Lucinda Bateman

@_khkmagduru_ 68

Göz testi hangi sayı eksik? Henüz bulan çıkmadı🤔

Orthostatic intolerance is common in ME/CFS & Long COVID, yet many patients go undiagnosed for years. Our latest blog explains: • Tilt Table Tests • Active Stand Tests • NASA Lean Tests …and why accessible testing matters. Read more: bit.ly/49ZOOgw

@dysclinic I remember when that happened to fibromyalgia patients

I learned today that some clinicians are specifically told by their healthcare organizations NOT to see patients with #POTS. Perhaps it's time to mobilize and organize from a legal standpoint to fight this blatant patient discrimination.

@CortJohnson @OpenMedF OMF-Funded Moreau Lab ME/CFS research links low membrane SMPDL3B & depleted sphingolipids/ceramides to immune dysfunction, PEM, kidney-related blood volume problems, & the renin-aldosterone paradox. OMF plans related med trials. healthrising.org/blog/2026/04/2…

Reminder: Long COVID's disability & suffering will be the pandemic's most devastating long-term global legacy. Neither GBD supporters nor critics anticipated its scale or included it in their policy calculus -and “let er rip” strategies prioritizing widespread exposure clearly worsen the toll. Millions affected, with real costs in lives and productivity (on top of 20 million direct deaths globally, which we should never forget or minimize). nature.com/articles/s4385…

Thanks for being an ally for all of us who have been dismissed, gaslit, and treated as delusional in today’s healthcare settings. Please listen to us and give us the opportunity to represent ourselves and our children on committees instead of cherry-picking mildly affected individuals or parents of mildly affected children. Here is my article, if you would like to hear directly from the perspective of a parent of a severely affected child with Long COVID. thesicktimes.org/2026/01/13/sev…

I agree with this. I would add that #BrainHealth is #MentalHealth and that addressing underlying chronic illness and its metabolic, autoimmune, immunologic and environmental components is the key to improving mental health. For many people, it's not psychotherapy or SSRIs! 🧠

A Special Thank You to everyone who is sharing ME/CFS awareness and information on May 12 International ME/CFS and FM Awareness Day

On ME, ME/CFS, FM awareness day I affirm my commitment to progress. We must improve access to care, treatment options and research funding. Everyone must join the effort. Worldwide.

@HaYoMiDe_ Need to all leave

Just say it slowly 😭

Just a few days left to share your “This is ME” story with us. Video or written. Anonymous welcome. Deadline: April 30. We’d be honored to hear from you. 💙 🔗 Submit here: bit.ly/3Q4Vy5T

A group of Iguanas is called a "mess"

Join me in an hour for @BatemanHorne virtual Coffee with a Clinician. I, @RyanBourdo DPT and Michelle Haddad, PhD are talking about #PEM. Specifically, what's the best way to explain PEM to your medical team? How do they document it? Register: batemanhornecenter.org/event/coffee-w…

@1goodtern Yikes!

😂

🚨NEW: Donald Trump has attacked rock legend Bruce Springsteen in a new social media post, calling him "a total loser who spews hate." RETWEET if you stand with @Springsteen against Trump!

@sciencegirl Totally

But why x.com/Earthlings10m/…

WATCH: The White House took down this video, but we still have it. Trump: We can't take care of daycare. We're a big country. We're fighting wars. It's not possible for us to take care of daycare, Medicaid, Medicare, all these things.

🚨NEW: Defense Secretary Pete Hegseth has fired Army Chief of Staff General Randy George. Serving for over 40 years, George received the Purple Heart. RETWEET if you stand with General George against Trump!

@julierehmeyer @bhanlon15 I can't believe it has been 2 years! :(

Over two years ago, the magnificent Beth Mazur ended her life at my home. I miss her. nytimes.com/2026/04/03/sty…

RT if you miss having a President with a functioning brain.