adic

@viemccoy Good take

working on the frontier and having a baby on the way, I think a lot about this type of technology and how we might use it to raise our kid. my intuition is that it is really hard to know when you've crossed the line in terms of cybernetically augmenting parenting skills. I think the cyber-bassinet, which rocks your baby in response to crying, is basically fine. its like a thermostat. I think it would still be fine if gpt-5.4 were modulating some/all of its function. but there is something almost... holy? about the voice that a mother uses to soothe the baby. the cadence, the rhythm, the timbre - all of it combines to create an orchestra that the baby begins to associate with the center of its universe. but here, that same voice - or a close, probably convincing, facsimile - is being used to denote the absence of the mother. its being used to soothe the baby without the usual orchestra of sensations that the voice is typically associated with. its possible that this is fine, and you really can treat the voice as a thermostat. my intuition is that this particular implementation is risking something sacred, but that there is technology very close to it that we will try - and are excited to do so! it seems to me that we are opening up portals everywhere we look. little spirits are inhabiting boxes on every desk, and they are only going to get louder. but spirit itself is just substrate - what you are allowing in is incredibly contingent upon what you've summoned and why it has chosen to arrive. I would caution everyone to discriminate heavily which voices you allow in your chorus.

why is AI rad as an adjunct not standard of care everywhere? At the very least to have rads pay extra attention to possible subtle findings

@Pandora_Delaney @ramaboo are the interruptions actual awakenings you remember or could it be noise you’re extrapolating? Also ngl this happened to me a bunch in SF and turns out cities are just really loud and bright despite all my efforts to dampen

@ramaboo Most nights look like this (a bunch of interruptions) which is why I’m doing the testing

Sleep study report: -24+ wires/straps, many attached with this thick gel that gets in your hair -1 tech who watches you sleep on camera -they ask for consent to re-enter the room & adjust your wires -they further ask if you want to be woken up or if they can just go for it -you can go to the bathroom after being hooked up but you must ask permission This may all sound very sexy, but in fact I was half convinced they’d be able to read my thoughts given all the sensors, so I kept those in check

@sergeantsup Ldoctors that don’t let you do this are such a red flag

I recommend recording all your medical appointments, ideally using something like Otter, which uses AI to transcribe notes I don't end up referencing these recordings that much, but they are very useful when I need to check *exactly* what a provider said. use cases: 1. when they're explaining something complicated, I don't need to take great notes; I can just listen in the moment and listen again later 2. sometimes they make mistakes in their notes or in communications with the front desk 3. on the rare occasion when someone treats me poorly, it's useful to have it objectively documented

@Ken67547214 Can sometimes be seizure prodrome. Maybe record yourself to see if your eyes do anything weird / you’re blanking or jerking w/o noticing (can happen)

I've had seamless deja vu several times today. As in, I will hear someone or something repeat itself verbatim immediately, like a skipping record. Is this a brain problem?

@sytses @RuxandraTeslo cool, thank you for your service. I assume most of the large systems are Very contracted with epic, on what timeline do you think we could get adoption of better systems if at all

@adic_9 @RuxandraTeslo Epic seems determined to keep their systems closed. I started opencoreemr.com to create an open alternative.

Sid has created a list of 14 proposals to make the biotech industry more Patient First. But out of these, only 1, 2 and 6 have detailed policy proposals behind them. Anyone looking to work in biotech policy should look at credible paths to implementing the others!

@subversivepsych cool! Super glad this worked for you! May I ask who prescribed the triple therapy?

@adic_9 All the other things i did that helped ( I believe ) me gain remission from long Covid and ME - see pinned post

Weaning down on my (prescribed) blood thinners for microclots . Need to keep some for when I have a migraine … hmmm 🧐….this is NOT medical advice ,it’s just something I have noticed and can’t help wonder if it’s related to the pathogenesis of migraine. We know aspirin helps…

@MelRoBuilds :/ I really wish there was something I could do besides ask him to correct the 6 things he got egregiously wrong in my notes I really need prescription meds that I can’t get otherwise and they keep denying me while I get worse and the hope-letdown is so emotionally devastating:(

@adic_9 Jesus christ, id genuinely try to put this one on the "i will get him to cry during an audit" list, good god

Hate to be like this, but dr LLM has been significantly more useful than irl docs Technically, im an architect by training. I have no business doing anything medical. But here we are, finding solutions for rare and extreme cases (If youre under 125, this probably doesn't apply)

@MelRoBuilds Incidentally my iron deficiency is a chronic illness thing and the increase he noted happened w/o any supplementation lolol

@MelRoBuilds 😭😭 im not joking i cannot believe this is the standard of care “Hormonal fluctuations make your symptoms worse, which you have extremely detailed documentation of? WHY NOT MAKE THAT WORSE WITH EXOGENOUS HORMONES”

@PneumaNeura I haven’t seen many in the US. I hear they’re better about this but I just don’t come across first gens basically ever.

@adic_9 I imagine they become just as liability averse once they're broken in to the US system, but it's been your experience that developing country immigrant doctors are just as prescription averse?

I am a compounding pharmacy

@PneumaNeura I have some pentoxyfylline which is like the next best thing and supposedly helps too but less of an active antiinflammatory

@PneumaNeura It’s an antiplatelet and PDE inhibitor and has adenosine effects (locally anti inflammatory) I have insane med sensitivity and I need it to WORK and not just cause side effects and not have block-rebound dynamics, it’s lower risk than anticoags but still good Ty for link

@PneumaNeura I’m SO FRUSTRATED at how hard it is to get prescriptions for meds here Supposedly much better on the east coast :/

@PneumaNeura It’s the best thing suited to my pathology by far and they don’t manufacture the brand name form anymore in my area for some reason ?? And the absorption variance for IR is 10x ?? ahhhhhh

@PneumaNeura Ur def a real mad scientist lol I too do all these things and it sucks so bad I want to make sure the things I’m doing work before making it broadly public bc no point if it fails right

oh my god! and here I was feeling sorry for myself having to be a "mad scientist" just because I have a milligram scale to titrate meds & supplements and b/c I'm always looking up pharmokinetics and half lives etc & because I have like 15 glass jars in my fridge shelf for all my med solutions doing the the whole dissolve in water draw out in syringe and hope for the best thing.. You with the microscope feels so endearingly tragico-comedic given our medical abandonment and that its it's so worth being chronicled via video or tiktock or something and being shared with the world.. goodness! 😭😭 big hug 🫂🫂

who knows what the actual absorption curve looks like but uh. FDA says it has to be within 40% of the brand name so I hope it workssss this sucks I hate having such high uncertainty bc doctors r so liability poisoned that v safe small molecules are “”too risky””

not having a doctor means extremely retarded hacks like “hmm if I taste this yellow powder and put it under a microscope I can find out if it was engineered w tartaric acid and hence probably legitimately ER and then take out the other drug and split it w my scale”