International Long Covid Awareness

Help turn awareness into action! Every month for the rest of 2026, ILCA will donate $30 USD to one #LongCovid mutual aid request. Everyone can help by sharing this thread! See comments to submit a Long Covid mutual aid request. #LongCovidAwareness #LongCovidAidBot

Love seeing more people connecting the dots and realizing they were lied to about Covid. It’s never too late to mask again in shared air. Even just masking on mass transit and running errands can make a huge difference 😉🫶🏽😷

Une récente étude de cohorte japonaise (6 M pers, sur 2A) montre une ↗️ durable des troubles du rythme après COVID, jusqu’à nécessiter + de pacemakers, défibrillateurs & autres interventions. Pourtant, le terme #CovidLong est quasi absent de l’article, onlinelibrary.wiley.com/doi/full/10.10…

I had my worst 6 week stretch since 2022. I don't talk about my health a lot but this illness is traumatic and I don't know how to convey it, in a way that someone who hasn't experienced this can understand. I wish people understood but I understand why they don't.

Let’s promote #WorldMaskWeek to show our collective global solidarity! 🌏😷 Share your masked selfies to encourage the world to protect one another and support public health. We make change together! 🆔: @MsJulieSLam with @DrewEmpire718, @Bduff9 and others at a @PosDevNYC event.

I haven't been ok. Another beautiful soul lost to this bullshit of an illness. I'm so angry yet numb. Sorry for the pictures, I can't fit my post here, don't have energy to do multiple posts. **RIP PAOLA** love you always warrior🖤🤘 #LongCovid #UniteToFight #NotOneMore

My (too many) friends who contracted HIV did not die of AIDS in the first five years after infection. They died later and due to different issues: Pneumocystis Pneumonia, Kaposi's Sarcoma, Lymphomas, and more. Many #LongCovid patients are in year six post-infection. Do with that as you will.

“My partner is immunocompromised. I want to participate in life and events as much as we can without endangering them. I’ve met a lot of people through masked events that I never would have connected with if I hadn’t made that choice."—Alex, int. by @MsJulieSLam w. @makeascenemn

@aw888ke @CatchTheBaby Many with Long Covid were sick before vaccines were ever available (2019/2020), some of those people never recieved any COVID vaccine and are still sick with Long Covid

@CatchTheBaby Is anyone with "long COVID" unvaccinated?

Long COVID brain fog has a structural cause. Stony Brook found white matter damage in neurological #LongCOVID patients still visible 2.7 years post-infection. buff.ly/lBAdVAP This is not anxiety. It is measurable brain injury.

This is Dr. Wu Lien-teh, born in 1879. - Qing court to him: "find out why everyone is dying" - Him: "It's airborne". *invents respirator in 1910* - Western Dr Gérald Mesny to him: "airborne transmission is fake", *immediately dies* *2026: discourse unchanged*

From this date six years ago. This many still die from covid per year in the US but I guess it isn't an incalculable loss now.

‼️"COVID-19 leaves lasting, dangerous damage to the heart’s electrical system that substantially drives up the need for pacemakers, defibrillators, and other invasive arrhythmia treatments for at least two years, even after mild infections. "

The WHO and CDC have absolutely no one to blame but themselves if that happens. Spent the last 4 years stigmatizing disease control, encouraged ppl to maximize disease spread, forced return to offices, cut disease monitoring budgets, reduced PPE, didn’t clean the air

🚨Long COVID continues to severely impair quality of life, daily functioning, and well-being among (Thai) university students. Anybody surprised? 🙄 This study finally gives us evidence on the impact in a university population, a group that’s often ignored in Long COVID research! mdpi.com/3898202

📢ACTION ! 🌍😷 Du 25 au 31 mai 2026 aura lieu la #WorldMaskWeek, une mobilisation internationale autour du port du masque, de la prévention et de la solidarité collective. #ActionCovidLong #CovidLong #LongCovid #SantePublique

Imagine you breathed in a novel virus six plus years ago and it made you horrifically ill and you never recovered. In fact, over time, new and terrifying impacts emerged. Imagine experiencing your own decline, watching others experience the same, and having a friend die because of that novel virus. Now, imagine not being believed about any of it. Imagine being lied about, lied to, and abandoned. Imagine how frustrated you would feel, how you would come to understand that you had no agency because it had been taken away. Stolen, in fact. Sounds bad, right? Stay with me. Because there is more. /1

N95 masks/respirators should be the standard in all healthcare settings.

Ne laissons pas dire n'importe quoi sur le #CovidLong, (et ses thérapies supposées !).

To people in the LC world, are there any studies that look at bone fracture abnormalities? Thank you in advance 🙏🏽🩵

Multi-omics analysis of long COVID (post-COVID-19 condition) reveals persistent mitochondrial dysfunction, suppressed oxidative phosphorylation, and immune dysregulation 🚨IMPORTANT INTERNATIONAL STUDY with strong mechanistic evidence: LONGC0VID is ONE core syndrome wearing different masks! ➡️Study Design: Multi-omics (transcriptomics, proteomics, metabolomics) integrated across Syrian hamster models and human cohorts, analysing tissues from acute SARS-CoV-2 infection through 12 months post-infection. ➡️Core Finding: - Persistent mitochondrial dysfunction is a dominant, conserved signature in Post-COVID Syndrome (PCS/long-COVID), - This includes sustained suppression of oxidative phosphorylation (OXPHOS), mitochondrial stress responses, and concurrent inflammatory pathway activation across species and tissues, ➡️Tissue-Specific Effects: - Skeletal muscle shows the strongest and most prolonged OXPHOS repression, directly linking to fatigue phenotypes, - Heart and kidney maintain OXPHOS suppression: lung exhibits prolonged inflammation with partial metabolic recovery, - Brain shows persistent cortical mitochondrial repression, with partial recovery in sensory regions, ➡️Human Data: - PBMC transcriptomes reveal sustained OXPHOS downregulation up to 12 months post-infection, independent of PCS status, - Serum proteomics in PCS patients specifically shows unresolved oxidative stress and immune activation compared to recovered controls, ➡️Interpretation: - Bioenergetic failure (mitochondrial repression) drives chronic immune dysregulation, creating a self-reinforcing cycle in PCS, - Human long-COVID is more heterogeneous than the hamster model, and mitochondrial dysfunction is likely central but not the only factor in every single case(!?) ‼️So, Long-COVID is not a vague or ill-defined post-viral syndrome. It is a single, systemic biological entity, a persistent disorder of mitochondrial failure and immune dysregulation that fails to resolve in many patients even one year after infection. ➡️LC= BIOENERGETIC COLLAPSE! This paper demonstrates that it operates as one core syndrome with distinct tissue-driven subtypes: the same underlying bioenergetic collapse and chronic inflammation manifest differently depending on which organs are most affected (muscle → fatigue, brain → cognitive issues, heart/lung/kidney → their respective symptoms). It is not dozens of unrelated conditions. It is ONE disease wearing different masks, as I've been defending for long! This has of course profound implications: it shifts diagnosis, research, and treatment away from chasing scattered symptoms toward unified therapies that target the common mitochondrial root cause. The BIOENERGETIC COLLAPSE is likely the central driver of debilitating fatigue and multi-organ dysfunction, and it demands immediate, focused therapeutic intervention!! Eagerly awaiting further confirmation! #AvoidSars2 #AvoidReinfections frontiersin.org/journals/immun…

Did you know the day a person has a heart attack is one of most likely times for them to successfully quit smoking? If we didn’t take advantage of a cardiac event as a ‘teachable moment’ to counsel patients re: harms of tobacco use and offer tools to stop smoking, it would be a dereliction of duty. Yet, “Long COVID clinics” will happily run patients through a gauntlet of testing and expensive symptom-management protocols while ignoring the catalyst of the injury. They are thoroughly (and masklessly) documenting systemic damage while completely disregarding the possibility of reinfection and clinical decline. You cannot successfully manage a disease if you refuse to acknowledge and mitigate the exact triggers that caused or exacerbated it. When will SARS-CoV-2 reinfection prevention strategies become standard of care? Or, are we going to keep pretending that the trigger no longer matters once chronic illness has set in?💕