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Many times+people of whom I’m proud: for Day 5 #RareDiseaseDay I’ll choose getting myself together to tell my story bit.ly/21hHhwJ
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Dawn Smith
4.8K posts
Dawn Smith
@Dawnmignon
Alternately living with/recovering from complications of CVID. Former NHS clinician/leader. Committed to collaboration for improvement https://t.co/Mu9He4p6u6
Katılım Ocak 2012
186 Takip Edilen347 Takipçiler
#livingwithPI Thanks to all wonderful people.taking these steps alongside me.
#CVID #chronicillness #NHS70 twitter.com/MaxandMelia/st…
maxandmelia.com@MaxandMelia
Thank you to everyone who wrote a message to Dawn, I gave it to her on Saturday. Sadly, she is still in intensive care so if you would like to send her a message you can tweet @Dawnmignon and help raise awareness of #CVID
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Dawn Smith retweetledi
@Dawnmignon Thanks so much Dawn. Am glad you liked it. I have #CGD and am still #livingwithPI as my graft whilst saving my life and giving me 6 years of normal childhood, was too small to last a lifetime. I don't always do it either. But when I feel up to it, I do what I can. Stay strong!
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Thanks for telling your story @lifesmarrow on #NHSsavedmylife Thanks too for your blog themarrowoflife.com giving the nuanced back-up drop to #livingwithPI. I get it, I don't always do it, but I get it: 'The Time is Now'
#PrimaryImmunodeficiency
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Good to see some coverage on #NHSsavedmylife of this #RareDisease #primaryimmunodeficiency; amazing patients like @lifesmarrow and the achievements of equally amazing specialised #NHS services @RoyalFreeNHS as we celebrate #NHS70
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@crocusCoUk Thanks. And thanks for sending the plants so carefully protected...you've made someone else very happy too. New box to stand in! 😃🐺
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@Dawnmignon We hope you're feeling much better soon and get plenty of joy from your urban garden! #getwellsoon
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Been zapped by a sleepy, sweaty, shivery bug! #primaryimmunodeficiency What's making my day are these three guys bought with my birthday voucher from @crocusCoUk. Can't wait to get them settled in my little #urbangarden sanctuary
#livingwithPI #chronicillness #wellbeing
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Dawn Smith retweetledi
Anything which increases people's chances of finding a #stemcell donor is worthwhile. Having a transplant could be the only chance of surviving #bloodcancer and #primaryimmunedeficiency twitter.com/AnthonyNolan/s…
Anthony Nolan@AnthonyNolan
PLEASE SHARE: @ITVnews report 👉 decreasing 'contemplation window' could help increase the number of people on the stem cell register, and improve the chances of finding the best match for patients who need a transplant: itv.com/news/2018-05-2… #BeALifeSaver #bloodcancer
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Good to see some coverage (no matter how brief!😉) of this #RareDisease #primaryimmunodeficiency; amazing patients like you and the achievements of equally amazing specialised #NHS services @RoyalFreeNHS as we celebrate #NHS70
#livingwithPI twitter.com/lifesmarrow/st…
Simon Bostic@lifesmarrow
Watch #nhssavedmylife on @ITVTonight 730pm. Was a pleasure to take part in this positive documentary. My brief section covers my bone marrow transplant, a world first in 1973.
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@lifesmarrow @ITVTonight Good to see some coverage (no matter how brief!😉) of this #RareDisease #primaryimmunodeficiency; amazing patients like you and the achievements of equally amazing specialised #NHS services @RoyalFreeNHS as we celebrate #NHS70
#livingwithPI
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Watch #nhssavedmylife on @ITVTonight 730pm. Was a pleasure to take part in this positive documentary. My brief section covers my bone marrow transplant, a world first in 1973.
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Dawn Smith retweetledi
"I wanted to live deep and suck out all the marrow of Life" Henry Thoreau
This quote inspired me to blog about my life, living life to the full in the shadow of death with chronic illness and disability. themarrowoflife.com
#chronicillness #primaryimmunedeficiency #stemcells
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@anyadei Agree and offering time and support to develop these skills demonstrates that the good intention of people in these roles is valued
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Yes, it's important to ensure that roles are driven by matching values and skills as opposed to attaching new titles to old behaviours. #personalisedcare #coordinated care twitter.com/anyadei/status…
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I could really use a smile right meow
ME: No problem I got you
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A very relevant blog for all with #chronicillness spanning multiple specialisms/departments. Highlights the joint role of making appointments and decision-making as effective and efficient as possible and that patients are not passive recipients of care. twitter.com/anyadei/status…
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Dawn Smith retweetledi
Watch out for our amazing patient, Simon Bostic, who is featured on 'ITV Tonight' tomorrow at 7.30pm. He's the one in the bottom left of the picture. Read his incredible story and find out why Dr David Lowe calls him an 'inspiration'. ow.ly/Vdrx30k8EW5
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@TheSeatedView It's more intuitive the way your designer proposes; like how you flip pages in a book.
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#Crowdsouring: on my new site, there'll be links to next/previous posts by each blog post. Designer has put next post arrow on the right and previous post arrow on the left. I feel like it should be the other way around. What say you? #WebsiteDevelopment
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Dawn Smith retweetledi
#Hellomynameis Ben and I’ve recently become an amputee.
I was hit by a car when helping a driver on the M42.
I am currently @WorcsAcuteNHS where I’m continuing my recovery & I've managed to stand up for the first time since the crash.
Find out more: ow.ly/OLIB30k4s7H
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Dawn Smith retweetledi
@primaryimmuneuk @UKPIPS @theukpin @HAE_UK @CGDSociety I’m running the Manchester 10k for immunology training through the MFT charity. Please consider sharing this tweet with your followers! justgiving.com/Tomaz-Pereira-…
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