Functional Seizures retweetledi
New online! Why functional neurological disorder is not feigning or malingering dlvr.it/SjWPJd
English
Functional Seizures
5.6K posts
Functional Seizures
@NEAD_UK
Tweeting about Non Epileptic Attack Disorder and functional (non epileptic) seizures. Part of FND Action. https://t.co/k080Jmv8Sh
United Kingdom Katılım Mart 2015
1.1K Takip Edilen1.6K Takipçiler
Functional Seizures retweetledi
‘Why FND is not Feigning or Malingering’ - our new @NatRevNeurol review and synthesis - with @M_Yogarajah and Mark Edwards nature.com/articles/s4158…. a thread… 1/
English
Functional Seizures retweetledi
We are thrilled to have Kim Hearne from @FNDAction present “Patient Perspectives” at our sold-out annual Functional Neurological Disorders ( #FND ) Masterclass on 2nd March.
English
Functional Seizures retweetledi
Functional Seizures retweetledi
Here's the interview I did on the GB news morning show with Angela Rippon. I discuss my #FND journey and the current desperate situation for FND patients. youtube.com/watch?v=8EMspX…
YouTube
English
Functional Seizures retweetledi
@FNDAction are recruiting for coordinator roles! Have you had experience running organisations or fundraising? Are you passionate about the FND cause? If so get in touch, details below!
English
Functional Seizures retweetledi
This will be such an excellent day. Please share with your networks. It would excellent to network with professionals with an interest in FND.
BPS DoN@DONBPS
There’s still time to book the study day on #FunctionalNeurologicalDisorder // bps.org.uk/event/update-f… // more importantly, a space to remember and celebrate the brilliant work of Dr Jason Price. Please share widely #FND
English
Functional Seizures retweetledi
Will someone listen to what we have to say?
@SkyNews @BBCNews @itvpresscentre @itvnews @GrahamLiver @BeyondRadio @lancstelegraph @GranadaReports @BBCNorthPR @guardiannews @MENnewsdesk @leponline @DailyMirror @FNDAction
#FND
#FNDTwitter
#Voices4FND
#FNDAction
English
Functional Seizures retweetledi
And now for something fun
A list of historical FND figures and whether they’d be on Twitter if they were alive today 🧵
English
Functional Seizures retweetledi
Here's my interview discussing my #FND journey with @skynews, also features @FNDHopeUK and my neurologist Prof Mark Edwards youtube.com/watch?v=65ZR3E…
YouTube
English
Functional Seizures retweetledi
'Most common condition you've never heard of': Campaigners demand new plan for FND treatment news.sky.com/story/most-com…
English
Functional Seizures retweetledi
Wow excellent sky news have put out a report on FND it's about time !! My neurologist Dr Mark Edwards also featured
Jaywick, England 🇬🇧 English
Functional Seizures retweetledi
Functional Seizures retweetledi
An excellent, richly cited thread on the mechanisms of #FND
I still hear people say these patients are just "faking" it, but this is just not true. It requires constant efforts at education to help change these perceptions in healthcare.
David L. Perez MD, MMSc, FAAN, FANPA@DavidLewisPerez
I think often about the TRANSLATION GAP - the ways that state-of-the-art brain science does not enter clinical discourse, practice, & education. MAJOR MISCONCEPTUALIZATIONS of Functional Neurological Disorder by PHYSICIANS point this out. #FND Brain Science: "The Basics". 1/20
English
Functional Seizures retweetledi
It's just 7 weeks until #FND Awareness Day in the UK!
In addition to encouraging the community to share their #Voices4FND and for everyone to support the cause, we're collaborating to focus on #YoungVoices4FND. More details will follow shortly #FNDUK #FNDAwarenessDayUK
English
Functional Seizures retweetledi
If You want to understand #FND there is no better guide than @fndportal highly recommend checking this out!
FND Portal - is no longer on X@FndPortal
I’m doing #scicomm on Instagram at the handle @FndPortal ! Join me there if this is your kind of thing 🤓
English
Functional Seizures retweetledi
I’m going to be on @SkyNews tomorrow morning talking about my #FND functional neurological disorder journey, they will also be talking to my neurologist Prof Mark Edwards @fndhopeuk @fndaction @fndlifewith @fndconnect @jonstoneneuro
English
Functional Seizures retweetledi
We are collecting information, and we are looking for young people (under the age of 18) who have #FND , can you like this post if you or someone you care for has FND.
Matthew - FND Action
#fnd
#fndaction
#youngpeople
#vocies4fnd
English
Functional Seizures retweetledi
Can anyone help Lexie with this question about treatment of visual snow/hallucinations in #FND?
@FndPortal @AlanCarson15 @PerezMGHLab @fndhope @FndRecovery @ConnectFnd @wesleytkerr @ZacharyGrinDPT @DrKentris @jonstoneneuro
Lexie@frogs_are_cool
@TomPlender @FNDHopeUK @FndPortal @FndRecovery This is incredibly helpful. I just read it to my FND kid and they said now it finally makes sense. One thing we are stuck on though - how do you get the brain back on track with symptoms of visual hallucinations, or visual snow?
English
Functional Seizures retweetledi
Thank you Prof Stone. I can’t imagine where we would be without your research, interviews and website. Your efforts and support mean so much. Deep respect and gratitude.
Jon Stone@jonstoneneuro
There are few greater professional errors than accusing a patient of faking when they’re suffering. But its still an effective safety blanket for ignorance. Those who change their view open up a horrifying realisation that they have been abusing patients for years
English