Veronica Jones

47.8K posts

Veronica Jones

Veronica Jones

@Forestvon

Raising ME awareness, ME after fluey virus since 1996, former lecturer, Christian

UK Katılım Ağustos 2016
215 Takip Edilen1.1K Takipçiler
Sabitlenmiş Tweet
Veronica Jones
Veronica Jones@Forestvon·
Pushing to exercise can harm #ME patients unlike other illnesses We all walk a tightrope a mistake can be catastrophic push yourself stand too long - risk relapse for days, months, years or decades .. even #kidsWithME Pace self, NOT push #MEcfs #meawarenesshour #CFS #pwME
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Todd Davenport
Todd Davenport@sunsopeningband·
I am still on this website waiting patiently for science journalists and grifter docs from prestige med schools to explain how an earlier onset of anaerobiosis at a lower work rate on the second of two maximal exercise tests spaced 24 hours apart constitutes a mental illness. 🙃
GIF
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ME Research UK
ME Research UK@MEResearchUK·
Why is a biomarker for ME/CFS important, & why don't we have one yet? On Wed a new project looking for biomarkers will be announced. In preparation, we look at the characteristics that make a good one, & why finding one for ME/CFS could be so crucial - meres.uk/biomarkers
ME Research UK tweet media
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Tilman Andris
Tilman Andris@TilmanAndris·
Recruitment of people with #LongCovid (in the UK) for the @DecodeMEstudy remains low. 5000 Long Covid DNA samples could be analysed. If you have any reach within the UK Long Covid community, please spread the word!
DecodeME the ME/CFS Study@DecodeMEstudy

Pls RT: Developed #MEcfs after Long Covid? Sign up for the world's largest genetic study into ME/CFS. We're now also including up to 5k people who developed the illness after #LongCovid. Register your interest and you'll be first to know when we launch: decodeme.org.uk

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John Peters
John Peters@johnthejack·
@Forestvon Happy birthday, Veronica. Hope it's as good a day as possible for you, and the year ahead is better.
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Alice Woolf
Alice Woolf@me_awareness·
archive.is/2023.05.29-060… The most astonishing volte-face by The Times. I am, of course, relieved that they are finally calling ME what it is: a "complex neurological disorder", but can't help feeling angry that for decades the media have spread misinformation #meawarenesshour
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sarah
sarah@swastrosarah·
Unpaid family carers should be included in this. Caring full time is calculated at 35 hours per week. No concept of what caring full time means in reality. I was a highly skilled and experienced front line social worker, dedicated to public service & upholding human rights
Kirstie Sivapalan@KirstieSivaP

I'm preparing a longer blog post in response to ONS report re long-term sick... If you're happy to share, what was your job/profession before you had to give up work or equally if you are still working but had to reduce your hours. RT for larger sample pls #pwME #pwLC #LongCovid

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Giada Da Ros
Giada Da Ros@Giada_Da_Ros·
#meawarenesshour
ME Association@MEAssociation

Please support the #CountMEin campaign Today, we have launched a major campaign whose purpose is to reach people living in the UK, Channel Islands, or Isle of Man, who think they might be affected by symptoms – or who have a diagnosis – of #MECFS or #LongCovid Take the survey here: meassociation.org.uk/count-me-in-me… #BeCounted #BeHeard #pwME #MyalgicE #MyalgicEncephalomyelitis #pwLongCovid #PostCovid #Campaign #CountMECFS

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Veronica Jones
Veronica Jones@Forestvon·
Charging sick people for being sick would end the NHS as we know it. Don't accept paying for your right to healthcare. Sign the petition here #DontYouDare 38d.gs/72fz
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Carole Bruce
Carole Bruce@CaroleBruce17·
I received this answer after posting a message to the BBC responding to their piece about being unable to work due to a long-term viral illness (#MECFS) If anyone feels able to respond it could lead to some useful and truthful publicity. #LongCovid
Carole Bruce tweet media
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ME Association
ME Association@MEAssociation·
Medical Matters: A free database you can search using keywords. Dr Charles Shepherd and the ME Association's other advisers answer questions from our members. Search the #MedicalMatters here: meassociation.org.uk/medm #pwME #MECFS #MyalgicE #MyalgicEncephalomyelitis #LongCovid #PostCovid
ME Association@MEAssociation

Medical Matters - Hyperparathyroidism Dr Charles Shepherd and the ME Association's other advisers answer questions from our members. Q: As many symptoms are similar to ME/CFS and Fibromyalgia, how can healthcare professionals recognise this condition? A: meassociation.org.uk/medicalmatters… Please also see the ME Association's booklet: Diagnosing of ME/CFS - Importance of Early & Accurate Diagnosis: meassociation.org.uk/mwta #pwME #MECFS #MyalgicE #MyalgicEncephalomyelitis #Fibromyalgia #Fibro #Hyperparathyroidism

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Keşfet

@MECFSNews @DecodeMEstudy @johnthejack @me_awareness @MEResearchUK @UKChange @shitlawns @elonmusk