CoolerKing

6.3K posts

CoolerKing

CoolerKing

@MEcoolerking

2022 is year 25 of being 90-95% bedbound in a darkened room with ME. I finally accessed medical treatment for POTS in 2020, 22 years after becoming ill.

Katılım Eylül 2021
148 Takip Edilen109 Takipçiler
CoolerKing retweetledi
Wayside Scribbles
Wayside Scribbles@waysidescribble·
– You see, if so many were indeed housebound, you’d expect to see them everywhere!
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Ben Claimant 💚 Join a Union
While the rightwing blame young 'snowflakes' for the rise in PIP claimants, the evidence shows it is: - cuts to public services - long waits for NHS treatment - decline in healthy life expectancy - soaring living costs All the things disability campaigners have said for years!
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Anil van der Zee ©
Anil van der Zee ©@AnilvanderZee·
Indrukwekkend verhaal van Etty die ziek werd toen ze 9 was en nu 72 is. Hoe het jarenlang een gevecht is geweest om serieus genomen te worden. nmcb.eu/stories/ettys-…
Anil van der Zee © tweet media
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Trussell
Trussell@TrussellUK·
🚨 BREAKING: The Timms Review is right to find that the process of claiming PIP can be ‘dehumanising’ and ‘soul destroying’. Sadly, this reflects the experiences of disabled people coming to food banks in our community every day. Disabled people are already three times more likely to face hunger, and 75% of people coming to food banks are disabled. PIP should be supporting disabled people to overcome the additional barriers they face, but right now, it’s creating more. People face unnecessary bureaucracy, delays, and incorrect decisions. Time and energy that could be spent on progressing life goals, including in employment, is instead spent fighting the system. But it doesn’t have to be this way. We have published six proposals that would make PIP more efficient and remove fear from the assessment process. A system that gets decisions right first time is also a more compassionate system that will protect disabled people from hardship and give them the security to get on with their lives.
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Congolesa Rice
Congolesa Rice@judeinlondon·
If they want to scrap PIP we could always go back to DLA and basing it on the medical opinions of the doctors who actually treat the claimant and not some DWP decision maker with an NVQ L3 in health & social care and 3 weeks job training
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The Deaf Tribe
The Deaf Tribe@TheDeafTribe·
I wonder if anyone has told you the full facts about PIP? First and foremost it is not a benefit connected with work in any way. They don't even ask about employment. The application form is 45 pages long. It is divided into 9 sections dealing with different aspects of the applicants life. Additional evidence is normally required in the form of supporting letters from doctors and social workers. It's not enough to just fill in the form, you have to PROVE your case legally. The vast majority of applicants are turned down in the first instance. This forces them to go to Appeal. Thewse Appeals are a legal procedure run by the Courts and Tribunals Service. These people may not have knowledge of your disability so you have to turn up and argue your case. The rules are so mplicated that there are specialist websites aimed at helping people with the extremely detailed appication. Essentially if you don't phrase your application in the right way you don't get a penny. It is in fact so complicated that your ordinary disabled person has no chance of getting it without specialist help. Here follows a couple of such sites for your perusal. Please note the sheer complexity of the rules and regulations. You have to really know your stuff to get this benefit. benefitsandwork.co.uk/personal-indep… pipps.co.uk
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Adam
Adam@ABrokenBattery·
ME “is as serious as AIDS, cancer, multiple sclerosis. You feel as ill as those people do, but neglected a lot by friends and family because they don’t realise how sick you really are.” ME patient Barbara Kell, BBC Look North 2012 #MECFS
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Disability Rights UK
Disability Rights UK@DisRightsUK·
“Disabled people are not just experiencing poverty – they are being systematically prevented from maintaining their health, and any cuts to financial support will be a catastrophe of health.” Dan White policy lead at @DisRightsUK and the DPCG.
Disability News Service@johnpringdns

Food insecurity is widespread, severe and systemic for disabled people, evidence to inquiry concludes #FoodPoverty #RightToFoodCampaign #DisabilityPoverty disabilitynewsservice.com/food-insecurit…

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Adam
Adam@ABrokenBattery·
“We don’t know how to cure many conditions, but that doesn’t mean that this condition [ME/CFS] doesn’t exist… we don’t know how to treat probably 90% of neurological conditions.” Dr Tarek Gaber, interview at the #MECFS Clinic in Wigan (2024).
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davidtuller
davidtuller@davidtuller1·
My post about the @WIRED story by @AlanLevinovitz clocked in at 3,000+ words--not quite half the length of the story itself. Sorry!!--I tried to keep it shorter, but there was just so much to say. And more likely to come. virology.ws/2026/06/09/tri…
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DPAC
DPAC@Dis_PPL_Protest·
#PIPReview The call for evidence for Timms PIP Review ends on Thursday 28th May at 11.59 pm You still have time to send a submission for the call for evidence
LurgeeLiz@LurgeeLife

@InclusionLondon, @Dis_PPL_Protest, @RachelCDailey_, @NeilForPoole, @RichardBurgon, @NadiaWhittomeMP, @ZackPolanski Please repost below; we only have until Thurs to submit opposition to PIP Review Call for Evidence re: PIP as gateway for all incapacity & disability benefits 👇

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davidtuller
davidtuller@davidtuller1·
We have been told categorically for years that function FND is exclusively a brain "software"/"brain network" problem. Those suggesting other biomedical pathways were charged as "dualistic." Now FND experts themselves kibosh the "software"-only theory: virology.ws/2026/05/20/tri…
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davidtuller
davidtuller@davidtuller1·
A recent paper made a categorical assertion about the cause of functional neurological symptoms. This definitive statement is unwarranted, given the state of the evidence. I have written to the journal asking for the sentence to be corrected: virology.ws/2026/05/25/tri…
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Adam
Adam@ABrokenBattery·
“The injustice of it, I couldn’t believe it” Former Team GB rower @oonagh_cousins talking about the #MECFS “scandal” where patients were told they were deconditioned & needed Graded Exercise & CBT It is the “opposite of what they needed” & that legacy still runs “super deep”
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