International Long Covid Awareness

Thank you to every person who contributed efforts to International Long Covid Awareness Day! #LongCovid #LongCovidAwareness #LongCovidAwarenessDay

On March 15, as a member and event co-coordinator with @CanCovSoc , I was interviewed at our Long COVID Awareness Day event Queen's Park in Toronto — covered by @CBCNews. Six years sick. Formerly a teacher. Largely housebound. This is what Long COVID looks like. 2 million Canadians are living this. We need research, funding, and a cure immediately. 🩵 #ILCAD2026 #LongCOVIDAwareness

New text story "I was Fighting for Animal Liberation. Until My Own Freedom was Destroyed." now available. longcovidland.com/i-was-fighting/ #LongCovidAwarenessMonth #LongCovidHeartbeats

Musicians Still Advocating for Masks at Shows 😷 Jensen McRae, Deerhoof and Car Seat Headrest are among the artists requesting fans wear N95-style respirators Will Toledo: "I don't want a CSH show to be the last experience a fan has becoming disabled." exclaim.ca/music/article/…

Walking around maskless during an ongoing airborne pandemic.

I wear a mask because I have Long Covid, so any infection can make me much sicker or even kill me. Nearly 50% of Covid infections are asymptomatic & I don't want to infect loved ones or anyone else. #LongCovidAwareness

There are many more sick people & less healthy healthcare workers in an already pre-pandemic stressed system. This is unsustainable! SARS-CoV-2 & those with #LongCOVID need mitigation, tests, trials, & treatments now! #LongCovidAwareness #ILCA #pwLC #LongCovidHeartBeats

Overview and Pathophysiology of Long COVID 🚨200–400 MILLION people worldwide are crippled by Long COVID. That's not a 'mild' virus aftermath, it's multi-organ destruction that persists for years. Wake up. #LongC0vid ➡️Authored by @elisaperego78 , a Long COVID patient-researcher and advocate (with lived experience of chronic illness), it brings authenticity and depth rarely found in traditional academic reviews, blending rigorous synthesis with real-world urgency.💪👏 ➡️Summary: 1. Long COVID affects an estimated 200–409 million people globally, with pooled prevalence around 36% across studies. Risks persist across all ages, even in mild/asymptomatic or vaccinated/Omicron cases, though attenuated by vaccination, 2. It is a heterogeneous, multi-system condition involving dozens of symptoms (e.g, fatigue, brain fog, dyspnea, pain) that evolve over time, often relapsing, with potential for subclinical damage, disability, and increased mortality, 3. Major pathophysiological mechanisms include viral persistence in tissues, immune dysregulation (e.g, lymphopenia, T-cell exhaustion, autoantibodies, complement issues, mast cell activation), autoimmunity, endothelial dysfunction, micro/macro-thrombosis (including fibrinolysis-resistant microclots), chronic inflammation, microbiome dysbiosis, and reactivation of latent pathogens, 4. Organ-specific involvement is widespread: cardiovascular/endothelial (e.g, vasculopathy, accelerated aging, perfusion defects), heart (myocarditis, arrhythmias, ischemia), lungs (fibrosis, thrombosis, perfusion abnormalities), CNS (neuroinflammation, Gray matter loss, BBB disruption), PNS (neuropathy, dysautonomia/POTS-like), GI (dysbiosis, barrier impairment), hepatobiliary/pancreas (injury, new-onset diabetes), kidney (progression to CKD, thrombotic microangiopathy), 5. Evidence draws from imaging (e.g, CMR showing up to 78% cardiac involvement post-mild infection), histology/autopsy (viral presence, thrombi, NETs), and large meta-analyses (e.g, 97 million people showing elevated autoimmune disease risk), 6. Challenges include heterogeneous case definitions (WHO, NICE, etc.), limited biomarker access, surveillance gaps post-2022, and reinfection contributions. ➡️‼️In short, this isn't just another review, it's a patient-powered wake-up call exposing Long COVID as one of the most complex, widespread, and under-addressed biological crises of our era. ‼️So, Long COVID represents a profound, enduring public health crisis driven by persistent viral and immune-mediated multi-organ destruction, with no resolution in sight without urgent, scaled-up research and intervention. #WAKEUP #AvoidSars2 #AvoidReinfections

❓Le saviez-vous…? Un suivi médical est important chez les enfants présentant des symptômes cardiaques persistants après Covid. #CovidLong #CovidLongPediatrique

Thanks to community support during our family emergency, today was a grateful in-person return to Capitol Hill. As first #LongCOVID org to join Defense Health Research Consortium, @LCCampaign met w/key bipartisan Senate staff to request Long COVID CDMRP funding. #WeCarryEachOther

I wear a #mask because COVID-19 disabled me as a healthy firefighter/ paramedic at age 30. One infection took my entire future away. Six years later, there is still approved no treatment or cure for Long COVID. Now, my immune system struggles to handle all challenges, which can be deadly. The only way to #preventLongCOVID is to #preventCOVID-19 infection. #LongCOVIDAwareness

My new research is out "Overview and Pathophysiology of Long Covid" I provide an updated overview of key concepts, terminology and epidemiology of LC. I also offer an analysis of key mechanisms of pathology and multi-organ involvement in #LongCovid mdpi.com/2673-8112/6/3/…

For #LongCOVIDAwareness Month, I wanted to share what living with #LongCOVID means...My body won’t listen to me. I carefully triage each activity. How much will it cost me? I grieve my old life and miss my kids, friends, and family terribly.

"My Covid Experience" longcovidland.com/a-former-nurse… #LongCovidAwarenessMonth #LongCovidHeartbeats

"Dara's Health Journey" longcovidland.com/daras-health-j… #LongCovidAwarenessMonth #LongCovidHeartbeats

🧵 Today the #LongCovid groups call for urgent action in response to the #CovidInquiry Module 3: Healthcare report which confirms widespread and ongoing failings. @LC_Physio Long Covid SOS Long Covid Support Long Covid Kids Longcovidsos.org/post/covidinqu…

So so so accurate. Actually, if 50% of the population were to mask then we would be able to get this until control.

Is anyone going to discuss what happened to our T and B cells thanks to Covid? Will this be what makes the medical profession wake up? This is not weird niche conspiracy theory stuff BTW.

@elisaperego78 @longcovidaragon @RadioUSAL Thank you for all the work you all are doing over there!!👏🏽👏🏻👏🏾 @longcovidaragon

@longcovidaragon @RadioUSAL @LCawarenessInt 🙏💙

¿ Cuánto hemos avanzado a 7 años de "aquello" que cambió nuestro mundo?. Entrevista a Delphine Crespo, de @longcovidaragon, al hilo de la recien creada federación Long Covid Rise Up. radio.usal.es/no-es-una-enfe…

You are not sick in 2026 because of a lockdown that happened in 2020.