Karen B

@BrennigDavies @BBCRadio4 I caught it yesterday, when I was driving home after dropping my daughter off at the train station. It was beautiful and very moving, and I cried all the way home.

So excited to hear my story 'The Pomegranates' on @BBCRadio4 this Friday (28/06) at 3:45pm. If you get the chance to tune in, please do – the way Mali Harries reads it breaks my heart (and I wrote the thing!) bbc.co.uk/programmes/m00…

@SEPfieldPatient @angryhacademic Thought I’d share, on the off-chance that it might be relevant to you and/or your child

@SEPfieldPatient @angryhacademic Returning to this thread because I’ve just seen this on another site:

It is with both excitement and trepidation that I announce I have started my own business: Long Covid Scientific Consultancy. Please check out the website here 👉🏻 lc-sc.co.uk And share with any friends / family who are lost on their own #LongCovid or similar journey

In 2016, Professor Esther Crawley of Bristol University announced with great fanfare the launch of FITNET-NHS, a trial of online CBT for adolescents with ME/CFS. The first reported outcome results--on cost-effectiveness--are disastrous. Oops! virology.ws/2023/12/30/tri…

@chydorina In the UK, TV programs such as Gardeners World, Countyfile, and the first series of Blue Planet and Frozen Planet. The heavy focus on visuals of nature and lack of “people drama” or suspense, is essential for me to be able to relax mentally and emotionally.

7-year anniversary of reanalysis paper on recovery in £5m #PACEtrial, with data the PACE team fought so hard to keep to themselves. Shows recovery rates in all trial arms were low, using the criteria the PIs promised in their own protocol tandfonline.com/doi/full/10.10… #MEcfs #CFS

Results of a German study of people with #MECFS: “participants reported a significant deterioration in their health situation and their quality of life as a result of misdiagnoses and incorrect treatments…and the lack of support from the physicians.” pubmed.ncbi.nlm.nih.gov/38062324/

@spoonless_me @wavepruner Which choline supplement do you take?

@wavepruner Yes, I agree with it affecting homeostasis. I've been playing around with nicotine patches, choline and benfotiamine for at least 6 months. Choline and B1 together at large doses is life-changing for me.

In the past few weeks, I've experienced significant improvements in my health in the areas of small fiber sensory and autonomic neuropathy, cognitive dysfunction, fatigue, and rapid muscle fatigue. It feels like I'm finally unraveling the mystery of my own broken body. 🥹🧵

Every Child Deserves A #CleanAirClassroom #COVIDisAirborne Indoor Air Quality Tackling Air Pollution At Schools @TAPASNetwork " Why A Fresher Perspective is needed on Childhood COVID 19' International Seminar Series 20.11.23 @SGriffin_Lab

@SEPfieldPatient @angryhacademic Interesting! Bookmarking to read later!

BREAKING 🚨| The Conservative government IGNORED Covid safety warnings in schools because ministers 'didn't want to give an inch to unions'. Released WhatsApp messages at the Covid Inquiry have revealed: Gavin Williamson and Boris Johnson REJECTED calls for masks in schools because they were in “no surrender mode” towards unions.

"Angiopoietin-1 (ANG-1) & p-selectin (P-SEL) are potential diagnostic markers [for #LongCovid]... We analyzed data of 249 participants. ANG-1 & P-SEL levels were significantly higher in LongCovid patients vs controls at 3 months... We managed to reproduce & validate the findings"

@cindyktherapy @NickChambers2 @TheNicotineTest @dbkell @organichemusic Sorry if this seems a little evasive. Apparently the new owner over here is a little bit sensitive about the fact that so many people are migrating!

@cindyktherapy @NickChambers2 @TheNicotineTest @dbkell @organichemusic Hi cindy, just look at the picture; what colour is it, and what is it a picture of? That’s the name of the platform. Then type it into your search engine!

@NickChambers2 @canal1pont5 @TheNicotineTest @dbkell @organichemusic Will you change platforms any time soon? The other place is much better, apart from the fact that your voices seem to be missing!

@TheNicotineTest @NickChambers2 @dbkell @organichemusic LongCovidKids, PutrinoLabs, LongCovidPharmacist, and RemissionBiome are there already - and the rate of migration seems to be increasing! (This place is on the verge of being blocked by the EU for flaunting disinformation laws)

@TheNicotineTest @NickChambers2 @dbkell @organichemusic I was planning to send an invite code your way, once I start receiving them! However, there may be a quicker way, if you’re interested; Someone has a bunch of invite codes that they are sending to people in the chronic illness community.

@GregHands @CCHQPress @Conservatives If you can't do any better than go back to 2010 to scrape up an inappropriate note left as a joke then you're in a very bad place indeed!

@TheNicotineTest @NickChambers2 @dbkell @organichemusic Yes, the FB group is really excellent and I now find it far more useful than this place for support and info! OTOH, Xwitter was great for getting the word out - and its how I found you. But it’s becoming less relevant as people quit due to the damage that melon is inflicting