Lucinda Bateman

Terminó la Copa Mundial de Fútbol 2026. Fue una gran celebración de alegría, emoción y unión entre los pueblos, donde el deporte volvió a demostrar su capacidad para acercar a las naciones. Felicidades a todas y todos los mexicanos por hacer de México la mejor sede y a nuestra Selección Nacional por el gran papel que desempeñó, poniendo en alto el nombre de nuestro país con entrega, talento y orgullo. Felicidades a España por conquistar merecidamente el campeonato. Los tres países anfitriones —Canadá, Estados Unidos y México— demostramos que, cuando trabajamos unidos, somos capaces de hacer realidad grandes proyectos y de dejar un legado de cooperación, amistad y esperanza para el mundo.

NINDS Multi-System Disorders Workshop: Registration is open for the Sept. 23-24 NIH hybrid workshop on advancing research and care across infection-associated conditions, neuroimmune dysfunction, autonomic dysfunction, genetics, and related disorders. events.ninds.nih.gov/event/30599/

Clayton Powers, DPT, @BatemanHorne : After nearly 9 years at University of Utah Health, Clayton is transitioning to Director of Education and Strategic Partnerships at Bateman Horne. linkedin.com/posts/claytonp…

@Murk441 Skin

@KalamCenter 191

Interesting puzzle here. What do you think?

Scott Hugo, 25+ patient advocates & @MEActNet filed an ethics complaint over WIRED's Long COVID article. Learn why the Long COVID & ME/CFS communities are concerned, read the complaint & sign the petition: mecfssandiego.com/mecfs-advocacy…

@scott_scientist @njfatigue @BatemanHorne We should constantly be reevaluating based on research advances

@BatemanHorne @LBatemanMD The roadmap is now a couple years old at this point and we've had a lot of study results be published since its inception. Do you support a reevaluation/adjustments to the roadmap that are needed in lieu of the most recent findings we have, including some of the results we have on viral persistence not being as good of a hypothesis and you thought it might have been at the time (not correlating with severity, decreasing overtime to virtually nothing, not responding to antivirals etc) and putting environmental research to the forefront as a critical main pillar of research?

Dr. Lucinda Bateman speaks on the ME/CFS Research Roadmap and that it should be funded #notjustfatigue #mecfs #pwme #millionsmissing #fundtheroadmap

Education matters. Community matters too. Explore BHC's free: • Support Groups • Outreach Event Recaps • "Coffee" with a Clinician recordings Join our mailing list for future events & resources. 📩 Sign up: bit.ly/3POhK4d #HelpThatDoesntWait

HELP THAT DOESN'T WAIT bit.ly/4oKuFkY Research is building toward more effective treatments and a cure. In the meantime, people need support now. Throughout July, we'll be sharing free BHC resources for ME/CFS, Long COVID, fibromyalgia, and related conditions.

Join us online this July! Tuesday, July 7: Support Group – Navigating Work Loss & Financial Stress Wednesday, July 8: "Coffee" with a Clinician – Sleep Challenges Tuesday, July 21: Support Group – Boundaries & Needs While Chronically Ill Register here: batemanhornecenter.org/events/

@dysclinic So sad!!! What is happening in our medical institutions? We must fix this problem. (Good luck since we've been trying for 10 years now 🤪)

My patient told me today that a major US academic institution is no longer taking POTS patients. What does that mean for patients and clinicians? ✔️ Patient care will move EVEN MORE to private practice. ✔️ These academic institutions who "no loner take POTS patients" WILL NOT be leaders in the field. ✔️ Imagine if an academic institution said, "We are no longer taking patients with lupus." ➡️ The healthcare system needs to be CHALLENGED. ✔️ We must provide education for all physicians taking care of #dysautonomia patients. ✔️ The field is rapidly EXPANDING: it's not going to be led by Ivory Tower academic eminence, but by those of us who have been in the trenches for decades and have contributed to #dysautonomia research.

Our most-viewed YouTube video last month is worth another look. "What is ME/CFS?" breaks down the core symptoms of ME/CFS, including PEM, cognitive impairment, unrefreshing sleep, and orthostatic intolerance. Watch now: bit.ly/4fNwHhG

@_khkmagduru_ 68

Orthostatic intolerance is common in ME/CFS & Long COVID, yet many patients go undiagnosed for years. Our latest blog explains: • Tilt Table Tests • Active Stand Tests • NASA Lean Tests …and why accessible testing matters. Read more: bit.ly/49ZOOgw

@dysclinic I remember when that happened to fibromyalgia patients

I learned today that some clinicians are specifically told by their healthcare organizations NOT to see patients with #POTS. Perhaps it's time to mobilize and organize from a legal standpoint to fight this blatant patient discrimination.

@CortJohnson @OpenMedF OMF-Funded Moreau Lab ME/CFS research links low membrane SMPDL3B & depleted sphingolipids/ceramides to immune dysfunction, PEM, kidney-related blood volume problems, & the renin-aldosterone paradox. OMF plans related med trials. healthrising.org/blog/2026/04/2…

Reminder: Long COVID's disability & suffering will be the pandemic's most devastating long-term global legacy. Neither GBD supporters nor critics anticipated its scale or included it in their policy calculus -and “let er rip” strategies prioritizing widespread exposure clearly worsen the toll. Millions affected, with real costs in lives and productivity (on top of 20 million direct deaths globally, which we should never forget or minimize). nature.com/articles/s4385…

Thanks for being an ally for all of us who have been dismissed, gaslit, and treated as delusional in today’s healthcare settings. Please listen to us and give us the opportunity to represent ourselves and our children on committees instead of cherry-picking mildly affected individuals or parents of mildly affected children. Here is my article, if you would like to hear directly from the perspective of a parent of a severely affected child with Long COVID. thesicktimes.org/2026/01/13/sev…

I agree with this. I would add that #BrainHealth is #MentalHealth and that addressing underlying chronic illness and its metabolic, autoimmune, immunologic and environmental components is the key to improving mental health. For many people, it's not psychotherapy or SSRIs! 🧠