Teresa #kaftrio

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Teresa #kaftrio

Teresa #kaftrio

@CFinit4ALLuk

campaigning 4 ALL fighting this hideous disease #CF 2 have the best Precision meds #LifeSavingDrugs4ALL on the NHS #STOPTHECLOCK #WeHaveKaftrio #Now4thelast10%

United Kingdom Katılım Nisan 2018
690 Takip Edilen468 Takipçiler
Teresa #kaftrio retweetledi
#UK CF campaigner Sharon
#UK CF campaigner Sharon@CFno1LeftBehind·
Love this💛 #cysticfibrosis @VertexPharma @blakeydark @DavidRamCFT @cftrust Thanks @ChrisMRiches & @Daily_Express for all you continue to do for the CF community Your commitment is unquestionable & we are lucky we had you help in the fight for #lifesaving #kaftrio on the #NHS
Chris Riches@ChrisMRiches

What a joy to not only write this in @Daily_Express but also discuss it with @EamonnHolmes and @IsabelWebster_ on @GBNEWS Breakast Show today. These smiling #cysticfibrosis sufferers’ faces are so magical and make me want to sob!!!! @cftrust express.co.uk/news/uk/159088…

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Teresa #kaftrio retweetledi
#UK CF campaigner Sharon
#UK CF campaigner Sharon@CFno1LeftBehind·
Great news #Australia🇦🇺 @VertexPharma #kaftrio #trikafta really is the game changer we all hoped for Great to see another country funding this #lifesaving #cysticfibrosis #precisionmedecine It’s the future but 10% of pwCF are waiting for their turn #loveScience #cf @cftrust
Cystic Fibrosis Aust@CFAustralia

Announcement from CEO, Jo Armstrong: “Cystic Fibrosis Australia is pleased to announce that Trikafta has been fully funded on the PBS. Beginning this Friday 1st of April, Trikafta will be available for all Australians 12 years and over with at least one f508del mutation."

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Liam Mc Hugh
Liam Mc Hugh@liammchugh1961·
Today I reached a major milestone of raising £300,000.00 for @cftrust on my 60th Birthday. So looking forward to running another @LondonMarathon this Sunday People living with CF have got such a bright future ahead because of life saving drugs. Thank you everyone for your support
Liam Mc Hugh tweet media
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Emma Ward
Emma Ward@emmagadie2009·
#click=https://t.co/8UThImiQGh" target="_blank" rel="nofollow noopener">news.yahoo.com/cystic-fibrosi… Wow!!!! 👀 #cysticfibrosis
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Annabelle💘
Annabelle💘@fatallyfibrosed·
Dissertation submitted🎉🎉🎉
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Teresa #kaftrio retweetledi
Ali Dillon 💙 NHS
Ali Dillon 💙 NHS@Alidilly·
Come on @LloydsPharmacy I can’t believe this is still happening! We’ve had people in our community having to miss days of their #Kaftrio having fought for years for it it’s not fair for them to hv to stop it coz u can’t deliver it in time!
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Ali Dillon 💙 NHS
Ali Dillon 💙 NHS@Alidilly·
#cf is a degenerative disease there’ll always be need 4 best drug. In Devolved nations NO criteria except having the correct genes, in Eng a case has to be made for each person! They hv CF there’s yr reason! Simon Stevens said rest Uk cld tag on our deal.. they hv better deal!
#UK CF campaigner Sharon@CFno1LeftBehind

Thanks @Daily_Express @ChrisMRiches But why did Hayden have to deteriorate to access #kaftrio when we’re told off label for some CF🧬CAN happen if there’s clinical need Isn’t there always “Clinical Need” for a superior drug? Like in Scotland😡 @cftrust @NHSEngland😡

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Ali Dillon 💙 NHS
Ali Dillon 💙 NHS@Alidilly·
Simon Stevens was clear in his statement re following FDA 4 Kaftrio. Rest of UK has, but England hasn’t. NHSE now saying u need to show decline is NOT Equality. Everyone who is not receiving Kaftrio (triple therapy) will be declining or hv the potential to rapidly decline.
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Ali Dillon 💙 NHS
Ali Dillon 💙 NHS@Alidilly·
Congratulations to our friends in #PKU community wonderful news for under 18’s, shocked to hear over 18’s hv been denied. The CF community are behind you and ready to help however we can, you have @ChrisMRiches & @Daily_Express on the case though and we know they won’t give up!
Ali Dillon 💙 NHS tweet media
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Ali Dillon 💙 NHS
Ali Dillon 💙 NHS@Alidilly·
@cftrust Nothing new here though we know this. I only have one question. If @NHSEngland got such a great deal, WHY don’t English Patients have Same access as Scotland, NI and Wales already? Thank you.
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Keşfet

@VertexPharma @blakeydark @DavidRamCFT @cftrust @ChrisMRiches @Daily_Express @LondonMarathon @fatallyfibrosed