Miracle for Maddi

A BIG THANKYOU to @willianborges88 yesterday for giving Maddi your match shirt you made this girl so happy ⚽️💙@ChelseaFC @ConteBlueArmy

👀 Something BIG is coming to Billericay… ⚽ Celebrity Charity Football Match 💛 In support of Maddi 📍 Billericay Football Club 📅 11th July Stay tuned… 👇 #Billericay #CharityMatch #EssexEvent

@DCMS So sad to read this, after turning up yesterday to join the queue when it was closed told to go home. My daughter needed today to recover ready to attempt again tomorrow. Sure the queue was abused by non- disability #disabilityinclusion #raredisease @BBCNews

The accessible queue for Lying-in-State has reached full capacity and is now permanently closed Wristbands for all time slots are allocated so that as many people as possible can pay their respects Please do not join the queue at Tate Britain. Thank you for your understanding

@DCMS So disappointed to be told at 1.30pm today accessible queue was closed for my girl! Shes in her wheelchair unable to walk, with a very rare disease, what hope is there for disabled like my daughter, not been given a chance to be in the queue. #miracleformaddi #themaddifoundation

The accessible queue is paused and will resume at midday tomorrow All entry slots have been allocated up until this time, when more will be made available For everyone's comfort, please do not attempt to join the accessible queue before midday tomorrow

Working hard to build those muscles. Tough to do when you are a young girl from #essex fighting a #raredisease kiss my airs #MND #nike #rarediseasewarrior #ThorLoveAndThunder #spg15 #essexgirl @chrishemsworth @TheRock

Yesterday was #SYNGAP1 Awareness Day and I encourage all in the rare neurological space (doctors, researchers, families) to follow this community. They are doing an exceptional work at advancing science and treatments for #SYNGAP1. Give them a follow: @SyngapNetwork @cureSYNGAP1

Happy New Year to all our family, friends and supporters for Maddi helping to build a cure for SPG15 ❤️🥂🍾 Here’s hoping 22 will bring good health and true happiness for all of you. Love from Carina, Alex, Vicki and Harry at The Maddi Foundation xxx

WOW completing 5 Peaks in under 48 hours for Charity facebook.com/78700797147832…

#cambridge facebook.com/55811445101725…

💋💋 facebook.com/55811445101725…

Tomorrow on Good Morning Chelmsford @ChelmsfordCR , I speak to fundraiser Craig about his #FivePeaksChallenge in aid of @MaddiFoundation

We have loved all our volunteers & fundraisers who are still supporting us. 2020 has definitely tested us all. Wishing you all a HNY.. Let’s make 2021 a special year.. Lots of love from us ❤️❤️ (Maddi & sister Alex in picture) #mnd #fightingmnd #spg15 #happynewyear #charity

@BelTel Hi, I would appreciate if you could send a message to Andrew Patterson from your news article to ask if he could reach out to me at the Maddi Foundation. Maddi is my teenage daughter who was also diagnosed with a rare form of Herediatry Spastic Paraplegia.

Ex-Ireland cricketer Andrew Patterson left stunned after £32k raised for home lift belfasttelegraph.co.uk/news/northern-…

Great work @munkee74 if anyone would like to take part in this survey, it benefits many in our HSP community so would be great if HSP participants could take part. #HereditarySpasticParaplegia #curespg15 #rarediseaseawareness

Due to the nature of Maddi’s progressive disease it is essential that she exercises everyday, it’s her only treatment now to keep moving. Lately she has been falling over a lot so everyday my stomach is in knots every time I hear a thud. @MND_ALS @essexlive #genetherapy #spg15

Maddi here is wishing all our followers and friends a #happyfriday Thank you for your continued #support #mnd #spg15 #raredisease #essex #Savingmaddi #genetherapy

Happy Inspiration Wednesday 💫#hope #CareAboutRare #GlobalGenes

This #InternationalYouthDay we'd like to say thank you to all the #Charities working with #YoungPeople 👏

RT's appreciated @jamieoliver to raise awareness for Maddi @essexlive @SaffronWaldenRT @BBCEssex