#MEAction Network

25.9K posts

#MEAction Network banner
#MEAction Network

#MEAction Network

@MEActNet

A global network fighting for equality for Myalgic Encephalomyelitis. #MEAction #MillionsMissing https://t.co/JhhNZoFYJi

Global Katılım Mayıs 2014
2.5K Takip Edilen19.3K Takipçiler
#MEAction Network retweetledi
Dr. Jennifer Curtin
Dr. Jennifer Curtin@jencurtinmd·
I’m so excited the #LongCOVID Treatment Guide is live! This was the result of over a year of work between @RTHM_health and @patientled’s incredible team! Thanks to everyone who reviewed and provided feedback on the guide! 🙏 We hope this helps the #IACC community!!
Patient-Led Research Collaborative@patientled

We're thrilled to release the #LongCovid Treatment Guide! This is a collaboration with @RTHM_Health to help patients & providers explore treatment options together. The guide focuses on 24 medications, but includes a few other interventions for breadth /1 rthm.com/treatmentguide

English
4
11
63
3.3K
#MEAction Network retweetledi
#MEActionMaryland
#MEActionMaryland@MEActMaryland·
Advocacy week looks different this year @PlzSolveCFS & @MEActNet partnered to work with the systems that shape what US medical providers learn If you can only attend one call, prioritize Mon, Mar 23rd 3pmEDT/12pmPDT If you can not make any, sign up for emailed action items
#MEAction Network@MEActNet

Advocacy Week 2026 starts on Monday - March 23rd! @PlzSolveCFS & @meactnet partnered to work with the systems that shape what medical providers in America learn! Register here: ow.ly/n9Nf50YvzGc Check out our NEW Participant Toolkit: ow.ly/68hT50YvzGb #pwME #MECFS

English
1
2
4
285
#MEAction Network
#MEAction Network@MEActNet·
@SharonC97936831 @autselfadvocacy From the National Coalition on Accessible Voting: "there is clear evidence that these policies would block people (who ARE legally eligible) from voting. These polices would conflict with protections under the Americans with Disabilities Act and the Voting Rights Act..."
English
1
0
1
47
#MEAction Network retweetledi
Melissa Mazur
Melissa Mazur@PhillyPhile215·
This message was requested on behalf of @LCCampaign Big shout out to @meighanstone and LCC for making this happen—and for ALL LCC does to advocate for #pwLC and related conditions 🙌 Donations to further the work of LCC can be made at longcovidcampaign.org
Melissa Mazur@PhillyPhile215

Philly Philly representin’ this weekend! 👏👏👏International LC Awareness Day (March 15th) scrolling atop the @PECOconnect building! Check it out, if you are local.

English
5
12
36
875
#MEAction Network retweetledi
Brooke Keaton
Brooke Keaton@SonoraSmile·
Today is #LongCovidAwarenessDay. It's a disgrace that it's been 6 years and we're no closer to a cure for #LongCOVID. It's been 62 months and 10 days since I stepped foot in my classroom. I miss my students (my babies) 😢. Today, I allow myself to grieve the old me.
Brooke Keaton tweet media
English
28
153
576
6.6K
#MEAction Network retweetledi
Darren Parkinson 🌍💚💙
Darren Parkinson 🌍💚💙@DarrenBar88·
Today is #LongCovidAwarenessDay Long Covid changed my life beyond recognition. I got ill. I never recovered. Lost my job. Became housebound. I rely on others to do things for me. I lie on my bed most of the day. Watch the Guardian's short film about my life with #LongCovid 👇
Darren Parkinson 🌍💚💙 tweet media
English
60
510
1.3K
32.4K
#MEAction Network retweetledi
charlos
charlos@loscharlos·
New from @latimes: “Yet new COVID infections are producing new #LongCovid patients. People who were healthy and active just a few months ago are still arriving at USC’s clinic with cardiovascular and cognitive problems that have upended their lives.”
charlos tweet media
English
45
567
1.5K
41.3K
#MEAction Network retweetledi
The Sick Times
The Sick Times@thesicktimes·
We're putting together an article summarizing advocacy and awareness efforts for #LongCOVID Awareness Day and Month 2026. Please share this form with advocates organizing events and actions! bit.ly/4sxqtpg
The Sick Times tweet media
English
3
22
44
3.1K
#MEAction Network retweetledi
Melissa Mazur
Melissa Mazur@PhillyPhile215·
Philly Philly representin’ this weekend! 👏👏👏International LC Awareness Day (March 15th) scrolling atop the @PECOconnect building! Check it out, if you are local.
English
24
103
306
32.6K

Keşfet

@LCfamm @patientled @RTHM_health @PlzSolveCFS @C19LH_Advocacy @LCawarenessInt @CovidSaferSF @SharonC97936831