Leicester Adult Cystic Fibrosis Centre

Our free body image booklet explores body image issues people with CF have told us they can struggle with, and provides support and advice for dealing with these issues. It also explores some of the positive aspects of body image and cystic fibrosis. ow.ly/5RcH50RuPEW

📢 If you have CF your risk of developing Colon Cancer is increased 5-10x and 25-30X Post Transplant 🫁 Colorectal cancer is preventable with screening! Knowing your risk factors and symptoms might save your life 💙 ➡️ More information & Resources: l8r.it/yhMy

Join Lorna, and our Involvement Group members at our next CF LIVE Event. We'll discuss the opportunities around involvement, and hear how valuable your insights are living with #cysticfibrosis. February 28 at 7pm. This is a free online event - ow.ly/2Mqq50QIljv

Last week to register for the CF & Exercise Study Day!! Its free (with free lunch too!), and a suite of excellent talks and networking. Please RT, sign up, and see you there! eventbrite.co.uk/e/uk-cf-exerci…

Today marks one year since Kaftrio became available on the NHS. We will be sharing stories today, as well as reflecting on the research we are continuing to do to ensure that no one with #cysticfibrosis is left behind. Please use #KaftrioOneYearOn if you'd like to get involved!

Quickly losing salt and becoming dehydrated is a common symptom of people with CF. What are some of the best ways to stay hydrated? cystic-fibrosis.com/?p=1551

The team is so excited! First patients initiated...bring on the future! #kaftrio #cftrust #respisbest @CysticAdult @Leic_hospital @UHLRRCV

@anmari_russell @rbharts yes please, we would love to have a copy

interest in using hand held #spirometers @ home to monitor FVC has increased in #COVID times but requires initial support / training. Message me if you would like a copy of this 4min training video made with support of @rbharts

It’s great to see work has started on the refurbishment of one of our Side Rooms on the Adult Cystic Fibrosis Unit.

Think we need to adopt this onto our wards

Frankly can't think of a better way to start the twitter day than a tweet about dogs. Unless it's a tweet about dogs that detect #pseudomonas

Thank you to @ChampionLeys @BWUllesthorpe @asda @DrFoxLHC @coopuk @DavidLloydUK for your kind donations for our fundraising event. With your help we raised £858

This week, the amazing team at @CysticAdult got on their bikes to raise money for improvements during their Bikeathon Challenge! 🚲 Please reward them for their fantastic efforts by donating to support their fundraising here: justgiving.com/fundraising/Cy…

Over half way on our bikeathon😃. @Ward16GH @UHLfox @DrFoxLHC @UHLsue_mason @

Thank you for your kind donation for our fundraising day.

It’s great to see the @uhltherapy raising funds for CF

Good to see the consultants on the bikes @UHLfox @DrFoxLHC @Leic_hospital

Come and see and join us ! #prizes

@EsmRrcv @UHLsue_mason @UHLfox @Leic_hospital @DrFoxLHC