Martin
286 posts

Martin
@MartinMoltke
Severe ME/CFS sufferer - acquired mitochondrial disease
Katılım Temmuz 2025
514 Takip Edilen112 Takipçiler

@Asteroidplease1 Totally and w my prob is I cannot pace bc I’m bedridden mostly w severe ME/CFS, mitochondria dysfunction so makes it even more miserable to say the least…
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@MartinMoltke Trapped is a good word for it. Absolute desperation to escape the unending inhumane torture. Nothing distracts me in those times. I can’t read, watch tv, talk etc. Just pace, cry, scream and think of ending it all. You will get better. You will get over the med damage.
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@ESF12345678910 At the same time I don’t know I can survive….but if I’d have to increase the dose (if I found a Dr to agree) then prob months after that I’d need more and more and more..so this is the ultimate trapped dilemma
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@ESF12345678910 So if I could just stay on and be ok I def would my life if bad enough it actually helps still (for now) my muscle pain and brain energy and noise sensitivity…so yeah I don’t want to come off but I’m kinda forced to…
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@ESF12345678910 It’s bc my body started developing tolerance withdrawal symptoms within just 2 months so I realize for my body I won’t be one of the “lucky ones” who can just stay on a lower dose and have it work and not have to constantly up the dose. I’m so sick and it was helping w sx tho
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@worked_over Ty ❤️ I’m glad you’re making progress hope it continues:)
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@MartinMoltke How scary- I’m sorry 😞. I’m dealing with protracted withdrawal from Effexor and 10 months in. I am making progress finally.
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@Limessa_67 Ty I think I should but it’s hard to know many say don’t hold more than a month which it’s now been…mentally I feel like I’m tailspin. Even tho many other of the horrific symptoms weeks ago have settled
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@MartinMoltke Martin, can you continue holding or is it that not an option? You're not alone in this....💜
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@adic_9 @MelRoBuilds They seem serious and already got one approved for a diff disease. I think profit making enterprise might have more success than others? How many decades has it been for the academics trying and failing
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@adic_9 @MelRoBuilds Yes very good. Lots of familiar things showed up for them that are known
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This shit is so unfair sets up for horrible chronic diseases later in life and you had no control over it…
AstroScroll@astroscroll
New research shows that early life trauma can reshape how the brain processes pain, impulse control, and emotional reactions. The study found that trauma increases activity in a specific brain circuit that links memory and emotional regulation centers.
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@adic_9 @MelRoBuilds Yes this is prob the best shot for testing. Oxford Bio right?
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@MelRoBuilds Have you seen episwitch? Would pick up on the important changes
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