Frances Heley

127 posts

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Frances Heley

Frances Heley

@FrancesHeley

Raising awareness of Ehlers-Danlos Syndrome. EDS- the zebra it ain't rare! 🦓🦓🦓🦓🦓🦓🦓🦓🦓🦓🦓🦓🦓🦓🦓 😀

Katılım Ekim 2021
91 Takip Edilen45 Takipçiler
Frances Heley retweetledi
Emma Reinhold
Emma Reinhold@DrEReinhold·
eventbrite.com/e/ehlers-danlo… Announcing the most exciting opportunity for GPs this year! [Drumroll] @ehlersdanlosuk are holding an afternoon event for FREE (thanks to a generous donor). I'm chairing alongside an amazing faculty. Workshop-based practical learning by GPs for GPs!
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Frances Heley retweetledi
Hypermobility MD: Dr Linda Bluestein
Hypermobility MD: Dr Linda Bluestein@BluesteinLinda·
Most doctors, sadly, do not understand MCAS or keep an open mind to how the immune system is interacting with the connective tissue and or pain signaling. They’re all connected! 🧬❤️‍🩹 I talk about this a lot on my #BendyBodiesPodcast. bendybodiespodcast.com
ThePOTSPostman@ThePOTSPostman

I’m trying to learn more about MCAS. Not sure if I have it, I do have hEDS and POTS, so it would make sense with the devils trifecta. I know a lot of my followers suffer from it so can you please help educate me. My ENT ran a blood test on me and she said I didn’t have it through that but from what I have seen more extensive testing is needed.

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Cherylee Houston
Cherylee Houston@cheryleehouston·
Sat outside Parliament being refused to deliver refused to deliver John Prong’s book about benefit deaths and have a meeting about the proposals about future cuts #TheDepartment #NoMoreBenefitDeaths
Cherylee Houston tweet media
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Frances Heley
Frances Heley@FrancesHeley·
Trying to raise awareness of Ehlers-Danlos Syndrome and the lack of medical support. This basic video was made to try and get an opening on the Today programme. Didn't succeed, but highlights a lot of the issues. #health @bbchealth #ChronicPain @BBCLookNorth
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Frances Heley
Frances Heley@FrancesHeley·
@JBKid7 Ehlers-Danlos Syndrome. Completely neglected.
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JellyBabyKid
JellyBabyKid@JBKid7·
How many other conditions don't - ever see a consultant - have a care & treatment plan - have annual reviews - have interactions with HCP who say "what's that" or "I don't believe in that" & are allowed to ignore NICE guidelines #GreatestMEdicalScandal #MECFS #LongCovid
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Frances Heley
Frances Heley@FrancesHeley·
THANKYOU to Bannatyne Health Clubs, who helped publicise Ehlers Danlos Syndrome and the EDS UK petition when I walked the Bannatyne Trail. Last week, an encouraging meeting at Westminster and a trip to no.10. ❤️ @Bannatyne @cheryleehouston @TheEDSociety
Frances Heley tweet media
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Frances Heley retweetledi
PoTS UK
PoTS UK@UKPoTS·
Today is ⭐️#PoTSAwarenessDay⭐️ ✨PoTS on a Page - GP Guide✨ If you are a healthcare professional please download this guide which summarises information about #PoTS For those seeking a diagnosis or attending medical appointments, please take this along to increase knowledge & awareness of PoTS. PDF link for this information sheet: potsuk.org/wp-content/upl… #TeamGP #MedTwitter #HCP #MECFS #EDS @HMSACharity @RCPhysicians @theRCN @DrNeenaJha @DrSdeG @GSTTnhs @BMA_GP @rcgp_ni @DrNighatArif
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Keşfet

@bbchealth @BBCLookNorth @TheEDSociety @LeedsNews @ehlersdanlosuk @H2OhTwist @blbuckley63 @JBKid7