INIDA - Iatrogenic neuroimmune disease association

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INIDA - Iatrogenic neuroimmune disease association

INIDA - Iatrogenic neuroimmune disease association

@INIDAofficial

INIDA is a patient led association dedicated to collecting community data, researching and spreading awareness around iatrogenic disorders such as PSSD and PFS.

Katılım Kasım 2024
14 Takip Edilen53 Takipçiler
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INIDA - Iatrogenic neuroimmune disease association
gofund.me/7c0a272a1 Help Launch the First Study on GPCR Autoantibodies in PSSD! Great news, half of our $50k goal is already secured! We still need $20k by Oct 1 to ensure the study starts on time. Every contribution helps us cross the finish line.
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🟠Jonny
🟠Jonny@Lobotapro·
We’re not at 90% thanks to an amazing couple of weeks! 🔥 Thanks to everyone who contributed!👏 If you’re interested in helping us reach our goal, either by donating or sharing our fundraiser, please click the link below🙏 gofund.me/0083d7803 #PSSD #pssd #research
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PSSD WARRIOR
PSSD WARRIOR@PssdWarrior·
Bring it home !
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Arvid
Arvid@void_prison·
Please consider donating to this PSSD study. Not only could it give PSSD biomarkers which would help in getting it recognized, but could also lead to treatments in the form of IVIG and other immune therapies. gofund.me/22cb5d7a2
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Mad In America
Mad In America@Mad_In_America·
Two Decades of PSSD: A Life Stolen by Antidepressants By Jon Jacobsen Our two-year-long collaborative research project suggests that neuroimmune processes and related downstream mechanisms may play a role in PSSD. buff.ly/OT5NGSD
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🟠Jonny
🟠Jonny@Lobotapro·
Happy to finally announce that our research document is officially out now! It has been published on Mad In America as well as hosted on our own platform. This is the result of a 2 year long community driven collaborative research effort involving: Data tracking📊 Tracking & interpreting test results across 6 categories collected from over 100 PSSD patients; • GPCR autoantibody tests (Celltrend & Cunningham) • SFN skin biopsies and QST's • Neuroimaging (MRI's & PET-Scans) • Lumbar punctures • Cytokine panels • GI map panels. Patient tracking📝 • Following multiple diagnosed cases, logging treatment trials & gathering “case reports” written by medical professionals Research🔎📄 Reviewing tons scientific literature Writing✍️ 100s of hours writing about various topics, including; • Exploring related conditions and potential shared mechanisms with PSSD • Investigating the nervous system (ANS, SNS & CNS) as contextual basis for interpreting the data • Interpreting & discussing the test results • Exploring potential etiology, triggering mechanisms & alternate hypotheses To read the full document, visit: inida.info/community-rese… Can also be viewed at: madinamerica.com/2025/05/two-de… @PSSDNetwork @MelcangiCosimo @abcsoka @joannamoncrieff @PGtzsche1 @KennethMPeters1 @taperclinic @PSSDCanada @SafeSpaceShared @Mad_In_America @PFSFoundation #PSSD #ssri #Pharmaceutical #Neurology #Immunology #autoimmunity #neuroinflammation #autoantibodies #autoimmuneencephalitis #SFN #gutdysbiosis #dysautonomia #disease #INIDA
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