CoolerKing
6.3K posts

CoolerKing
@MEcoolerking
2022 is year 25 of being 90-95% bedbound in a darkened room with ME. I finally accessed medical treatment for POTS in 2020, 22 years after becoming ill.








MPs discuss the failure of ICBs (integrated care boards) to implement NICE guideline recommendations Tessa Munt MP, chair of the All Party Parliamentary Group on ME, tabled an amendment to the government's health bill that is currently going through parliament. This amendment has now been withdrawn, but it was first debated by multiple MPs. The amendment would have required that a period must be set within which the NICE guideline on ME/CFS must be complied with by ICBs and other health bodies. Furthermore, it would have required that the Secretary of State must publish an annual statement on compliance with NICE guideline NG206 across the NHS in England. Read more about it: meassociation.org.uk/hzf4 #MECFS #pwME #MyalgicE #NICEGuideline

Food insecurity is widespread, severe and systemic for disabled people, evidence to inquiry concludes #FoodPoverty #RightToFoodCampaign #DisabilityPoverty disabilitynewsservice.com/food-insecurit…







@InclusionLondon, @Dis_PPL_Protest, @RachelCDailey_, @NeilForPoole, @RichardBurgon, @NadiaWhittomeMP, @ZackPolanski Please repost below; we only have until Thurs to submit opposition to PIP Review Call for Evidence re: PIP as gateway for all incapacity & disability benefits 👇






