Age-Specific Increases in the Prevalence and Treatment Burden of Neovascular Age-Related Macular Degeneration in a Super-Aged Society iovs.arvojournals.org/article.aspx?a…
Tobacco-Attributable Age-Related Macular Degeneration Vision Impairment in Japan: A National and Prefecture-Level Analysis From 1990 to 2040 tvst.arvojournals.org/article.aspx?a…
Preserved Contrast Sensitivity in Early and Intermediate Age-Related Macular Degeneration and Marked Loss in Late Stage: ALSTAR2 iovs.arvojournals.org/article.aspx?a…
The first patient has been dosed in the Phase 1 OSPREY trial evaluating STK-002, a treatment developed by @StokeTx for Autosomal Dominant Optic Atrophy.
ADOA is the most common inherited optic nerve disorder with currently no available treatments.
🔗: moorfieldsbrc.nihr.ac.uk/the-first-pati…
New research shows a diabetes treatment may reduce AMD risk; large language models tested on ophthalmology exams; a new alliance supports private optometrists.
Watch here: ow.ly/uZlc50Ye2Gz
Sandy Zhang-Nunes et al. from the University of Southern California compare the readability and quality of ChatGPT-4o–generated and AAO patient handouts in English and Spanish, as AAO materials are expert developed but not publicly accessible.
doi.org/10.1167/tvst.1…
We’re excited to announce our Usher Syndrome Information Day, hosted by @Moorfields in partnership with the NIHR Moorfields BRC. Join patients, families, clinicians and researchers.
📅Sat 21 March | 9am–5pm
📍Jeffery Hall, UCL, London
Book your place: eventbrite.com/e/usher-syndro…
In patients with molecularly confirmed USH1C-associated retinopathy, longitudinal assessment demonstrates slow progression of vision loss and structural change into middle adulthood, with preservation of central vision in some cases.
ja.ma/3LRQJLj
Natural History of Visual Function Changes Over Three Years in Normal Aging and in Early and Intermediate Age-Related Macular Degeneration: ALSTAR2 tvst.arvojournals.org/article.aspx?a…
🚨 NEW 🚨 Phase 1 data point to a promising advance for Stargardt disease type 1. In the GARDian1 trial, a single dose of OCU410ST was well tolerated, slowed retinal atrophy by about 50 percent, and improved vision over 12 months.
@Ocugen#Ophthalmologynature.com/articles/s4143…
SpliceBio has dosed the first patient in the Part B dose-expansion portion of its phase 1/2 ASTRA clinical trial (NCT06942572) evaluating SB-007 for the treatment of Stargardt disease.
hubs.li/Q03-ctWf0
🔥 ERN-EYE updates you can't miss!
📅 13-14 Apr 2026: General Annual Meeting, Helsinki
💻 CRISPR & RNA/ASO webinar
🤝 Short Exchange Program
🎙️ High-Level Rare Diseases Meeting 2025
🎥 2025 webinar replays
Stay in the loop and never miss an update 👉 urls.fr/Jsfzft
Kenyetta McCurdy-Byrd, our Closing Keynote Speaker at VISIONS 2024, invites you to be part of United in Vision 2026!
United in Vision 2026 brings together the Foundation Fighting Blindness VISIONS conference and the Retina International World Congress into one extraordinary global gathering.
Join us June 12–13 in Fort Worth, TX for two days of science, stories, and connection — bringing together patients, researchers, and advocates from around the world. 🌍
Register today at: bit.ly/4lxn3PL
Video Description: Kenyetta McCurdy-Byrd sits on her couch speaking directly to the camera about United In Vision 2026.
In celebration of her outstanding contributions to rare genetic eye diseases and her deep commitment to the patient community, we are delighted to award the 2026 Black Pearl Scientific Award to Professor Hélène Dollfus. 🥼
Recognising excellence ⤵️
🔗 go.eurordis.org/BPA-2026
🤨 What conclusions can be drawn from the LIGHTSITE III study examining photobiomodulation for dry AMD?
Drs. Blackorby, Hua, and Cai probe this topic on the New Retina Radio Journal Club w/ VBS.
Watch Now: ow.ly/YeIO50XNNb5