The CGD Association of America

Thank you to @EnsomaBio for inviting @CGDAofAmerica to Boston to learn more about their focus on precision, one-time, in vivo treatments that offer new hope in #CGD, #PrimaryImmunodeficiency, #Autoimmunity, #Oncology, and beyond.

Proud to partner w top research-scientists at @NIH & #PIDTC to co-author a study on X-linked female carriers of #CGD, which was just published in the top, peer-reviewed medical journal for #Immunology @ClinImmSoc Read more about it in @CGDAofAmerica bit.ly/4dDjWl6

Look forward to seeing everyone at the @IDFCommunity conference for this special dinner, hosted by @CGDAofAmerica! RSVP at info @ cgdaa.org.

Join us for CGD Association of America’s Zoom Meeting with Crystal Cruz to discuss her son’s inspiring & innovative transplant journey, tomorrow, June 11th at 8 PM EST. Email us for the Zoom invitation at info@cgdaa.org cgdaa.org/f/innovative-t…

Excited to attend @IDFCommunity’s PI Conference in Chicago 6/20-6/22 to learn the latest in #immunology & #gene therapy from the world’s leading experts, such as this key session w/ Dr. Malech, Chief of Genetic Immunotherapy, @NIH & moderated by Felicia Morton @CGDAofAmerica

Presenting @CGDAofAmerica’s latest news& research @ the Primary Immune Deficiency Treatment Consortium, hosted by @EmoryUniversity in Atlanta; honored to be sharing our success helping PI patients w/ the 200+ top #immunologists across North America who help make it possible!

Thanks to all who came out to the J.McLaughlin event to support the @CGDAofAmerica. It was super fun & great to see everyone. Let’s continue to work together to raise awareness for #CGD and advance research!

If you’re in the Palm Beach area, please pop by this evening from 4-7 pm for shopping and cocktails at J.McLaughlin in Manalapan. It will be a super fun event to support the @CGDAofAmerica @Info4PI @IDFCommunity @JenLeidingMD @WorldPIWeek @rarediseasesnet @GlobalGenes

Join Us in Chicago this Summer for @IDFCommunity PI Conference June 20 - 22, 2024 Scholarships for #CGD Patients & Families Available. Deadline is today! To register: cgdaa.org/f/idf-pi-confe… @Info4PI @CGDSociety @SCIDAngels @HyperIgM

Many thanks to @davidbakhtiari & the @packers for hosting @healingwithcyrus & @cgdaofamerica at @lambeaufield to shine a light on #cgd!!!

Honored to be featured in Bold Journey Magazine; thanks to @lizziecarlile & @VoyageLAmag for the opportunity to show what women w/ a passion for making a difference in #raredisease can accomplish! boldjourney.com/news/meet-feli… @remember_girls @Info4PI @SCIDAngels @angelaidcares

Join Brittany Hinman 12/5 @ 8 pm EST to learn about life after her son’s successful BMT & how she turned her trials w CGD into talent as a photographer. Email us at info@cgdaa.org for the Zoom invitation. All are welcome! @CGDSociety @remember_girls @IDFCommunity @HyperIgM

Today is #GivingTuesday2023 and at the @CGDAofAmerica, we are stronger because of you! Take a look at what we’ve accomplished together, and with your support, we’ll continue to make a difference for #CGD: cgdaa.org/f/the-cgdaa-is…

We wish everyone in the #CGD community a Happy Thanksgiving. We are grateful for you! 🦃❤️🍁

#Immunologists: You're invited to participate in a survey by #UNC to help understand the #genetics resources you use, including #ClinGen, an #NIH -funded initiative that aims to improve precision medicine and research. unc.az1.qualtrics.com/jfe/form/SV_e3…

It's a wrap! Heading back home after another productive experience at @GlobalGenes #Rare Disease Summit in San Diego. Many thanks to @HorizonNews for sponsoring this "rare opportunity" for nonprofit leaders in this space to come together, learn, grow, and get inspired!

Join us tomorrow on Zoom for this important talk to delve into what physicians look for in an annual exam after #CGD patients have recovered from #BMT. Email us at info@cgdaa.org for the link.

Honored to just do an interview on @DNATodayPodcast, People's Choice award winner & voted best #science & #medicine podcast in '20, '21, & '22. It was an important opportunity to talk about @CGDAofAmerica & the advancements in #genetic testing. Stay tuned for air date!

What an honor to share @cgdaofamerica’s mission with my peers, who run top nonprofits across the U.S. in the #raredisease community, at #raremindsetforum at @HorizonNews HQ in Chicago! Many thanks to @PatientAuth for hosting & to Horizon for sponsoring!

From learning about the importance of genetic testing to learning how to practice more #selfcare, join @remember_girls and @CGDAofAmerica today for this informative and inspiring Instagram Live chat. @Info4PI @CGDSociety @OnceUponAGene @rarelikeher