Jasmine Hayer

It took 11 months for me to FINALLY get a diagnosis for #LongCovid. Anxiety wasn't the cause, it was blood clots in my lungs & fluid around my heart! Thousands are going through what I did. My story needs to be heard!! @guardiannews @guardian @Telegraph mylongcoviddiaries.medium.com/i-finally-have…

@Daltmann10 Thank you so much Danny 🙏🏽

@savingmeredith Hi there - I don't use Twitter much now but what you shared really moved me. I stand with you guys in solidarity ;( Please have a look at my blog (link in bio) and perhaps it may help. I've had severe LC since March 2020 but I've come a long way, mostly because of #teamclots

Today is #severeMEday. In April, my sister Meredith was a software engineer, living a normal life, & thriving. This is her before she became ill with #LongCovid, and this is her now. She’s 32. As her sister, it feels like my heart has been ripped out of my chest. 1/

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@ModestMitkus ME

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Thank you for sharing some of my story @BBCHughPym Just to add - my specialists at @RBandH found that my #longcovid damage was the same as post mortem findings and covid ICU patients. This is how serious the disease is. We look 'okay' from the outside but you can't see inside

@LongCovidSOS @BBCNews @covidinquiryuk @BBCHughPym Thank you for sharing guys 🙏🏽

"It was this unstoppable desecration of my health" Tonight on @bbcnews at 10 - @JasmineHayer needs answers from the @covidinquiryuk #LongCovid Thanks @BBCHughPym

@dbkell Thanks Doug!🙏🏽

Good to see @JasmineHayer on the news tonight!

Finally a report that communicates how serious #longcovid is. For those who’ve been told to just get on with it/it’s probably just anxiety/try harder, this will feel like validation. Show it to everyone who didn’t listen to you. @ucl @UniofExeter @long_covid

@AXAHealth @Lucykeeffe @Jasmine Yes DM away 🙏🏽

@JasmineHayer @Lucykeeffe Hi @Jasmine we really love your positive content - can we DM you? - as part of our #randomAXAkindness initiative we have some #kindness to send your way...

#LongCovidAwarenessDay To mark 3 years of having #longcovid @Lucykeeffe and I put together this video project, uniting other brave sufferers also hitting their 3 year covidversary. You are not alone ❤ ⬇️ instagram.com/reel/Cp0OoZsLA…

@PaulBir90771241 Thanks - a lot has happened since then..I've been confirmed with microclots both in Germany and via UCL.

Jasmine, you'll no doubt have seen this by now but, if not, this research could be useful. It's initially an accidental discovery of micro blood clots - portlandpress.com/biochemj/artic…

I finally have a diagnosis for Long Covid and it’s shocking by @JasmineHayer link.medium.com/d53zZluINyb

@organichemusic Wow, thanks so much for sharing this! More hope. My specialists are contemplating trialling this in me but said it comes with a risk of high output heart failure in people without high PVR 😳 They used it a lot in patients with covid pneumonitis, which worked successfully.

I haven't experimented further with Viagra until tonight. Took 12.5 mg in hopes that it would help my chest pain and within 30 minutes the chest pain was 85% gone. 💓 Further confirmation my symptoms are cardiovascular and not just "stress."

Got an Rx for sildenafil 25 mg (Viagra)! Some may remember the thread I wrote about PDE5 inhibitors for ME & LC. I gotta say I'm nervous to try it & was thinking how brave #pwLC, #pwME & Lyme are experimenting w/ so many supplements & meds! Thinking of trying 1/4 dose 1st 🫣😳

Today is #LongCovidAwarenessDay This is our message: #LongCovid can rob people of everything they once held dear... Things need to change We are fighting to be a lifeline for people with #LongCovid Hear our SOS and help us be that change #LongCovidAwarenessMonth @LCawarenessInt

@OT_Skiff @RBandH So proud of you pal 🤗❤

Resting in preparation for starting my new job tomorrow 🥳 Feeling the usual mix of nerves and excitement but really looking forward to returning to @RBandH the very place my OT career started 💚🤞🥳 #newjob #OccupationalTherapy

A long list of #MECFS biomarkers. H/T @BinitaKane 🙏🏾 You could do with having a look @nataliesurely @newrepublic @emilyecooke Neither ME nor #LongCovid are psychogenic. This is not a matter of opinion. Babbling ‘mind body’ incessantly won’t change that nature.com/articles/s4159…

Airing on @BBC1 at 2000 GMT today. Featuring HCWs afflicted by #LongCovid

@menschfra @LLMN80 Oh I'm sorry to hear this 😔 Can you try Vedicinals? My vo2 increased by 56% because of it! All info here: link.medium.com/1gQsjsZyZwb

Yesterday, marked 22 months since I first had covid. 22 months of insidious #LongCovid. Yesterday, I discovered that my venous oxygen saturation is 23% (normal ranges are 94%+). Pulse oximeter = always 'normal'. Can anyone help me get this microscopic clot test in the UK?😢

A refreshing Zoom with our 40+ clinician and research LC group tonight:Take-home:1) COVID is not a typical flu 2) Microclots=the result of LC not the cause 3) Platelet hyperactivation = central 4) individualised care=key @dbkell @DrGrahamLJ @drclairetaylor @Sunny_Rae1 #teamclots

With chronic illness, you normalise so many things most people won't ever feel. You normalise high levels of pain, being exhausted, medical procedures and trauma, needing to rest after a shower. People see you surviving with an illness, but not all you had to normalise to do so.