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Melissa Rose
17.2K posts
Melissa Rose
@MelRoBuilds
Rebuilding post extreme illness (lead poisoning, lyme, EBV, spine chaos). For my amusement; not for hire. Intake: @ChaosSnack
We Gonna Make It, Lets Go Baby Katılım Temmuz 2023
1.1K Takip Edilen6.3K Takipçiler
A single variant with 900+ related publications.
Lol. Lmao, even.
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@MelRoBuilds Have you seen episwitch? Would pick up on the important changes
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Wonder how much a genome changes post interventions
(Genome = record book. A changeable one.)
Imagine doing semi-frequent sequencing to watch what changes while doing significant metal detoxing
Remove lead, cadmium, and aluminum = future improved gene expressions?
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I willingly took on this patient panel. I signed up for this. I agreed to try to figure out the lost cases. This is my fault.
GIF
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Hate to put this idea in your head, @PGC1a_RB, but its late, and im planting seeds ⬆️
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Melissa Rose retweetledi
Think I’ve seen 4 patients the last two weeks with corticosteroid induced psychosis
Shts real
Milk 𖤓@TheRawSol
I went to the doctor asking for blood tests, as I’ve been experiencing some minor MCAS and histamine issues. She denied certain tests because she “didn’t think they were necessary,” prescribed me Prednisone, and sent me on my way. I said I didn’t want to be taking steroids and she ignored me, told me to just take it, and explained none of the side effects, which can potentially be very severe and long lasting. Absolutely insane. This was a great reminder of how important it is to take your health into your own hands and do your own research.
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@TropheeWyfe To be fair, "idiopathic" in reality means "i dont know what the hell its from" in medical terminology, so youre probably already a step ahead of every doc youve ever seen
Ever get your genome sequenced? Might be worth doing.
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@MelRoBuilds I have been diagnosed IH since 2012. I suspect it’s neurological so I especially love it when the docs lecture me good sleep hygiene habits. Like bro really
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At some point, we really gotta come up with replicable protocols for these patients with severe sleep apnea and demolished circadian rhythm that can work at scale
Some real messed up cases out there
Imagine suggesting magnesium to a multi-decade ambien abuser with non-24 🫠
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@niknackmac Can close mouth.
Cant French kiss. (No room)
Appologies for being ~descriptive~
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@MelRoBuilds When you say enlarged tongue, how big are you talking about?
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Horrific update:
Genetic abnormalities for lysosomal storage disorders have been found
I am speechless
Oh my actual god
Melissa Rose@MelRoBuilds
Oh hell... just realized... one of these non-24 OSA cases goes along with enlarged tongue and glucose abnormalities... Might actually be in weird gene abnormality territory No wonder nothing is working, and nobody has been able to treat it. Nobody looks for the weird stuff.
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Melissa Rose retweetledi
If you haven't done genetic testing to see MTHFR markers for yourself - high dose thiamine will very quickly tell you if you have issues supplying enough methyl donors for such a hungry substance (take TMG or creatine asap if you are experiencing pain in your traps/neck)
Melissa Rose@MelRoBuilds
Hate giving this answer, but its the truth: it depends Since high dose thiamine can act as a metabolic stimulant and manually induce higher metabolic function, it can bomb out all sorts of things. (Fire burn hotter = use more fuel) Genuinely, ive sometimes used it as a brute force diagnostic tool to find weaknesses Depends on whats gone wrong in the specific case Most people start with adding magnesiums and a b-multi on top of the thiamine. Doesn't mean those are required. It depends. With a lot of these elderly care cases, im lucky to get them to agree to a single pill, and therefore, im often not adding anything else due to patient fear of non-doc-prescribed-pills
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Melissa Rose retweetledi
60 mg instant release melatonin, again
And quoting this article, again, since some of you still don't seem to 'get' it, or ever will
Richard@PGC1a_RB
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@AproposCoco @PGC1a_RB 1) whole genome sequencing. Just did it, have not yet verified with active enzyme testing. (Urine, if I remember)
2) its complicated. (It's a spectrum. Does impact lifespan.)
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@MelRoBuilds @PGC1a_RB How did you test for this? Can you have a mild version of this?
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Hate giving this answer, but its the truth: it depends
Since high dose thiamine can act as a metabolic stimulant and manually induce higher metabolic function, it can bomb out all sorts of things. (Fire burn hotter = use more fuel)
Genuinely, ive sometimes used it as a brute force diagnostic tool to find weaknesses
Depends on whats gone wrong in the specific case
Most people start with adding magnesiums and a b-multi on top of the thiamine. Doesn't mean those are required. It depends.
With a lot of these elderly care cases, im lucky to get them to agree to a single pill, and therefore, im often not adding anything else due to patient fear of non-doc-prescribed-pills
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Melissa Rose retweetledi
Your vitamin and mineral status is a much more complicated function than “am I getting enough of this from my diet today per the RDA.”
Your hormones influence this, your toxic metals massively influence this because they antagonize and compete with the minerals directly, time influences this because subtle imbalances compound over time, interactions between the minerals influences this, and so on.
This rabbit hole will be the most important to understand as we move into the 2030s.
Fez☯️🐸@Zenfrog4
Every essential vitamin and mineral is worth studying in depth to understand the intricate roles each plays throughout the body at the cellular and biochemical levels. And then how they interact with one another and how heavy metals can interfere with their absorption and function.
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@MelRoBuilds @ChrisGoals Do ppl taking this need to supplement anything else to balance it? (have heard potassium is an issue with b1 injections, but maybe not for sublingual?)
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Update:
The second Parkinson's patient is already seeing improved balance at her occupational therapy sessions. She and husband are thrilled.
B1 (thiamine) adventures continue 🫡
Melissa Rose@MelRoBuilds
Im apparently an MLM for local Parkinson's patients now. The luncheon went well, and she immediately wanted to set up another luncheon with two more church Parkinson's ladies Everybody is getting a book and a B1 bottle to start experimenting. Heal thyself.
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@selentelechia I hate to be a bug in your ear about the weird health stuff, but some of the hair color changes have to do with mineral changes 😅
GIF
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my hair is filling back in at the hairline except for some reason it's coming in white-blonde on one side so it just looks like I have a bald spot there
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Theres been so many questions already, and im ignoring all of them at the moment because
- its complex and the explanation aint gonna fit in a tweet
- you actually gotta read medical stuff (studies)
Ive convinced maybe a dozen of you to read a single study. If ive been lucky.
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Im gonna have to write an article on how to deal with these giant genome data sets as a patient, arent I 😅
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Maaan, how do I still not have a catch-all server rack set up. Data ~collections~ getting too extensive
The genome results pushing this all into absurd territory
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