Solenn TANGO

Heureuse d’épingler 2 éléments auxquels j’ai participé : cet article👇

There's a new Ebola outbreak in the DR Congo. I'm already getting lots of questions, so let me tell you what you should know: * This one is already big — "over 246 suspected cases and 65 deaths have been reported". This means we're just learning about this outbreak long after its already been spreading. This makes it harder to find contacts and all the cases. Most outbreaks don't get this big by the time they're over, let alone this big by the time we even recognize them. * This one is in a really tough place — the outbreak is centered around the east of DR Congo, in a place with a lot of conflict, cross-border traffic, and instability. There may also be cases in the big city here, meaning worry for more/faster spread in an urban environment. I've worked up here, it's a tough spot to get to and work in, due to transport and conflict. There was an Ebola outbreak here in 2018-2019 that grew to over 3,000 cases. * This is on a few borders — this outbreak is close to the Uganda and South Sudan borders. Uganda has a lot of experience with Ebola outbreaks, South Sudan less. Very possible there's already been cross-border cases, given size of the outbreak already. WHO and countries will be stepping up surveillance, but again, this is a place with a lot of conflict and instability. * This is not your normal Ebola — most outbreaks have been of the Zaire strain of Ebola. That's the one we have vaccines and treatments for. But this outbreak appears to be due to the Bundyibugyo strain. This has caused a few outbreaks in DR Congo in the past, as well as over the border in Uganda. BUT there is no vaccine, and no treatment for this strain. My initial reaction here is that this isn't good, at all. I'm glad Africa CDC is on it, as is WHO. But delayed recognition means this has already gotten big, at a confluence of borders with a lot of instability, and for a strain that we don't have any vaccines or treatments for. I'll share updates as I hear them

"Many patients report clinician reluctance to recognise #LongCovid, leaving people without appropriate investigation, diagnosis, or management" ACTION PLAN ➡️Prevention ➡️Screening ➡️Guidance ➡️Health education ➡️Specialist support ➡️Monitoring ➡️Equity #LongCovidAwareness

🇬🇧3 cas supplémentaires de méningite, dont un décès. Et cette fois des médias parlent du lien avec le Covid : "Cette analyse fait suite au décès d'un étudiant et à l'hospitalisation de deux autres jeunes à la suite d'une épidémie de méningite dans le Berkshire. 1/14

@jeraeve 😳😵‍💫🤢

J'avais dit une dernière mais téma cette merde

#NouvellePhotoDeProfil de femme noire à domestiquer

📢INTERNATIONAL LONG COVID AWARENESS AROUND THE WORLD 🌍 nous avons décidé d’investir l’espace public à Champigny-sur-Marne avec une première action de sensibilisation autour du #CovidLong via des panneaux d’affichage libre @LCawarenessInt #LongCovidAwareness #ActionCovidLong

1/2 Cette sous-estimation est connue depuis longtemps ! Pour comprendre, il suffit de se rappeler que "Covid" est une définition ETIOLOGIQUE (elle dépend du recours à un test virologique et de sa sensibilité de détection).

@SSoleil19 🙏

@Eerrnn Tu as réussi à dire bcq de choses et ce n est jamais simple en itw qui plus est en visio donc bravo déjà pour ça !

J’aurais aimé avoir le temps de rappeler l’absurdité de l’intégration du SARS-CoV-2 dans les « virus de l’hiver ». Mais eu le temps de dénoncer l’incurie gouvernementale #CovidLong

@SalvMattera @amaticahealth Well, open medecine is quite agressive in their donation communication (each week they ask for money by email, they use the LC word only for this, & their description of it is not ok) + Sometimes it’s L. Bateman that peer reviews their studies… which is near to auto-peer-review.

I've gone after @amaticahealth for what I see as obvious predatory practices: no peer-reviewed validation, marketing claims that contradict their own disclaimers, buy-now-pay-later financing aimed at chronically ill patients, years of patient sample collection with not even a single preprint to show for it. But, people say, they're our only hope! At least they're trying to do research! My $1300 brings us closer to a solution! If you want to do something, you have options. There are research projects and institutions out there that accept donations, both money and specimens. Below, I'll list a few. Some are no longer accepting specimens, but I highlight them to demonstrate the contrast between legit research and a money-making scheme. 1. DecodeME Built a ~27,000-person cohort and collected saliva DNA from over 18,000 participants. Designed specifically so severely-affected patients could participate. Did they charge participants $1300? No, it was free. Did they offer Klarna BNPL for the privilege of donating? Obviously not. Did they take three years and publish nothing? No: their August 2025 preprint reported 8 genetic loci linked to ME/CFS, analysed across up to 15,579 cases and 259,909 controls. Is the data locked in a private company? No, they offer access to researchers. That's how it's done. 2. Open Medicine Foundation BioQuest A 1,000-sample multi-omics ME/CFS biomarker project. 400 ME/CFS, 400 healthy controls, and 50 each from four comparator groups (MS, exertional malaise/burnout syndrome, clinical depression, and Long COVID). Named investigators and peer-reviewed track record across the OMF Collaborative Centers. How much did they charge people to collect their samples? Nothing. If you have $1300 burning a hole in your pocket, you can donate. 3. UK ME/CFS Biobank Over 39,000 samples from 600+ donors. Cost to donate? $0. 4. PolyBio Long Covid Research Consortium Yale, Mt Sinai, UCSF, Johns Hopkins, Penn, Cardiff, Harvard-affiliated groups, and others. Findings published in journals, not Reddit threads. 5. NIH NeuroBioBank Post-mortem brain and tissue repository that accepts ME/CFS donations. If you're interested, you can register to donate your brain while you're still alive. It won't cost you or your family anything. You can register here: neurobiobank.nih.gov/donors-how-bec…

@FlorenceCLTL @winslow_la @TV5MONDE 🩵🐘

Merci @Eerrnn, @winslow_la, Nora, @TV5MONDE #covidlong

@DeBcn08 @winslow_la Merci !

@winslow_la Merci pour cette intervention, Solenn. Tout y est dit ! 😷💪 #WearAMask #CureLongCovidNow #LongCovidHeartBeats #LongCovid

📺🔥🐘 La co-présidente de l'association était présente ce soir, avec Norah Sahara, sur le plateau de 64' de TV5monde pour parler #COVIDLong en lien avec la crise #hantavirus. #PasPrets #OùEstLaPrevention #Invisibilisation Pour visionner c'est ici 👇👇👇 youtu.be/KUjfxsD1TEI?si…

@CovidSolidarit1 @winslow_la @apresj20 @ActionCovidLong @CLsolidaire @NoraSahara Merci 😅🫣

@winslow_la @Eerrnn @apresj20 @ActionCovidLong @CLsolidaire @NoraSahara Bravo!

"Les absences pour maladie élevées depuis 2022 ne sont en fait pas dues à l'introduction de l'ordonnance de maladie électronique, dit le @DIW_Berlin. Mais à une augmentation brutale des maladies des voies respiratoires."

C'est dingue ce qu'un "cerveau en mode défense" arrive à faire ! <sarcasm>

3/4 SARS-CoV-2 est incroyablement moins létal que cet Hantavirus, mais il est (jusqu'à preuve du contraire) incroyablement plus contagieux. Le résultat se paie très cher... x.com/C_A_G0101/stat…

@stephanie_rist cette déclaration encourage directement le stigma dejà réel des personnes (souvent) malades chroniques et handicapées qui portent le masque FFP2 sur une base régulière.

Heu. @Sante_Gouv est il possible d’éviter la stigmatisation encore plus forte des porteurs de masques, SVP ?! Déconseiller la prévention n’est jamais une bonne idée