Fsma.India

132 posts

Fsma.India

Fsma.India

@FsmaIndia

We strive each day. We smile each day. We are families fighting together against SMA. Support us in our mission to bring cure to all.

Katılım Ağustos 2019
25 Takip Edilen35 Takipçiler
Fsma.India retweetledi
Cure SMA Foundation of India 🇮🇳
Cure SMA Foundation of India 🇮🇳@curesmaindia·
We thank Govt.of Kerala @KeralaHealth for conducting an elaborate screening for SMA patients at SAT Hospital, Trivandrum. The process was extremely smooth with the presence of trained and efficient doctors. We look forward to a day when #Treatment4All SMA patients can be achieved
Cure SMA Foundation of India 🇮🇳 tweet mediaCure SMA Foundation of India 🇮🇳 tweet media
English
29
130
130
0
Fsma.India retweetledi
. Subhash kumar dhiman
. Subhash kumar dhiman@Subhash44690696·
@Vipinparmarbjp @narendramodi @DhumalHP @jairamthakurbjp @Dr_rajivsaizal @irakeshpathania @curesmaindia माननीय श्री@narendramodiजी माननीय श्री@DhumalHPजी माननीय श्री @jairamthakurbjpजी माननीय श्री @Vipinparmarbjpजी माननीय श्री @SBhardwajBJP जी श्री@Dr_rajivsaizalजी मोदी जी है तो मुमकिन है मुख्यमंत्री जी हैं तो मुमकिन है @curesmaindia timesofindia.indiatimes.com/city/shimla/hi…
हिन्दी
8
39
35
0
Fsma.India retweetledi
Scholar Rock
Scholar Rock@ScholarRock·
Our e-poster, “Apitegromab in Spinal Muscular Atrophy (SMA): An Analysis of Multiple Efficacy Endpoints in the TOPAZ Trial” will be live, April 2-7 and virtual from April 24-26 and on-demand April 27-May 14 @AANmember #AANAM
Scholar Rock tweet media
English
1
2
4
0
Fsma.India retweetledi
Pradyut Bordoloi
Pradyut Bordoloi@pradyutbordoloi·
After my letter to @OfficeOf_MM in Dec regarding affordability of life saving drugs for Spinal Muscular Atrophy (SMA), I continue to raise questions on SMA in the current session. Urge GoI to intervene & expedite access to treatment for patients across India. @curesmaindia
Pradyut Bordoloi tweet media
English
29
139
147
0
Fsma.India retweetledi
Cure SMA Foundation of India 🇮🇳
Cure SMA Foundation of India 🇮🇳@curesmaindia·
Many thanks @ficci_india n @IIM_I 4 dis opportunity to share our thoughts n experience represented by our Co-founder n Director Patient @alpanaS16 🙏. Affordability n Access r d areas @curesmaindia has been working on since d beginning as we deal with #SpinalMuscularAtrophy.
Alpana Sharma@alpanaS16

Our gratitude to @ficci_india @IIM_I 4 highly informative & enlightenin round table discussion on ways 2 mke cancer care treatment affordable As rare diseases community we @curesmaindia hv been advocatin with all d stakeholder to make d available treatment accessible & affordable

English
8
79
70
0
Fsma.India retweetledi
Alpana Sharma
Alpana Sharma@alpanaS16·
Our gratitude to @ficci_india @IIM_I 4 highly informative & enlightenin round table discussion on ways 2 mke cancer care treatment affordable As rare diseases community we @curesmaindia hv been advocatin with all d stakeholder to make d available treatment accessible & affordable
Alpana Sharma tweet mediaAlpana Sharma tweet media
English
14
86
68
0
Fsma.India retweetledi
Archana Vashist Panda
Archana Vashist Panda@PandaVashist·
Grass root level patients n caregivers voice is important 4 well informed decisions n robust policies @nppa_india @kvijayraghavan @mansukhmandviya @CDSCO_INDIA_INF @drvgsomani @MoHFW_INDIA @PIB_India @curesmaindia @malini_aisola @IdmaPresident @bhagwantkhuba @Bhagwanthkhuba
Malini Aisola@malini_aisola

@nppa_india has chosen to include a heavily pharma funded org @IAPGindia to represent views of patients on this program Urge NPPA to reconsider composition of this &future panels for unbiased & appropriate representation of stakeholders, foremost being consumers & patients 🙏🏽

English
5
91
85
0
Fsma.India retweetledi
Cure SMA
Cure SMA@CureSMA·
Many adults with SMA pursue post-graduate degrees, entrepreneurship, corporate jobs, and government and nonprofit work. #NDEAM Learn more on our website: 👇 curesma.org/national-disab…
Cure SMA tweet media
English
0
3
5
0
Fsma.India retweetledi
. Subhash kumar dhiman
. Subhash kumar dhiman@Subhash44690696·
@hemrajb @nhm_hp @curesmaindia आदरणीय श्री @hemrajbजी 👏 हमें पूरा विश्वास है कि आप #SMA बच्चों को बचाएंगे आप यह कर सकते हैं सरकार बच्चों को बचा सकती है रोश कंपनी से बात की जाए और बच्चों को दवाई दिलाने में आप अपना योगदान कीजिए हम आपके सदा आभारी रहेंगे धन्यवाद @curesmaindia
हिन्दी
1
20
13
0
Fsma.India retweetledi
Sandeep Kumar
Sandeep Kumar@dreamseller25·
@narendramodi @PMOIndia : Please listen to the request of my daughter who is suffering from Spinal Muscular Atrophy. She need RISDIPLAM for her treatment. Please help us.
English
8
59
42
0
Fsma.India retweetledi
Vasundhara Tankha
Vasundhara Tankha@VasundharaTankh·
Spinal muscular atrophy is a rare genetic condition that children are born with. There is only one drug currently which cures this condition and it costs 16cr. Watch @VTankha bring awareness to this condition in parliament & give suggestions on how we can help. Each life matters.
English
55
244
1K
0

Keşfet

@KeralaHealth @Vipinparmarbjp @narendramodi @DhumalHP @jairamthakurbjp @Dr_rajivsaizal @irakeshpathania @curesmaindia