CURE Epilepsy

Our community makes it possible to unlock the doors holding back progress. We find and fund innovative scientists and projects - ones looking beyond the status quo and rethink what is possible in the world of epilepsy research. (Video made possible by Whitten-Newman Foundation.)

We’re delighted to announce that our international consensus paper on SUDEP research priorities, developed in collaboration with @CureEpilepsy, PAME, @sudepaction, clinicians, researchers, charities, and people with lived experience, has been published in peer-reviewed medical journal Epilepsy Currents. The paper reflects the power of coordinated, cross-sector collaboration, creating a space for shared priorities to emerge across clinical, preclinical, and awareness domains. It establishes a unified research agenda focused on preventing SUDEP – a crucial step toward accelerating progress and reducing risk worldwide. We are incredibly grateful to all co-authors and partners who contributed to this important work. journals.sagepub.com/doi/10.1177/15…

Epilepsy research news 🔬 Inflammatory Cytokine Signatures in Epilepsy: Distinguishing Drug-Resistant from Drug-Responsive Patients via @EpilepsyBehavi1 cureepilepsy.org/news/inflammat…

Epilepsy research news 🔬 The Brain Has a Warning System for Its Own Electrical Misfires, and We Can Now Read It via UC San Francisco @ScienceBlogTwit scienceblog.com/the-brain-has-…

Epilepsy research news 🔬 Treatment of Rare Childhood Epilepsy Could Begin Before Birth via @NUFeinbergMed cureepilepsy.org/news/treatment…

Last year, we partnered with the Focused Ultrasound Foundation for their first-of-its-kind workshop on treating epilepsy with focused ultrasound. Our CSO Dr. Laura Lubbers reflects on the 5 biggest takeaways in a recent blog post. Check it out here: bit.ly/4dnjT00

Epilepsy research news 🔬 Epilepsy Gene Implicated in Severe Migraine Disorder via @NUFeinbergMed cureepilepsy.org/news/epilepsy-…

The @PAMEawareness Conference brings together epilepsy researchers, health care providers, nonprofit leaders, and people impacted by epilepsy, including bereaved families, to share knowledge and work together to prevent epilepsy mortality. Learn more: pameonline.org/event/2026-pam…

The American Academy of Neurology is updating their Sudden Unexpected Death in Epilepsy (SUDEP) Practice Guidelines. Please join us in commenting during the open public comment period until May 12, 2026. aan.com/practice/guide… The Mark Shaparin Foundation is committed to #EndTheSUDEPsecret and ensure that all neurologists and epileptologists #TalkAboutSUDEPeveryVisit Learn more and support our life saving work at markshaparinfoundation.org #SUDEP #SUDEPAwareness #markshouldstillbehere @AANmember @AmEpilepsySoc @ChildNeuroSoc @Child_Neurology @EpilepsyFdn @AmericaEpilepsy @LGS_Foundation @curedravet @CureEpilepsy @SudepAction

Apply now for the Rare Epilepsy Partnership Award (1 year / $100,000), co-funded by CURE Epilepsy & a rare epilepsy advocacy group: Channeling Hope Foundation, The Rory Belle Foundation, YWHAG Research Foundation, or ZTTK SON-Shine Foundation. More info: #rare-epilepsy" target="_blank" rel="nofollow noopener">cureepilepsy.org/for-researcher…

Pediatric neurologists, dietitians, pediatricians, and neurosurgeons, this one's for you. Join the @AmEpilepsySoc on May 28 for a webinar Early Intervention & Evolving Evidence: New Guidelines in Infantile Epilepsy. Learn more: aesnet.org/infantile-epil…

@SKLifeScience Thank you so much for sponsoring this event and helping to make it a huge success!

This week, our team attended @CUREEpilepsy Takes Manhattan in NYC, an inspiring evening celebrating CURE’s work to advance research and bring hope to those living with epilepsy. Learn about CURE and how to support their mission: cureepilepsy.org

The Foundation has partnered with @CUREEpilepsy to co-fund a CURE Epilepsy Catalyst Award research grant exploring how focused ultrasound may pave the way for better control of debilitating seizures in children. Together, we are supporting research to develop a noninvasive treatment for Lennox–Gastaut syndrome (LGS), a severe form of childhood epilepsy characterized by early onset, drug-resistant seizures, and often accompanied by significant cognitive and developmental challenges. The preclinical research will test whether low-intensity focused ultrasound can transiently modulate activity in brain regions involved in seizure generation or propagation. Read the full press release: ow.ly/wCin50YRZZY

Save the date! UNITE to CURE Epilepsy is April 23. This is a day for the community to drive research forward and accelerate the search for a cure. Thanks to the generosity of Jonathan and Julia Tuteur, your gift will help unlock a $25,000 match. More: bit.ly/4vxbyhg

ICYMI: The first Pipeline of Progress series webinar covered epilepsy meds on the horizon. Watch the recording here: cureepilepsy.org/webinars/pipel… This series is supported by Lundbeck, Stoke Therapeutics, and Xenon Pharmaceuticals.

Es Día Mundial del Síndrome de #West #WestSyndromeDay El #síndromedeWest o síndrome de los espasmos infantiles Es una #encefalopatía, una alteración cerebral #epiléptica de la infancia, grave y poco frecuente🧡 Conócelo y apoya a @FSWest👇➕Investigación‼️ sindromedewest.org

Epilepsy is a neurological condition that causes recurring, unprovoked seizures and affects over 65 million people worldwide. #PurpleDay highlights the importance of advancing research and improving treatment options for people living with epilepsy. In partnership with @cureepilepsy, the Foundation recently hosted a first-of-its-kind workshop on the role of focused ultrasound in treating epilepsy. A white paper summarizing key workshop insights and next steps is now available: fusfoundation.org/posts/foundati…

150 epilepsy orgs are united behind the bipartisan #NationalPlan4Epilepsy Act (S.494 / H.R. 1189). We need your help to move this legislation forward. Take 5 minutes to contact your members of Congress and ask them to sign on. 👉 Take action here: bit.ly/NP4E

This episode of Epilepsy Explains, we explore catamenial epilepsy. Dr. Alexa King answers questions like: 💜 What is it? 💜 How is catamenial epilepsy diagnosed? 💜 When should someone find a specialist? Catch the episode on our website here: bit.ly/3N5u9jb

Save the date! Night of Discovery is happening 9/16. CURE Epilepsy's annual Chicago Benefit is an exciting evening of cocktails, dinner, and dancing that brings together more than 500 of Chicagoland’s leading business and philanthropic voices. More info: bit.ly/4lBY13m