International PCD Physio Network

One week to go until our webinar. Hot topics in PCD research for our super physio community. We're looking forward to seeing you! Tue 5th March 13:00-15:00 GMT Full details and register here 👇 tickettailor.com/events/interna…

Please share @PCD_UK @beatpcd @pcdcyprus @PCDFoundation @PCDAustralia @PCD_Scotland @TheACPRC @ErsPhysios

It's time to sign up for our webinar on current research projects. It's on Tue 5th March, 1-3pm GMT. Here's the all important link to sign up: tickettailor.com/events/interna…

@beatpcd @PCD_UK @PCDFoundation @pcdcyprus @PCD_Scotland @TheACPRC @ErsPhysios

Time to save a date in your new calendar...the next IPCDPN webinar will be on Tuesday 5th March 13:00-15:00 GMT focussing on hot research topics. Watch this space for more info!

We have published our updated position statement - 'Inhaler Switching: Making safe and clinically appropriate changes for patients with respiratory disease'. Read the statement, which details PCRS's position 🔗ow.ly/953050PRCbe

Abstract submission is now open for the World Bronchiectasis Conference being held in Scotland in 2024. Please join us! We have reserved a large number of slots on the program for spoken sessions abstracts, and awards for early career investigators #bronchiectasis @dundeeuni

Can you help raise awareness of PCD this month? Follow and retweet @PCD_UK

Hyperpolarised 129Xe MRI can be used to visualise changes following airway clearance.

Hyperpolarised 129 Xe MRI is feasible in pediatric PCD and looks at different disease aspects compared to FEV1

#ERS2023 may be over but we have one last flurry of posters from the final session still to share with you...inspiratory muscle strength is associated with 6MWT distance in PCD.

Night time cough frequency is higher in adults with CF than PCD, but higher in childre with PCD than those with CF.

Time to share a few more posters from ERS... E-cigarette use in young people with PCD is higher those with CF.

The genetics of haemophilus influenza in PCD.

Our @EuroRespSoc Clinical Research Collaboration Management meeting is under way in Milan at #ERSCongress Exciting plans for the next 3 years in every of the work packages. More info on our website: beat-pcd.squarespace.com/working-groups…

Genotype phenotype links in PCD

Seeking patient feedback is useful, here the team found out more education was needed, including about news and airway clearance.

A PCD packed poster session. 👊 Kicking off this thread, exercise in PCD. Higher activity associated with sputum clearance, more physio and feeling better but most people don't do enough.

A preview of the English adult pcd physiotherapy standards of care, recommendations here. More evidence is needed across all areas.

What outcomes should be reported in PCD studies? 👇 a consensus statement from @beatpcd

Lower FEV1 is associated with pseudomonas growth in PCD

Genotype phenotype links in PCD