Irish Sarcoma Group

@Nickguantanimo @simonateba @realDonaldTrump Deluded and deranged

@simonateba @realDonaldTrump I stand with Trump !

Be brutally honest: With everything that's gone on in the past 3 days, do you still stand with President @realDonaldTrump? Yes or no?

@simonateba @realDonaldTrump No way

Extra-ordinary data from 🇺🇸 highlighting the relative lack of investment in #radiationoncology compared to anti-cancer drugs 2010 🟰#RADONC $3.4B : #SACT=$6.6B 2021 🟰#RADONC $3.5B : #SACT=$43.9B Imagine if we had a 10 fold increase in spending on #radiotherapy technology? Thanks for flagging @toddscarbrough @WorldRTDay @RCRadiologists

I was disappointed to learn this morning that the combination of pembrolizumab and lenvatinib for patients with advanced endometrial cancer (nejm.org/doi/pdf/10.105…) has been turned down for reimbursement by the HSE. Until now, there has been an expanded access programme, and I do have a number of patients with a sustained response to treatment. As of right now, I understand that for those patients still benefitting from the treatment, the pharmaceutical companies will continue to supply the drug free of charge to the HSE. Needless to say, I did not learn this from the HSE. The HSE have put in place a tracker for drug reimbursement: sspcrs.ie/portal/rdt/pub… Maybe it is me, but I can find nothing about this decision on the tracker. When a major decision like this is made, the least that should be done is that the decision is published, oncologist should be notified, so that patient expectations can be managed in the clinic. In the graph below (from the NEJM publication cited above), going forward, in Ireland, for advanced endometrial cancer, second line, the blue line is private healthcare insurance, the red line is public healthcare. Sad to see.

@KeohaneNicola @dice_europe Fantastic news! Congratulations 🙌

It’s Official! We’re thrilled to announce that the TSJCI Young Onset Programme is now an associate member of @dice_europe Delighted to be part of such an impactful organisation and excited to continue working together to support and empower our community.

@DavidWi85904448 Appreciate that David 🙏

@IrishSarcoma This is the URL - should be easier using a laptop than using your phone if you scan the QR code

Please disseminate widely. This is an invaluable study

Congratulations! We are so lucky to have you @MsAisNolan 👏

➡️ 2024 was an amazing yr for recruitment to clinical trials across all RT departments in 🇮🇪 ➡️ 2️⃣5️⃣9️⃣ patients recruited!!! ➡️SLRON passed NCCP target of 6% of pts on trials! ➡️IRROGs aim is to one day exceed that target nationally as our RT trial portfolio continues to grow 📈

Always grateful for your support @IrishCancerSoc 🙏

10th anniversary of the ISG with members of our National and International speakers. The inimitable Roger Wilson. Proud of achievements to date. ⁦@Amocras⁩ ⁦@SarcomaIreland⁩ ⁦@sarcoma_ireland⁩ ⁦@charles_gillham⁩ ⁦@CHI_Ireland⁩ ⁦@CUH_Cork⁩ ⁦

Aisha Miah eloquently presenting the rationale for altered radiotherapy fractional schedules in soft tissue sarcoma.. For now hypofractionated pre-op RT should not be standard of care but trials in planning ⁦@ctosociety⁩ ⁦@aisha_miah⁩ ⁦@TheBSG_UK⁩

Progress in Irish sarcoma services since its inception in 2014 is heartening and today Risteard O’Laoirde, Director NCCP opens our 7th scientific meeting. Promises to be a great day of learning and networking ⁦@charles_gillham⁩ ⁦@hseNCCP⁩

Please come join us! Pay in advance or on the door; sessions on pathology, radiology, AYA, radiotherapy and systemic agents plus a round table discussion on how best to engage with primary care teams @IrishCancerSoc @IANOCancerNurse @jobswithCHI @sarcoma_ireland @hseNCCP

🌻 Irish Sarcoma Group Patient Information Day in conjunction with Sarcoma Cancer Ireland🌻 Join us for a day filled with valuable information, support, and connection for sarcoma patients and their families.

7th Irish Sarcoma Group meeting will take place in The Talbot Hotel, Fri October 18th with this stellar line up of international (and many well known national) speakers. Please share widely. Hope to see you there! ⁦@hseNCCP⁩ ⁦@IrishCancerSoc⁩ ⁦@IANOCancerNurse⁩

These two fantastic nurses have out together podcasts highlighting all aspects of different types of cancer. July was sarcoma awareness month @charles_gillham @TheBraytrix @IrishCancerSoc @SarcomaIreland open.spotify.com/episode/1nVRRp…

@JLHornick @TBrennster It truly is. Incredibly sad

It's shocking to realize he is gone. ❤️

The second largest workforce in the country. Excluded from the latest iteration of the health service restructuring. Beyond frustrating

What an incredibly brave woman. Huge respect and a great tribute to a wonderful man.. @sarcoma_ireland @SarcomaIreland @IrishCancerSoc @charles_gillham