#MEActionNC

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#MEActionNC

#MEActionNC

@MEActionNC

#MEAction state chapter for North Carolina (NC). Support Mtgs 1st Wed each month 12:30p-1:30p ET.. https://t.co/EFd1uA8GxM

North Carolina, USA Katılım Nisan 2023
245 Takip Edilen123 Takipçiler
#MEActionNC
#MEActionNC@MEActionNC·
Next week we cohost a roundtable with Dr. Spiritos, a neurogastroenterologist with @RenegadeRes. Today they are hosting an X Space live for Long Covid in about an hour:
Renegade Research@RenegadeRes

Please join us for an X/Twitter Space Discussion for #LongCOVIDAwareness on March 17 at 4 pm ET US! In honor of Long Covid Awareness Day on March 15 We will be hosting a discussion to talk about Long COVID community thoughts, feelings, concerns, needs, research and care Link ⬇️

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#MEActionNC
#MEActionNC@MEActionNC·
Happening now! Long Covid Awareness and Advocacy topics. Help for figuring out easy ways to participate.
#MEActionNC@MEActionNC

#MEActionNC is restarting Advocacy mtgs. 1st is this Sun, Mar 15, 2026, at 11 AM-12 PM, EDT US. We will be discussing upcoming opportunities for action, big & small. We welcome all volunteers regardless of capacity. For deets, link, call in #: meaction.net/event-details/…

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#MEAction Network
#MEAction Network@MEActNet·
Help us welcome Therese Russo as our new Advocacy Manager. Therese will work with our state teams. She is a disability & chronic illness rights advocate, public health analyst, & community organizer with over a decade of experience in nonprofit and government administration.
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elly brosius
elly brosius@NovaSupport·
TODAY 📢: The Hypercoagulation / Microclotting / Blood Issues Research Roundtable 2 weeks from today 📣: The Gut-Brain Axis and Mast Cell Connection Clinical Roundtable. Sign up for one or both from the @RenegadeRes Events page: renegade-research.org/events-list
elly brosius tweet mediaelly brosius tweet media
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Hopkins ME/CFS & Related Disorder Program
Hopkins ME/CFS & Related Disorder Program@HopkinsMECFSC·
As we approach Long COVID Awareness Day (March 15), we need to talk about more than the illness—we need to talk about the system patients are navigating while sick. In our recent qualitative study (doi.org/10.1016/j.ssmq…), people living with Long COVID described a healthcare journey marked by siloed specialty care, poor communication between providers, long wait times, and major barriers to diagnosis. Many heard some version of: “That’s not my silo.” But Long COVID is a multisystem condition, and patients cannot divide their symptoms by specialty. When coordination fails, patients become their own care managers—tracking records, connecting doctors, scheduling visits, and advocating for themselves while living with fatigue, brain fog, and post-exertional worsening. Long COVID is exposing deeper structural gaps in how we care for multisystem chronic disease. Awareness must lead to better coordination, clearer pathways to care, and systems designed around patients—not silos. #LongCOVIDAwarenessDay #LongCOVID #PatientAdvocacy #HealthcareSystems #MECFS
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#MEActionMaryland
#MEActionMaryland@MEActMaryland·
Contact your Legislators! HB27 & SB392 Take action to help the #LongCovid Innovation Grant and Loan Program
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#MEActionNC@MEActionNC·
@MEActNet, please help us announce our return to advocacy meetings with a repost of above. Thanks.
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#MEActionNC
#MEActionNC@MEActionNC·
#MEActionNC is restarting Advocacy mtgs. 1st is this Sun, Mar 15, 2026, at 11 AM-12 PM, EDT US. We will be discussing upcoming opportunities for action, big & small. We welcome all volunteers regardless of capacity. For deets, link, call in #: meaction.net/event-details/…
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#MEAction Network
#MEAction Network@MEActNet·
Social media volunteers wanted! Apply here: meaction.net/volunteer 1. Moderators for our online support groups OR 2. Join our social media working group. We are incredibly grateful to our volunteers and for all the ways you step in to care for and grow this community! #pwME
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#MEAction Network
#MEAction Network@MEActNet·
ICYMI, #MECFS affects millions but is NOT part of standard clinical training. Advocacy Week (Mar 23–27), @PlzSolveCFS & @MEActnet will ask patient safety agencies to support our mission to introduce ME/CFS questions into qualifying national medical exams. ow.ly/Tqet50YoPG7
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Troy Roach
Troy Roach@Canal1point5·
If you have benefited from our resources and support, this is your chance to pay it forward. 📷 Link in the comments below:
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#MEActionNC@MEActionNC·
This is the one we are cohosting! Looking forward to it.
Renegade Research@RenegadeRes

We have another exciting Clinician’s Roundtable coming up on Friday, March 27 at 1 pm ET US: “When the Gut-Brain Axis Goes Wrong: Mast Cells, Histamine, and Practical Clinical Management” with neurogastroenterologist Zac Spiritos, MD, MPH x.com/RenegadeRes/st… You can register here: tinyurl.com/renres-03-27-2… This event is free and open to the public! Please share with clinicians, researchers, caregivers and patients It will be recorded and posted to our YouTube channel and then our website later on

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Renegade Research
Renegade Research@RenegadeRes·
We also recommend this podcast episode with Bendy Bodies by @BluesteinLinda, “Investigating Autoimmune Disorders with @CenterJill" to further understand hypercoaguability and other autoimmune issues found in Long Covid, MECFS, dysautonomia and mast cell disorder patients: youtube.com/watch?v=LbB8O0…
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@LCfamm @patientled @RenegadeRes @id_cure @autselfadvocacy @MEActNet @CFSnova @PlzSolveCFS