It's a bit too hot for the hat! Have a fantastic #WearYellowDay and thank you for all you do to support @cftrust
English
David Ramsden
107 posts
David Ramsden
@DavidRamCFT
Chief Executive of the Cystic Fibrosis Trust. Fighting for Life Unlimited for all! Views are my own.
Katılım Şubat 2018
50 Takip Edilen802 Takipçiler
So pleased to be able to share this news!
Cystic Fibrosis Trust@cftrust
Today, NICE have given approval for the life-changing #cysticfibrosis modulator drugs to be made available on the NHS in England. This follows many years of campaigning by Cystic Fibrosis Trust and people right across the CF community. ow.ly/XGMs50SmgJR
English
@cf_ireland Thank you for being such a great source of wisdom and friendship.
English
CFI has announced that Philip Watt, CEO, is stepping down after more than 14 years in the role. Philip said: "I wish to thank the wonderful staff members, the excellent volunteers who make up our Board and Officers and our amazing branches."
Read more at buff.ly/3S5a2jj
English
Great to meet with the Welsh First Minister yesterday to discuss CF care and innovation and to emphasise the importance of removing any uncertainty about access to life-changing medicines for all those who could benefit in the future as soon as possible.
English
Thank you for every step, every signature and every pound raised. Now is the time to make the change - no one with CF should have to pay for the drugs they need!
Nick Smith@ZanzibarSmith
Petition handed in✅ It's been a challenging week. All worth it to try and make a difference for my little girl.❤️ #CysticFibrosis #trekforcharlie @cftrust @cf_care @strawfie @RishiSunak @ChrisMRiches
English
This is an incredible effort by Nick and Liam for a really important cause. Nobody with CF should have to pay for the drugs they need!
Nick Smith@ZanzibarSmith
#Trekforcharlie Tune into @bbcwm radio today at 12:40! Over halfway to London to deliver the petition for Free Prescriptions for all CF patients in England!💪 Tracker on stories: instagram.com/its_bambiee_?i… JG: justgiving.com/trek4charlie
English
A lovely morning for #WearYellowDay (there is even a bright yellow ball in the sky!) in a brilliant #CFWeek2023 Thank you to everyone who is getting involved and at the @cftrust we will not stop!
English
David Ramsden retweetledi
"...1 in 3 CF families revealed they had run out of food before they could afford to buy more, and 1 in 3 people with CF missed hospital appointments due to the cost."
@CFtrust invite @AMRC charities to get your conditions debated in Parliament next week too.
Cystic Fibrosis Trust@cftrust
Following on from our new report in partnership with the @BristolUni, Jim Shannon MP has secured a debate in UK parliament on the 'Impact of cystic fibrosis on living costs'.
English
Great to have the opportunity this week to speak to the Health and Social Care Select Committee (alongside @ChrisAskewCE and @LizAshallPayne) about the potential of data and digital to transform care and support for people with cystic fibrosis.
English
We are looking for some great people to join the @cftrust Team. Please have a look as there might be a fantastic new role for you! cysticfibrosis.org.uk/the-work-we-do…
English
Fantastic to see this - brilliant work, brilliantly presented! @JoJofoth and @drchloejames Congratulations to all who made this happen!
Chloe James@ProfChloeJames
Really proud of our fantastic #MicrobialPuppetMasters team from @SalfordPGRs & @LivUni_IVES Day2/5 is really hotting up @royalsociety #SummerScience so many brilliant conversations so far about #Phages #CysticFibrosis #Bacteria #DNA & #ScienceCareers
English
David Ramsden retweetledi
Today, we’d like you to tell the Health and Social Care Committee (@CommonsHealth) how paying for your prescriptions in England affects you and your family. #reviewthelist (1/3)
English
It's that brilliant day again..... #CFWeek #WearYellowDay
Thanks to all who text to donate. 'YELLOW5' to donate £5, 'YELLOW10' to donate £10 or 'YELLOW20' to donate £20, to: 70500.
(⚠Text messages cost the donation value + your standard network charge and ask the bill payer!)
English
I want to say thank you to @DYOO_cft for inviting me down to the @cftrust HQ in London! Great experience and talks with the team and meeting CEO @DavidRamCFT
English
Great animation showing how collaboration and partnership are at the heart of making real change!
AMRC@AMRC
Many of us wouldn't be here today without research. It’s constantly shaping and improving our health and social care. But do you know who funds and supports research in the UK? Explore the different ways the charity, public and industry sectors #MakeResearchHappen. #BSW22
English
A fantastic Friday at @cftrust clinical trials conference - with inspirational people uniting for a life unlimited!
English
David Ramsden retweetledi
We are uniting people to stop #cysticfibrosis. Funding vital research, improve care, speak out and race towards effective treatments for all. Cystic Fibrosis Trust is here to make sure everyone with CF can live without limits. ow.ly/9X0e50I9a2g
English
This is a really welcome investment in data infrastructure for research and development. The UK Cystic Fibrosis Registry shows how improvements in care can be driven by trusted data and the importance of focusing on the needs of those we are here to help.
Transforming health and care@NHSTransform
Today, up to £200m joint funding between @NHSEngland, @DHSCgovuk and @beisgovuk was announced to improve health data research. This will put the NHS in the driving seat so patients can benefit from more innovative treatments faster. Find out more: gov.uk/government/new…
English
This is a really important report. Things must change and it is great to see the ambition in @asthmalunguk strategy. I look forward to @cftrust working with @swoolnough and her team when we can make a bigger difference together.
Sarah Woolnough@swoolnough
🧵 Today, I’m really proud to let you know that we have a new name and look – and a strategy to tackle the unacceptable state of lung health in the UK. We are Asthma + Lung UK @asthmalunguk. We are the UK charity fighting for your right to breathe.
English
@angelaculhane1 @ProstateUK Good luck with what comes next - you should be so proud of what you have achieved.
English
Six months seemed a long notice period when I decided to retire but it has flown past. All the emotions today! @ProstateUK is in my heart and I think always will be. For those in my family I’ve lost, for those at high risk and for all men who deserve better. #MenWeAreWithYou
English