LivedHealth

A little intro to me, and the @WorldPDCongress twitter take over. Let me know what you guys want to see and I'll do my best to keep posting the content you want! ❤️ @Dr_SF_Hussain @ParkinsonsUK

My heart is broken💔: As friends & family know, my wife was pregnant with our 2nd child, & about to begin her 2nd trimester. A few days ago she had severe pains, & bleeding, and had to go to the emergency room. There, it was discovered that our baby no longer had a heartbeat. Devastated doesn't come close to what that feels like. Unfortunately for people like us, because of the current laws in the state of Texas, that was only the beginning of this nightmare. Jess (my wife) had an "incomplete miscarriage", and what needed to happen, what was best for HER, and her health, was to terminate the pregnancy, and get the baby out. The doctor gave her a medication that would move this process along, and sent her home. Where, apparently we would be handling it ourselves. We were told it might take a couple of attempts before it worked. I'll let you decide how you feel about that. After a long, painful night of the equivalent of early labor, the baby was still with her. So, we went back to the Emergency Center to get the 2nd dose. A new doctor was on call. He was an older man. You could hear him in the hallway as he said, "I'm not giving her a pill so she can go home and have an ab*rtion!". Being well aware that our baby no longer had a heartbeat. Then, he came into the room to say, and I quote: "Considering the current stance. I'm not going to prescribe you this pill". Then, just sent us on our way. The "CURRENT STANCE"?! Did he really just say that?! No one should ever have to hear their wife say: "Get this dead baby out of me!". Can you even imagine how that must feel? The pain, and the bleeding continued. So, we decided to go to another hospital, about an hour away. There was a female doctor on call there, and we thought we might have better luck. I should probably mention, the procedure to get the baby out is called a D & C. It's scary, & traumatizing, but sometimes necessary in situations like ours. Especially in emergency circumstances. So we get to the next hospital. They take Jess in, ask her a bunch of questions, do a new scan... confirm that the baby is still there, with no heartbeat, and then disappear... for hours. Only to come back in and keep asking the same questions over and over. It's becoming clear that they're primary concern is NOT my wife's health. Instead, they seem to be worried about the legalities involved. So, they decide it is not "enough of an emergency" to perform the D & C. They do, however, prescribe another, stronger, final dose of the medication for us to try again... at home. So, we go home to try again. Another long day/night of early labor pains. Only to discover my wife UNCONSCIOUS in the bathroom. Having to pick my wife's cold, limp body off of that bathroom floor, not sure if I was about to lose her, is something I will NEVER forget. She had to be rushed to the hospital. By this point she had lost so much blood, and bodily fluid, her body gave out. They were able to stabilize her, give her the fluids she needed, and we came back home yesterday afternoon. We were also able to confirm that our baby was no longer with her. Now, not only do we have to live with the loss of our baby... we have to live with the nightmare of what we just experienced because of political and religious beliefs. MY WIFE'S HEALTH SHOULD HAVE COME FIRST. PERIOD! God knows what mental and emotional damage this has done. If you consider yourself a staunch "pro-lifer" ... 1) You've never been through what we just went through, and 2) You should take a long, hard look in the mirror and reevaluate your reasons for supporting such a cold, barbaric, ignorant point of view. It's not that black & white, and it's never going to be. If you think your "Pray To End Ab*rtion" sign in your yard is "Christian", I suggest you revisit the teachings of Jesus and try again. If you support these laws that make ab*rtion illegal, and result in people being put through what we just were, you should be ashamed of yourself. I've never been so angry, or heartbroken... and the devastation I'm feeling must pale in comparison to what my poor wife is feeling.

Last week I paid a plumber £250 for an hours work ... this trust would pay a consultant brain surgeon £80 for the same hour. WTAF??

I simply don't know how to use ×, formerly known as Twitter. Over on insta I shared a reel yesterday which has now had over 100K views. The same reel on Twitter not in double figures. I'm trying to raise awareness of #parkinsons. Any advice anyone?

@Ladybale @Dr_SF_Hussain Thank you Clare 🙂

@Dr_SF_Hussain @LivedHealth Great video Shafaq! 💙

Our next @LivedHealth video 🙂 #diagnosisstories youtu.be/UGUnPc-uDek

@purposeful_pd You're right, there probably is no time to sulk, but I'm glad you mentioned it here - because now we can all send you virtual hugs! 🙂

Curveballs. 5 yrs into marriage I was diagnosed with a degenerative neuro condition. Year 20, full-time care necessary - for my spouse, Never occurred to me that I would play both roles. Sucks but no time to sulk. Life has a 5-pitch repertoire, at least!

Vicky, @Dr_Shafaq_Hussain and Jodie discuss their takeaways from @WorldPDCongress From simple every-day solutions to ground-breaking technology, there's something for everyone 👉 buff.ly/3XXQ2C0 #Parkinsons #WPC #Research

Getting active is a great way to manage Parkinson's! What type of exercise do you like to do to keep your body moving? #LivedHealth #ParkinsonsAwareness #Parkinsons #ParkinsonsDisease #ParkinsonsResources #ExerciseRegime

Are chronic illness ‘influencers’ helpful or harmful? Let us know your thoughts ⬇️ Both Vicky and @Dr_SF_Hussain, who live with young onset #Parkinsons, chat about their experience of the online community in today's new video 👉 bit.ly/PDInfluencers_… #YOPD #SocialMedia

@studiosree I don't know why, but the idea of threadless tweets made me chuckle.

Tweeting and deleting is good medicine for my ADHD brain. Unfortunately responses to the tweets don’t disappear. Dare I say, they’re left out there, threadless.

The feedback from our viewers speaks for itself 🗣️ We'd like to thank the @axisfoundation for continuing to support our videos with their generous donation towards our latest series, smoldering #MS. Read more about their donation ➡️ buff.ly/43kGUbG

How could I leave out the night our NHS PD group got together? Most definitely one of my personal highlights 😊 @Dr_SF_Hussain @WorldPDCongress

I'm also going to share this video of the lovely @Thefitnessmum1 with @MattEagles - 2 lovely people!

@ShaimaaJafary @WorldPDCongress @Dr_SF_Hussain My pleasure 😊 it is honestly such a beautiful tribute to the strength of people with Parkinson's, I love it!

@LivedHealth @WorldPDCongress I like it too. Thank you for sharing @Dr_SF_Hussain

Hi, Shafaq here! You'll be glad to hear that my time doing LivedHealth's Twitter takeover is nearly at an end. I'm just going to share some of my fave moments from @WorldPDCongress youtu.be/DWGnqz3dFo0 Listened to this a few times and it still makes me cry!

Another one of my favourite moments @WorldPDCongress was @chinyererachel speaking of her experiences with PD in Africa. There is still so much stigma we MUST address: youtu.be/1tf3jNTvuUs

Portrait of @ohkathleenkiddo in her hospital room after spinal surgery. So glad you can walk and are no longer in pain from that, Heather. Much 💕 to you! #portraitphotography #fujix100f pic.twitter.com/OuZRLV7dD1

How do you find #MRI scans? This simple solution STOPS Britt's claustrophobia ⛔ If your medical team are aware of the obstacle, they can offer a solution. We don’t have to “suck it up”. Our bodies go through enough. #MS #MRI #Claustrophobia #Advocacy

Absolutely!

@AddisonClare @JYaldren @Thefitnessmum1 @predictPD We love you too ❤️

@LivedHealth @JYaldren @Thefitnessmum1 @predictPD Love all three of you xxx

The wonderful @Thefitnessmum1 + @JYaldren ❤️ Followed by slides from @predictPD 's lecture "Screening for PD risk". What do you think? Should we "screen" for conditions like PD?

Last plenary session @SoaniaMathur and comedy courtesy of Paul Mayhew Archer.