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***URGENT FUNDRAISING APPEAL***
#livehopebreath #cf #cffamily #charity #inthistogether
uk.virginmoneygiving.com/charity-web/ch…
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FlutterbyFUNdraisers
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FlutterbyFUNdraisers
@Flutterby4CF
Cystic Fibrosis Charity raising awareness and funds to support research. 100% of donations currently go to UK CF Gene Therapy Consortium
West Dunbartonshire, Scotland Katılım Şubat 2015
234 Takip Edilen216 Takipçiler
@jilli09 @RadioRayRTE Amazing news, good luck Jillian and Sean
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So Sean my potential live kidney donor is a full match! He now moves to next stage a full medical on Wed if all goes ok I’m getting a new kidney 😆 forever grateful to Sean & looking forward to a new lease of life, only for @RadioRayRTE this wouldnt have happened #transplant #cf
Longford, Ireland 🇮🇪 English
@aarashsaleh @GeneTherapyJack Well done Aarash, great achievement.
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FlutterbyFUNdraisers retweetledi
If you need beds freed up @MattHancock why not follow the devolved nations lead and allow England to follow FDA licensing for Kaftrio 1,000s more wld be eligible you are failing CF patients in the pandemic its #inequality #EnglandNeedsKaftrio4All #KaftrioEqualityUK
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@jasonleitch can you please clarify? Negative Covid test no symptoms tested as friend has tested positive. Not been contacted by test and protect. West Dunbartonshire. Do you still isolate for 14 days.
Alexandria, Scotland 🇬🇧 English
@CFno1LeftBehind @cftrust @cf_ireland @CF_Foundation @CFQuestForCure @KingsCollegeNHS @RBHCharity @RBandH @RoyalPapworth We are doing all we can to support @genemed @CFGT_Edinburgh to try to ensure that #nooneisleftbehind
Alexandria, Scotland 🇬🇧 English
@cftrust @cf_ireland @CF_Foundation @CFQuestForCure @Flutterby4CF @KingsCollegeNHS @RBHCharity @RBandH @RoyalPapworth
Will someone else invest in this. We need competition. Don’t we 🤷♀️ #CysticFibrosis #NoOneLeftBehind
cf/Aware@CFAware
Vertex's success kills off Savara's experimental cystic fibrosis drug hopes | FierceBiotech fiercebiotech.com/biotech/vertex…
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delighted to be one of the chosen charities for this incredible challenge.
Dr Paul Hamilton@_PaulHamilton
Some friends and I have chosen eight charities (close to our hearts)... Between now and the end of 2021 we will attempt eight separate fundraising cycles... 🚴🏻♂️👍🏻
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@_PaulHamilton @Erskine1916 @MPSSocietyUK @CrohnsColitisUK @alzscot @ProstateUK @Beatson_Charity @scotwomensaid Thank you, absolutely delighted to have your support! That is an incredible amount of time in the saddle 🚲 #curecf
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Some friends and I have chosen eight charities (close to our hearts)...
Between now and the end of 2021 we will attempt eight separate fundraising cycles... 🚴🏻♂️👍🏻
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FlutterbyFUNdraisers retweetledi
Guys I need some help for an upcoming YouTube video for CF week! This applies to anyone who has #cysticfibrosis or has a kid with CF or a partner with CF! I am looking for a short video (5-20seconds) telling me a small fact about your life with CF... (1/3)
@CFAware @cftrust
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FlutterbyFUNdraisers retweetledi
Anybody else out star gazing tonight? Our sky's are clearer than I've ever seen them here
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FlutterbyFUNdraisers retweetledi
Our very own hero taking time out for the kids #cf #eventsbytlc #batman #happyeaster facebook.com/45309201810937…
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The issue now appears to be fixed.
Maggieg@M44GYG
@scotgov @jasonleitch @jackiebmsp been informed that those in Scotland (not sure about rest of UK) who are texting their CHI number to 07860 064525(number giving in the official letter) will not be successful if you are on EE mobile network. Are you aware of this?
Alexandria, Scotland 🇬🇧 English
Get involved. raffall.com/15171/enter-ra…
Alexandria, Scotland 🇬🇧 English
We are desperately looking for funding. Does anyone know of any grants we can apply for?
#COVID19 #cf #cffamily #cfcharity #fundraising
FlutterbyFUNdraisers@Flutterby4CF
***URGENT FUNDRAISING APPEAL*** #livehopebreath #cf #cffamily #charity #inthistogether uk.virginmoneygiving.com/charity-web/ch…
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Please RT or friends and family need these urgently @GradySNP @AlexNeilSNP @neilgraysnp @DavidLinden @KennyMacAskill @StewartMcDonald @Stuart_McDonald @AnneMcLaughlin @CMonaghanSNP @DavidMundellDCT @GavNewlandsSNP @kirstenoswald @ChrisStephens @alisonthewliss
FlutterbyFUNdraisers@Flutterby4CF
***URGENT FUNDRAISING APPEAL*** #livehopebreath #cf #cffamily #charity #inthistogether uk.virginmoneygiving.com/charity-web/ch…
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