M.E. Australia

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M.E. Australia

M.E. Australia

@MyalgicE

Championing change: advocacy, news and collaboration for people with Myalgic Encephalomyelitis and chronic fatigue syndrome #pwME #MyalgicE

Australia nationwide Katılım Şubat 2016
1.9K Takip Edilen1.8K Takipçiler
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Eileen 🔊
Eileen 🔊@TurnItUp4ME·
For International ME Awareness Month, I wish to shine a spotlight on M.E. Australia & Sasha @sashanimmo for their efforts in promoting the ME-IC Primer which educates medical professionals about expert diagnosis (ICC).🧑‍🔬 🩺🌡️🛌🌏📢
M.E. Australia@MyalgicE

The International Consensus Primer for Medical Practitioners is the gold standard for diagnosing #MyalgicEncephalomyelitis. A broad panel of tests (page 11) provides a more robust basis to identify symptom patterns, abnormalities & orient treatment.👇#ME meaustralia.net/wp-content/upl…

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M.E. Australia
M.E. Australia@MyalgicE·
“Graded exercise programs have been shown to be beneficial”. Not true. “Unwarranted concerns that any physical activity could be harmful may lead you maladaptive attitudes that increase disability”. These are guidelines used today in Australia. #pwme #MyalgicEncephalomyelitis
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Susan Fairlie Hall
Susan Fairlie Hall@FairlieHall·
@MyalgicE @ElizaCharley You are still able to sign the petition as it has been extended to the end of the Disability Royal Commission in December 2022
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Jacqz🇦🇺🇬🇧🇨🇾🇬🇷mewarriorau.bsky.social
Jacqz🇦🇺🇬🇧🇨🇾🇬🇷mewarriorau.bsky.social@MEwarrior_au·
#MEAwarenessDay is today, 12th May. For decades, this below has been the plight of people with #MyalgicEncephalomyelitis. It’s beyond time for change, especially with so much biomedical research showing many physiological abnormalities in #pwME. We need far more research funding!
M.E. Australia@MyalgicE

12th May is #MEAwarenessDay all across the globe. For decades #pwME have been neglected & suffered gaslighting by many doctors & others in the medical field, the community at large, friends & even family. These are the ‘Facts about #ME in Australia’.👇 meaustralia.net/wp-content/upl…

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Jacqz🇦🇺🇬🇧🇨🇾🇬🇷mewarriorau.bsky.social
Jacqz🇦🇺🇬🇧🇨🇾🇬🇷mewarriorau.bsky.social@MEwarrior_au·
2022, & this is still the situation in Australia. When will #pwME receive proper medical guidelines, care & treatment, especially from medical professionals? @TheRACP @RACGP @RACGPPresident @nhmrc @GregHuntMP
M.E. Australia@MyalgicE

12th May - #MEAwarenessDay @TheRACP #ME (#CFS) Medical Guidelines of 2002 are outdated. Recommended #GET is potentially harmful to #pwME, according to biomedical research,& the UK NICE Guidelines. Expectations for new clinical guidelines in Australia👇 meaustralia.net/wp-content/upl…

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M.E. Australia
M.E. Australia@MyalgicE·
12th May is International #ME Awareness Day. 👇 #MyalgicEncephalomyelitis is a disease that places a huge burden on up to 250,000 Australians & their families. There’s a dearth of meaningful biomedical research funding, & currently no treatment or cure. #understandingme" target="_blank" rel="nofollow noopener">meaustralia.net/what-is-me/#un…
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@sashanimmo @TurnItUp4ME @exceedhergrasp1 @thane_black @neurosqueak @MEAdvocatesIre @meadvocacy_org @meactionscot