were surgeons here in Ireland who could operate on Katie. So why was Katie still waiting in 2025? Why was she still in pain? Why was she still being passed around from consultant to consultant? Why was I still having to beg politicians to step in? And why, in 2026, are we still trying to raise the funds to get Katie to Florida to Dr Paley? Katie is not a file. Katie is not a number. Katie is not something that can be pushed from one desk to another while her life is put on hold. She is 19 years old. She is in pain every single day. She has missed school, delayed college, lost weight from the stress, and has had to fight for every tiny bit of help she gets. If the surgery could be done here, why hasn’t it been done? And if it can’t be done here, why are we still being left to fundraise alone? I confronted Micheál Martin because I had no other choice. Because when the system goes quiet, a mother has to get louder. And I will keep getting louder until Katie gets the surgery she needs. Please help us keep fighting. gofund.me/673fc00e5New post If what was said in my previous video was true, then I have one question. Why, in 2025, did I have to stand in front of Micheál Martin and confront him face to face, begging for help to get Katie her surgery? Why did it take a mother having to publicly fight, chase, plead and push before anyone would even listen? In 2024, we were told there were surgeons here in Ireland who could operate on Katie. So why was Katie still waiting in 2025? Why was she still in pain? Why was she still being passed around from consultant to consultant? Why was I still having to beg politicians to step in? And why, in 2026, are we still trying to raise the funds to get Katie to Florida to Dr Paley? Katie is not a file. Katie is not a number. Katie is not something that can be pushed from one desk to another while her life is put on hold. She is 19 years old. She is in pain every single day. She has missed school, delayed college, lost weight from the stress, and has had to fight for every tiny bit of help she gets. If the surgery could be done here, why hasn’t it been done? And if it can’t be done here, why are we still being left to fundraise alone? I confronted Micheál Martin because I had no other choice. Because when the system goes quiet, a mother has to get louder. And I will keep getting louder until Katie gets the surgery she needs. Please help us keep fighting. gofund.me/673fc00e5

The rare occasion Sean gets the DART! Once again the same information is not replicated online. The lifts at Dalkey are also relatively new. @IrishRail all we ask is that the lifts are fixed and also that the same information is replicated online as it is in the stations @mulvanypeopleb1 #access #publictransport

Oh on the mini budget @RTERadio1 why have people with disabilities and carers been ignored? Again and again and again!!!! #DisabilityPoverty

#HowIrelandWorks a century of contempt from successive governments for any and all marginalised groups or individuals in Ireland #classwar same as it ever was #deny #delay #deflect #divide #litigate #gaslight #statepolicy #shitshow

Divide and rule

Naturally the reporters got a chance to ask questions of the govt ministers, but the people with disabilities, the DPO representatives, the carers and advocates didn’t get that same opportunity

Bernard got a last minute slot to attend the “Summit” yesterday. As was expected very PR and very Gov but one thing that struck most was the wording in their documents and that was if more people are included in a disability payment then that payment will be less, so who do you think should get it. 😳 Disabilty division, play one off the other, old skool Gov tactics and not acceptable. It’s Green Paper 2.0

The Irish Nurses and Midwives Organisation and the Psychiatric Nurses Association have served notice of industrial action in the Donegal Intellectual Disability Services, Ard na Gréine in Stranorlar rte.ie/news/regional/…

Today, the President, in her welcome to the Aras, for afternoon tea celebrating Traveller culture, opened with "Mo Geels, Gralta" - "My people, Welcome" - in Gammon-Cant our language 🥰 youtube.com/watch?v=gqWYvN…

Aaron Langan and Diarmuid O’Sullivan are two young boys from Donegal who urgently need and deserve access to life-changing treatment for Duchenne Muscular Dystrophy. It is heartbreaking what their families are going through. No parent should be forced to watch their child suffer. The government must intervene now and ensure this drug is made available without further delay.

Shout out to @IrishCountryMag for including accessibility info with their hiking recommendations 👌🏻 Even just a sentence highlighting the change in terrain gives us a good heads up. This is what we need to see on @coilltenews website along with info on any narrow stiles.

Well, just out of the cost of disability summit and I have to say it was an incredibly frustrating day. No open floor discussion, no chance for attendees to pose questions. The questionnaires given to the tables were perceived as quite ableist and discriminatory in the way questions were phrased and then the way the results were portrayed were not an accurate representation of what the tables actually discussed. Hopefully they learn from today but history tells me it’s unlikely.

@DrWilliamBehan Wonderful tweet. What a fabulous Rose🌹 candidate to represent Dublin in Tralee! More of this we say!

Isn't it wonderful that the 2026 Rose Tralee festival will represent the progressive diversity and inclusivity in our society? Dublin Rose Suad Mooge, was born a culchie, is now a jackeen, and is probably more representative of pan-Irishism than most, if not all the other Roses

Very good contribution from Amy from the @DW_Ireland she emphasised the campaign ourselves and @IrishWheelchair and @DisabilityFed on an emergency payment but also stating that yes that €400 payment is an emergency payment we need to see a permanent cost payment ASAP. #disabilitysummit

@GarNob 😝

Just left my teenage son off at school for his sports day and honestly I would give anything to be back at school again (just for today obviously)

@VirginMediaNews Last year on a Saturday national radio show the prof from the ERSI stated that their research indicated cast were more like €28k additional for a person with a disability. Government went with the lesser amount.

People with disabilities can face up to €15,000 a year in extra living costs, with many saying everyday essentials and taking on work come with financial penalties. A Government summit tomorrow will discuss a permanent Cost of Disability Payment. #VMNews #TruthMatters

Intresting! 😉 #NothingAboutUsWithoutUs

At @morningireland ERSI last year said it was €28K

Could @morningireland ask the minister why Gov have ignored report after report since 2021 on the cost of Disabilty and are doing more consultation when the data is there. TIA.

Next week, Katie graduates from secondary school. I can hardly even write those words without feeling the tears come. There was a time I never thought I would see this day. When Katie was born, she fought so hard just to stay alive. From the very beginning, life threw battles at her that no baby, no child, no young girl should ever have to face. And yet here she is. Finishing secondary school. This year, Katie only managed 56 days in school. But for the last 6 years, she gave it absolutely everything she had. She gave it her strength on the days she had none left. She gave it her smile when she was hiding pain. She gave it her courage when her body was fighting against her. She gave it her heart, her kindness, her determination and her spirit. Last night, Katie received an Ethos Award for her positive contribution to the school community and for consistently showing the values of excellence in education, care, equality, community and respect. After only 56 days in school this year, Katie still made an impact. That tells you everything about her. Next week will be emotional beyond words, because this is not just a graduation. This is Katie standing at the end of a chapter we once prayed she would live to see. Katie, your Dad will be beaming with pride looking down on you. I just wish with every piece of my heart that he was here to see you on your graduation day. He would be so proud of the young woman you have become. And now, as you prepare for the next chapter of your life, I promise you this. I will fight tooth and nail to get you the surgery you need. I will knock on every door, write every email, make every phone call, beg, plead and push until you get the chance you deserve. Because you have fought your whole life. You fought to stay alive. You fought to grow. You fought through school. You fought through pain. You fought through days most people will never understand. Now it is my turn to fight for you. Katie, you deserve to step into your next chapter with hope, with dignity, and with the chance to live the life you have fought so hard for. I am so proud of you. More than words could ever say. gofund.me/3ccbea5a2