Lucinda Bateman

@morgfair I dont have long COVID but I fight for those that do

I don't have Long Covid, and have never had Covid. But I advocate for those who do....

🚨NEW: Former FBI Director Robert Mueller has died at the age of 81. A Purple Heart recipient in Vietnam, he dedicated his life to standing up for democracy. RETWEET to honor Mueller’s life of service ❤️

Science around #MECFS is moving faster than ever before. Across the world, serious efforts are accelerating to understand its biology, improve diagnosis, and open paths toward treatment. Please do not lose hope. Real progress is coming, and the future holds promise. #HopeForMECFS

Long COVID can affect every system in the body, and every part of life. Explore resources from @HHSGov to better understand symptoms, care, and research: hhs.gov/longcovid/inde… We’re sharing Long COVID resources all week for #LongCOVIDAwareness

Pope Leo called it a “moral imperative” that people have access to the health services they need. huffpost.com/entry/pope-leo…

@sciencegirl Green

What’s missing

“Severe people may hold answers to Long COVID. They must be included in research.” Today is Long COVID Awareness Day, and severe Long COVID patients are still mostly excluded from studies. Here is the article I wrote for @TheSickTimes thesicktimes.org/2026/01/13/sev…

Third: Fund the NIH ME/CFS Research Roadmap with $50M. Congress directed NIH to develop it. FY27 is the moment to fund it and finally move from planning to action on biomarkers, diagnostics, and trials.

Second: Keep ME/CFS in the DoD Peer Reviewed Medical Research Program at CDMRP. It has funded innovative clinical trials targeting brain fog. Continued access to the fund is essential.

First: CDC CFS Program: $15.4 million. Funding has been frozen at $5.4M since 1996 while the number of people with ME/CFS continues to increase. This program is the only federal budget line item dedicated to ME/CFS epidemiological surveillance and provider education.

Reverend Jesse Jackson called on each of us to be heralds of change, to be messengers of hope; to step forward and say “Send me” wherever we have a chance to make an impact. How fortunate we were that Jesse Jackson answered that call. What a great debt we owe to him.

A symptom list doesn’t always show severity. Our Good Day / Bad Day Questionnaire helps patients communicate real-world function in #MECFS & #LongCOVID. 🔗bit.ly/3n9foLx Educational material by #MERC in collaboration with @OpenMedF.

Through our ongoing partnership with @EmergeAus, self-paced modules on PEM, pacing, orthostatic intolerance & sleep remain available for those living with ME/CFS & Long COVID. Accessible. Practical. Built with lived experience + clinical insight. 🔗 emerge.org.au/lea-ea-bhc/

An important step for #ChronicIllness care. Great advocacy by @MEActNet, among others. Congress tells NIH to Implement #MECFS Roadmap! mailchi.mp/meaction/congr…

@DisavowTrump20 @amyklobuchar But I want her to run for POTUS!

RETWEET if you are proud to support Amy Klobuchar for Governor of Minnesota!

@vkhosla But is it true?

Impressive

We remember Dr. King as a movement leader and a martyr. But he taught us to see and center the humanity of every person. Today, let's remember his. A loving husband, father, son, and brother. A pastor and a friend.

Let us honor Dr. Martin Luther King Jr.’s legacy by choosing love and light over division and hate; carry his dream forward and keep marching toward a more perfect union.

After @healingfromlc developed severe insomnia following contrast exposure, I created a survey on contrast reactions in LC patients. The paper is ready but needs an IRB exemption, which costs $1,000–$1,500 unless an institution can help. Please share to reach LC researchers. 🙏🏻

@CBSNews I'll believe it when I see it

President Trump on Thursday announced the "The Great Healthcare Plan," his long-awaited health care proposal, and asked Congress to act. cbsn.ws/45fTUDf