GetOnDowns

Thank you Minister @SKinnock @DHSCgovuk for working with the @APPGDS & @NDSPolicyGroup to ensure the #DownSyndromeAct guidance is meaningful, robust & will improve outcomes for all. Reassuring timelines are confirmed for public consultation. @DamianHinds @garrettflo #AndrewCooper

A packed agenda incl. delays & ongoing issues with the #DownSyndromeAct guidance, the #AssistedDyingBill, & reported changes to EHCP eligibility. Thanks to Cambridge Uni @CIDDRG for their Alzheimer’s presentation & @garrettflo for sharing the Advisory Group ICB challenge results.

Minister @SKinnock explains why the consultation on the Down Syndrome Act 2022 - pioneered in @UKParliament by @LiamFox & @BaronessHollins has been delayed. @APPGDS @DamianHinds @DownSyndrome @DownSyndromeLPL @HumanRightsCtte @LordSpeaker @CommonsSpeaker @HouseofCommons

✉️ Postcard from New York where NDSPG Founding Office Fionn from @fionnathan spoke about improving support systems at the 14th World Down Syndrome Day Conference supported by his fellow NDSPG Ambassador @garrettflo 👏🏻👏🏻👏🏻 #WDSD25 #DSI

Thank you to MPs who supported @grahamstuart's @HouseofCommons #DownSyndrome debate on behalf of their local groups, highlighting ongoing issues with the #DownSyndromeAct guidance. #FitForPurpose @DamianHinds @GoAndrCoop @ThurrockJen @JessBrownFuller @karinsmyth @LiamFox

Astonishingly frank letter in today's Times on the serious deficiencies in the Committee 'scrutinising' @kimleadbeater's assisted suicide bill: "This bill should be overwhelmingly rejected." thetimes.com/comment/letter…

An open letter signed by 60+ organisations raises serious concerns about the potential impacts of legalising assisted dying, urging @UKParliament to uphold their safeguarding duties & ensure legislation does not inadvertently harm the most vulnerable in society #AssistedDyingBill

Huge congratulations to Billy, who attended the Sutton Community Awards Evening and proudly received his Outstanding Young Person Award!🏆 A well-deserved recognition for his incredible achievements. We’re so proud of you, Billy!👏 #SuttonAwards2024 #OutstandingYoungPerson #HASU

Productive @APPGD @HouseofCommons with valuable contributions from @DownsCheshire & @NDSPolicyGroup Advisory Group highlighting their day to day challenges with education, employment, housing & healthcare. @davidgoss @jackmrankin @GoAndrCoop @BaronessHollins @DamianHinds

Another important day for all people with Down syndrome as we celebrate the relaunch of the @APPGDS. Proud to provide the secretariat once again and support our MPs in this vital work.

Series 2 @BBCOne Sherwood continues tonight. Looking forward to seeing the talented Bethany Asher’s character developing on-screen: “With one scene, we begin to reevaluate Stephie's role in this season, her place in the harsh world, & it is refreshing.” digitalspy.com/tv/a61995736/s…