Crohn's Colitis

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Crohn's Colitis

Crohn's Colitis

@CrohnsEffect

Raising awareness for #IBD (#Crohns & #UlcerativeColitis). Website https://t.co/P5aU1U6Hn6 & Subscribe to the IBD Round Table Discussion https://t.co/mAoLU3ivZP

New Jersey Katılım Eylül 2012
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The Bottom Line IBD
The Bottom Line IBD@bottomlineibd·
I don't have many photos of me from when I was at my sickness with #IBD - mostly because I shied away from them being taken as I felt so awful. But here's one my mum found the other day. Putting on a brave face at my nan's house in Plymouth on her 90th birthday in 2001. Just a few months later I was having a blood transfusion at St Thomas' Hospital as my haemoglobin had fallen to 5 or 6. I couldn't stand up and I was seeing stars... It is difficult to be reminded of those traumatic times, but it is also a reminder that better days can, and.often do, lie ahead. Never lose hope!
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Marisa Troy
Marisa Troy@JournalingIBD·
It was great to reconnect w/ old friends &advocates in person! We learned a ton,shared thoughts about various topics, &had vulnerable discussions. Throughout the long wkd,we planned new ways to help serve the #IBD community.  I'll be sharing more 📸 &insights soon. #crohns #UC
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Crohn's Colitis
Crohn's Colitis@CrohnsEffect·
I appreciate all the replies and feedback. My @Facebook account is restored again.
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Crohn's Colitis@CrohnsEffect·
Hey y'all, I need some help! My @facebook acct was hacked 2 wks ago. I reported it but my account is gone. Its like I no longer exists. I have no access to my Pages. I've tried reaching out to FB about it but Ive gotten nothing from them Does anyone know someone that can help?
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Peter Higgins
Peter Higgins@ibddoctor·
Is home fecal calprotectin in our #IBD future? Will be hoping for a single (control) line, with no color on the test line. Using all of our COVID testing skills.
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Brian Krassenstein
Brian Krassenstein@krassenstein·
I'm sick of people attacking Biden for not being in Ohio but instead traveling to Ukraine & Poland to meet Zelensky and stand up to Putin. - There are 7 Federal Agencies now operating in East Palestine - Not a single life and NO property has been damaged or destroyed in East Palestine - Yes, East Palestine should be taken seriously, but Biden's presence would not help anything, and likely would hurt by adding to the chaos - Biden's presence in Ukraine and now Poland shows Putin and the World that we stand with democracy - Biden's presence means the rest of NATO has the confidence to continue supporting Ukraine and democracy - Biden's presence shows Putin and the world that we are not backing away While Trump coddled Putin at the expense of democracy, Biden stands with Zelensky, NATO and democracy.
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Robert Dudkowiak MD, PhD
Robert Dudkowiak MD, PhD@drRobinDud·
Biologics for management of #Crohns #guidelines by Italian Group for #IBD 🇮🇹 Recommendations: 🔆from induction to maintenance of clinical remission 🔆from optimization & de-escalation of treatments 🔆dealing with perianal #CD & post-operative recurrence doi.org/10.1016/j.dld.…
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Tina Aswani-Omprakash, MPH
Tina Aswani-Omprakash, MPH@ownyourcrohns·
Takes a lot of courage to share personal aspects of living with #IBD and managing relationships! Thank you for sharing and empowering, #Gaurav!
IBDesis@ibdesis

With #ValentinesDay just past us, Gaurav, #Crohns warrior from India, shares his story of being in a relationship w/ #IBD & offers his advice: instagram.com/p/CozcXDCsQXM/… Our chronic illnesses do not make us less deserving of love & we too deserve to be accepted for who we are 💜

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Peter Higgins
Peter Higgins@ibddoctor·
One interesting outcome here - it turns out that UHC (and possibly other InsCos) records phone communication routinely. Lots of lawyers looking for opportunities to sue/do discovery and get the tapes. #IBD folks who have been stiff-armed on med approvals (esp by UHC), FYI
Peter Higgins@ibddoctor

Dark stuff revealed at United Health Care by a lawsuit filed by an #IBD patient & family. Will insured #IBD patients vote with their feet? Or is that what UHC wants, cherry-picking healthy young people? Legislators need to dis-incentivize treating high-cost (#IBD) patients badly.

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Peter Higgins
Peter Higgins@ibddoctor·
Dark stuff revealed at United Health Care by a lawsuit filed by an #IBD patient & family. Will insured #IBD patients vote with their feet? Or is that what UHC wants, cherry-picking healthy young people? Legislators need to dis-incentivize treating high-cost (#IBD) patients badly.
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About IBD (Amber): Writer, Advocate, Podcast Host
I always have a little bit of anxiety in the days before a major holiday because there's a small kernel of worry about needing care at a time when it might be difficult to obtain.
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