ConsumedByCovid

@OTURISK @realNightHeron @AhmadRehanKhan How many patients with Long Covid have you treated over the last 6 years?

I disagree . I believe any gain of function only resulted in increased infectivity not virulence or ability to make people ill or die, No special intervention was required over and above observation and timely treatment of rare normal complications of viral infections. I believe long COVID is a result of the gene therapy or due to shedding of products of gene therapy or LNPs to the unvaccinated by close contact. I only have 55 years in the medical. business so what would I know.

Look closely and a pattern starts to emerge. The loudest anti-vaccine voices often overlap with anti-psychiatry rhetoric, claims that COVID was a hoax, and the belief that ivermectin is a cure-all. Not surprisingly, many such people also promote unregulated “wellness” products. And importantly, a large proportion of self-identified “healthcare workers” within this group are not actively practicing clinical medicine. This isn’t coincidence, it’s a mindset. As @jonathanstea often refers CRANK MAGNETISM, which is the tendency for individuals who adopt one fringe or unsupported belief to progressively accumulate multiple unrelated, similarly unfounded beliefs, forming a reinforcing web of misinformation rather than evidence-based thinking.

Please someone tell me this is satire. We are in 2026 for God’s sake. These awful people refuse to go away. #LongCovid #MECFS

@Independent_ie Who in their right mind would want to work for the health services when you are treated as expendable cannon fodder? irishtimes.com/health/2026/02…

Máire Treasa Ní Cheallaigh: Carroll MacNeill should cartwheel into hospital HR offices and ask about staff retention buff.ly/IhDo0Tn

The grief with chronic illness is weird because no one died. But your old life did. And people expect you to talk about that gently.

Some of you doctors on here are way too comfortable mocking hEDS, POTS, LC and MCAS patients. You’re not being skeptical. You’re being lazy. It takes zero effort to dismiss a condition you don’t understand. It takes actual work to learn it. These conditions have diagnostic criteria. They’re in the literature. They’re recognized across specialties. Yet somehow, somehow your takeaway is “everyone’s faking it.” Or “It must be anxiety.” We didn’t invent these illnesses. Medicine did. Researches did. Patients aren’t the problem. Loud, dismissive, confidently behind doctors are. You’re the weak link in the system that’s moving on without you.

Great to see at least one Dr in Ireland has read the research and understands the implications of repeat Covid infections. I just wish Dr Ciara was our GP!!!

@IrishTimes Why are you reposting this propaganda piece? Why not post something about the reality of long Covid since it's long Covid awareness month? And Bernard Gloster is leaving with huge wads of 💰 having never mentioned it once while overseeing record breaking hospital overcrowding?

@unisontheunion And yet again #LongCovid is not mentioned. I like many of my peers am disabled & unable to work due to a work acquired infection. Any support for us? Acknowledgement? Are you going to ensure the reports IPC recommendations are implemented to prevent further HCW being disabled?

In response to a question from @ZackPolanski on #LongCovid, @DrAmirKhanGP says “I feel really helpless when I see them.” People who were healthy just a few years ago, a lot of them have lost their independence and ability to earn and there’s nothing in place to look after them.

#LongCOVIDAwarenessDay happens to be my #COVID anniversary.  Six years ago today, I woke up sick. Not sick enough for the hospital, as we saw plastered all over the news. Not sick enough to die, acutely. But sick enough to get worse after returning to work as a firefighter/paramedic, progressively worsen, and become disabled.  For six years, I have been waiting for the day it gets better. The day I get better. I have been waiting for the research breakthrough that gets hundreds of millions across the world their health and their lives back.  Instead what I see is a world woefully ignorant of the long-term consequences of COVID-19 infection. I see a world that lacks empathy for those suffering and the inability to reflect on the fact that one day it can be them, their partners, children, parents, best friends.  But perhaps it still wouldn’t matter to some. In fact, I know it doesn’t because I, like many, have seen the very people we considered closest quite literally run the opposite direction simply to avoid the topic of COVID-19, chronic illness, and disability. I mean, we’re talking about gymnastics that even Simone Biles couldn't master simply to avoid us and the topic. Then, I have to sometimes take a step back from the anger, from the tears, from the confusion that I am left with when I do not understand, how they do not understand. And then I get more angry.  Over the last six years, our global governments have done nothing to disseminate public health education about #LongCOVID. No commercials on tv, radio, or social media, no directive to state and local health departments.  Over the last six years, governments and health systems have failed to mandate clinician education on Long COVID or integrate it into medical school curricula, licensure, and recertification requirements.  Over the past six years, governments around the world have largely failed to confront the systemic impacts of COVID-19 and Long COVID — including rising disability, workforce disruption, educational loss, economic instability, national security concerns, strain on healthcare infrastructure, increased mortality, and profound effects on families and communities. As a result, the world remains largely unaware that Long COVID can affect nearly every organ system in the body, contributing to cardiovascular injury, immune dysregulation, neurological impairment, respiratory dysfunction, endocrine and metabolic disruption, renal and gastrointestinal disease, reproductive health issues, clotting abnormalities, and more, including death. Clinicians remain unprepared to recognize and treat this complex disease. Key research and policy decisions have too often excluded the patients and frontline experts whose perspectives and experience are essential—leading to missed signals, misdirected resources, and delayed progress in addressing a crisis affecting millions. TRIGGER WARNING:  Over the past six years, patients have given their lives to #LongCOVIDAwareness and advocacy because we feel that if we do not, we will surely die. This is not an exaggerated statement. No one is coming to save us but us.  Many in charge believe the pandemic is over and that the incidence of Long COVID is decreasing. The data from the program the government funded, shows the exact opposite across various electronic health record systems. The FRED disability data, with an increase in disability by 35% since 2020, shows the exact opposite. Yet, programs have disappeared. Funding has disappeared. Our friends, family, and fellow community members have disappeared.  I cannot comprehend, how with the data that we have, and the clear indicators of this public health crisis across spectrums, and the impacts it will have for decades to come, how those in leadership fail to respond to this crisis at the urgency and scale it demands.  1/ This is a long one, you can read it all here: docs.google.com/document/d/1ON… #LongCOVIDAwareness

A short post about #LongCOVID and mothering this #mothersday Going out to all the mothers with Long COVID, the mothers who care for their “kids” young and old and those who quietly grieve motherhood due to Long COVID @LCAIreland @LC_Physio

#LongCovidAwarenessDay My thoughts below: In the first week of April 2020, a medical resident called me to ask for an urgent appointment: he had #COVID in March and didn't recover and, as a result, could not return to his hospital duties. He said some of his attendings also didn't recover and were experiencing palpitations, tachycardia, fatigue and brain fog. They thought it could be #dysautonomia. Unsurprisingly to me, COVID infection was causing a myriad of lingering disabling symptoms that were strikingly similar to #POTS and #MECFS. There was no term #LongCOVID back then, but clearly, there was a post-acute infectious syndrome that left millions of patients with #chronicillness and disability. As I was busy seeing patients, I enlisted the help of @serawhitelaw to write a case series of patients with post-COVID dysautonomia FAST. A few neurology journals rejected the paper -- again unsurprisingly, because dysautonomia has not been a popular topic in #Neurology unfortunately. One reviewer, probably unfamiliar with #POTS, said in a review: "How do you know these patients have POTS? Healthy people too can have postural tachycardia." Thankfully, an immunology journal was interested and did publish our paper. It became the first largest case series of patients with POTS and other autonomic disorders after COVID. Shortly after, a term #LongCOVID was coined, and many large studies confirmed post-#COVID dysautonomia as one of the major mechanisms of Long COVID. Unfortunately, 6 years later, we are still in limbo regarding treatment and still utilizing pre-pandemic therapies that we've used for dysautonomia and other conditions. Many interesting studies on pathophysiology have been done, we know a lot more than we did, but millions of patients have not benefited from this knowledge because TREATMENT is the only thing that matters to people suffering from this highly disabling syndrome. I am also disappointed about therapies... I didn't talk about it publicly, but I was a PI and on the executive committee on a great full-of-hope trial of subcutaneous immunoglobulin for post-COVID POTS. We recruited and randomized patients when the trial was stopped abruptly without good explanation. Some patients, who didn't know whether they received the drug or placebo, called us begging for "whatever they got" in the trial because for the first time since getting sick, they were feeling better. Medicine is a science, but also an art: while we must follow evidence-based and data-driven science, we must not forget that at the end of the day, it's PEOPLE that we're serving, not the high-impact journals or scientific establishment. link.springer.com/article/10.100…

So many have lost their careers, their livelihoods, many are fighting for financial supports. In Ireland Long COVID is still not recognised as an Occupational illness by the Irish government, despite numerous requests. #LongCOVIDAwarenessDay

This Long COVID Awareness Day, our NOW & THEN campaign highlights the reality of living with Long COVID. Anyone can develop it - and COVID infections continue to accumulate. Thank you to everyone who shared their stories. Please pause, learn, and share. #LongCOVIDAwarenessDay

Sometimes they are forced to stay home bc of an airborne illness that disabled them. #LongCovidAwarenessMonth

I have #LongCovid friends who were infected well before this day. Some nearly died and their stories are horrific. Some watched their loved ones go through surgery after surgery to save them. And all of them are now in year seven, with no treatments, no safe healthcare, no cures. You want to talk about YOUR "trauma?" Get stuffed. /fin

Today is my 6 year #LongCovid anniversary. Life unrecognisable. Still no treatments. Still don't know what is wrong...

@ThePOTSPostman It definitely helps!

Am I the only one with POTS who actually finds caffeine helps? For me, I feel like it reduces my lightheadedness and fatigue. I’ve been told it’s the vasoconstriction, but it actually works for me at times.

I am delighted to announce the launch of the British Autonomic Society, a multidisciplinary society dedicated to advancing clinical care, research, and education in autonomic disorders. britishautonomicsociety.co.uk

We hope to see a strong turnout tomorrow at 11am on Kildare Street, outside the Dail. We stand together to remember those lost or harmed in care, to demand a long-overdue COVID inquiry, and to present vital solutions for a system that continues to fail our people in our health and social care services. #CareChampions #Anniversary #Reform #CovidInquiry #HumanRightsDoNotGrowOld #CarePartner