BendOrBreak

The thrice award-winning Bend or Break EDS/Chronic Invisible Illness documentary has just been released on YouTube for free!🥳 You can watch the film here: youtu.be/5toRNvFug3Y

When your bestie runs the 42 km Toronto Marathon for you to spread awareness about your invisible illness/disability 🥰 #EhlersDanlosSyndrome #ZEBRASTRONG #marathon 🦓

Step right up, step right up! Come and test your doctoral ability to learn about and actually (gasp) treat rare diseases by playing Whack-a-Zebra! *Circus music starts playing* 🤡 #chronicillness #ehlersdanlossyndrome #ehlersdanlos #ehlersdanlosawareness #ehlersdanlossyndromes

"You think I look bad? You should see the other me!" In honour of my degenerative autoimmune Relapsing Polychondritis diagnosis last week. 🥳You may have won this fight body, but that was a sucker punch and we all know it!👊 #EhlersDanlosSyndrome #autoimmune #chronicillness

Spiderman out here is asking the REAL questions. We feel ya Spiderman; us Zebras are mutants too! No radioactive spider superpowers for us though. 😥 #chronicillness #ehlersdanlossyndrome #ehlersdanlos #ehlersdanlosawareness #ChronicPain #invisibleillness #spoonie

Still waiting on technology that will allow us to objectively measure pain! Wouldn't it be a relief to never have to describe it to disbelievers ever again? #chronicillness #ehlersdanlossyndrome #ehlersdanlos #invisibleillness #chronicpain #pain #spoonie #disability #raredisease

Those with chronic pain are experts at spotting fake smiles because they have seen the same expression on themselves so often! #EhlersDanlosSyndrome #chronicillness #chronicillnesswarrior #raredisease #invisibleawareness #invisibleillnesswarrior #disability #ChronicPain

And don't even get me started on saying this to someone with an incurable degenerative illness! #EhlersDanlosSyndrome #chronicillness #chronicillnesswarrior #raredisease #invisibleawareness #invisibleillnesswarrior #disability #ChronicPain

It's hard not to feel like you're being judged when you ask someone to repeat what they said, except slower. #brainfog #EhlersDanlosSyndrome #chronicillness

#chronicillness #ehlersdanlossyndrome #ehlersdanlos #ehlersdanlosawareness #invisibleillness #spoonie #spoonielife #zebra #chronicillnesswarrior #raredisease #invisibleawareness #invisibleillnesswarrior #chronicillnesshumor #chronicillnessmemes #chronicillnessmemes

@hampus_e @AutCoin_ @autismspeaks @MamasTurnNow Soo good!

My lil contribution to the banner competition held by wonderful autism awareness community based cryptocoin AutCoin! :) @AutCoin_ @autismspeaks @MamasTurnNow

We've extended our campaign by one month (until Feb. 17) to reach our goal of $8,000. Have you ever felt like you want to take action in support of #chronicpain and #chronicillness? Now you can do just that! Link in bio. #EhlersDanlos @TheEDSociety @ehlersdanlosuk @EDS_Today

@Berlijntje @DrEReinhold @TheEDSociety @EDSawareness1 @EDS_Today @EDSWellnessSol @nyitedscenter @ehlersdanlosuk @Ehlers__Danlos Thank you so much! As far as scheduling goes yes! We plan on finishing it by April 2020 and we will put it out to various film festivals :)

@BendOrBreak2 @DrEReinhold @TheEDSociety @EDSawareness1 @EDS_Today @EDSWellnessSol @nyitedscenter @ehlersdanlosuk @Ehlers__Danlos That´s very exiting! I wish you much succes with the whole project. Awareness is needed so much! Do you already have a time scedule when the documentary is planned to be finished and broadcasted?

We are a group of young filmmakers who have come together to make a documentary to create awareness about Ehlers Danlos Syndrome or EDS. @TheEDSociety @EDSawareness1 @EDS_Today @EDSWellnessSol @nyitedscenter @ehlersdanlosuk @Ehlers__Danlos

@ElleSENadvocate @TheEDSociety @EDSawareness1 @EDS_Today @EDSWellnessSol @nyitedscenter @ehlersdanlosuk @Ehlers__Danlos Hi, we are hoping by April 2020!

@BendOrBreak2 @TheEDSociety @EDSawareness1 @EDS_Today @EDSWellnessSol @nyitedscenter @ehlersdanlosuk @Ehlers__Danlos When’s the film coming out ?

The Ehlers-Danlos syndromes are genetic conditions. Clinical #genetics is the @NHS service that could tell you more about this. Diagnosis of #EDS can be made by any doctor, such as a dermatologist, rheumatologist or clinical #geneticist. buff.ly/2DWWam7

A glimpse! Mitch has been through a lot and it’s time that the world knows the struggles that everyone suffering from EDS goes through. Help us in making this film a reality by contributing a little to the film. Here’s the link of our crowdfunding page - indiegogo.com/projects/bend-…

We are determined to let people know what living with such an invisible illness feels like, what it feels like to be going through such pain and still not having anyone to believe you, what it feels like to collect all the broken pieces and move ahead. @TheEDSociety

How we stumbled upon this idea was nothing short of a cosmic coincidence. We attended Mitch Martow's TedX talk, where we learned about the struggles of an EDS patient. We learnt how this chronic illness creates huge, colossal impacts on life of every suffering individual.