Meg

@AwesomeNewsom 🍊 drama queen in action. 🙄 It would be even funnier if he didn’t have the potential to do a lot of damage due to his temper tantrum.

YES DONALD, PLEASE DO A SERIOUS REVIEW OF THIS. I HEAR DEAD PEOPLE VOTED AFTER BEING REVIVED WITH A COVID VACCINE. THEIR BALLOTS WERE THEN BLOWN BY WINDMILLS INTO THE HANDS OF MEXICAN ANTIFA WHO PASSED THEM TO A TEAM OF TRANS PIGEONS WHO FLEW THEM TO THE BALLOT BOX. TRUE STORY.

@puigpauadvocate @JeffLubell_C19 You should read the study by Tulane university on the correlation between folate deficiency and Ehlers-Danlos syndrome. Since it impact us, we need to take methylated folate daily.

@PargsP @JeffLubell_C19 In the last KLK15 paper it mentioned that MTFHR pathological variants have the same prevalence in EDS patients as in the healthy population. Also MTFHR mutations are extremely common in the general population

Our paper found that people with generalized joint #hypermobility have a 23% higher risk of #LongCOVID while people with extreme hypermobility have a 76% higher risk of #LongCOVID. This thread focuses on possible explanations for the higher risk. 1/18

@dog_rates Same, Trigger buddy, same.

This is Trigger. The pool may be shallow. But his thoughts are deep. 12/10 (via u/hercules25)

@dog_rates I need a Wally and a grandma. 🥺

This is Wally. He's distraught because he had a fun time playing at grandma's house and has to go home. Tries not to play favorites, but grandma is definitely his. 13/10

@GavinNewsom Please tell me this isn’t real. I don’t want to go find out. I wouldn’t put anything past these hatred-fueled criminals.

Nothing to see here.

@JeffLubell_C19 Your research makes complete sense, but I have no idea if anyone will be willing to help us. I’ve been disabled for five years, but I have not met an MD who seems to care at all. How do we get doctors to learn, let alone to care about us? 3/3

@JeffLubell_C19 Tulane had just published the research study verifying the correlation. In online LC groups, I could see how many people seem to have both LC & hEDS. Every MD I’ve seen either does not believe in LC, doesn’t know about hEDS, or has zero interest. 2/3

@dog_rates I am, Percy. Keep the word ‘puddle’ in your back pocket. You’re gonna love them.

This is Percy. He's experiencing his first rainfall. Wants to know if you're seeing what he's seeing. 12/10

@btlsfan4 It is still active. It’s called the Washington University Post COVID-19 Clinic. You can make an appointment at 314–273–3300. I’m not sure what the criteria are to get into the program, they may have changed since I was accepted. physicians.wustl.edu/specialties/in…

@PargsP Is this clinic still active? I’m looking for one and I can drive to St. Louis

5/13 If you need me to RT something, post it in this thread. Please like, share, and donate if able 🙏 #MutualAid #Crowdfunding #ClearTheList #CatWeek #DisabilityTwitter #LongCovid #ChronicLoaf #SmallBiz #LGBTQIA NO HATERS, NO MAGA, USE ALT TXT, NO GRAPHIC PICS OR KIDS FACES!

@heyitsmorganmoe I am sorry you are in shock. I am sitting in my basement as I type this, due to tornado warning sirens. I can only imagine how this is adding to the stress of everyone who already suffered during the tornado 3 days ago. I sincerely hope you are safe.

@PargsP You make a fair point!!! It's a few days later and I'm still in shock. I live right off skinker and it's unreal.

Got my nails done. Looked outside and saw my first tornado. I then proceeded to have my first impromptu storm chase. #stlouistornado #wxtwitter #stlwx #mowx #tornado

@CRS1A071 @Beganovic2025 😢

@PargsP @Beganovic2025 Five

Forest Park golf course club house

@midwestern_ope @heyitsmorganmoe My thoughts are with you during this trying time.

Destruction from Monday’s storm across the Midwest We will rebuild

@arletta1967 @wxmann It did, and the report is that all the animals are safe.

@wxmann Did it hit the Zoo?

Tornado path in St. Louis can be seen through Google Maps traffic

@brentschmidt @wxmann I heard they are all just fine. I suspect the zoo staff got them all inside when the tornado watch forecast came out.

@froglet80 @LCinsomniac @healingfromlc Thank you. It’s definitely not our fault. I’m doing everything I can to get better, no matter what better looks like. I’ve been my own advocate fiercely, despite the incompetence & lack of concern by too many in the medical community. I’m grateful for this LC community of people.

@PargsP @LCinsomniac @healingfromlc This is directed to all in general - please know that none of these symptoms are your "fault," and do not blame yourself for "failing" if you do everything right and are still sick. That's actually the experience for the majority of us. You aren't alone.

@LCinsomniac @healingfromlc @froglet80 I appreciate being able to communicate with other people who understand our current reality. I’m sorry we are going through this.

@froglet80 @LCinsomniac @healingfromlc Not one single doctor has shown any interest in treating me with antivirals. It’s confounding. I also read that getting the shingles vaccine can greatly diminish many of the neurological symptoms we have.

@PargsP @LCinsomniac @healingfromlc I don't know if you and your doctor have considered off label antivirals to attempt to treat viral persistence, but many of us have found relief from a wide variety of symptoms that way.