PCD Scotland

@Mill_lab @beatpcd @PCD_UK @PCDFoundation @PCD_ispm @lunguk @BlfResearch @mrc_hgu Great, that’s fantastic to hear. We are looking to spread the word to patients all over Scotland and hear about their experiences. Excited to have your support! We will be in touch shortly. Thanks 😊

@PCD_Scotland @beatpcd @PCD_UK @PCDFoundation @PCD_ispm @lunguk @BlfResearch @Mill_lab

The most used face masks among people with PCD are certified single use masks or reusable fabric masks. More results from the #covid_pcd study on our website covid19pcd.ispm.ch/en/results/ #pcd #covid19 #raredisease

Congratulations go to our very own @pcdmum in being awarded a British Empire Medal for her tireless work for the PCD Family Support Group in the Queen’s New Year’s Honours list!🥳 More info: pcdsupport.org.uk/new-years-hono… #PCD @lunguk @EuropeanLung #PrimaryCiliaryDyskinesia #champion

A novel real-world validation of two tools (PICADAR and NA-CDCF) that use routinely collected clinical data and help triage the need for primary ciliary dyskinesia diagnostic testing is performed, showing both tools perform well with equivalent performance bit.ly/2YgzxlY

(4/4) #PCDAwarenessMonth #PCD #cilia #genetics #raredisease #lungdisease #inheritance #inherited #genes #PrimaryCiliaryDyskinesia #rare

(3/4) #PCDAwarenessMonth #PCD #cilia #genetics #raredisease #lungdisease #inheritance #inherited #genes #PrimaryCiliaryDyskinesia #rare

(2/4) #PCDAwarenessMonth #PCD #cilia #genetics #raredisease #lungdisease #inheritance #inherited #genes #PrimaryCiliaryDyskinesia #rare

Today's #PCDAwarenessMonth features genetics. How come non-PCD parents can have children with PCD? (1/4) #PCD #cilia #genetics #raredisease #lungdisease #inheritance #inherited #genes #PrimaryCiliaryDyskinesia #rare

🤩Virtual Open day, Sat 26th & 27th September🤩 @MRC_IGMM Powerful presentation on PCD will be included! ed.ac.uk/c/igmm-dod-2020 PCD Family Support Group UK MRC Institute of Genetics & Molecular Medicine @MRC_HGU #DODIGMM #DigiDoorsOpen #DODScot

Study update! 483 participants 🤩Getting closer to that 500 mark! Thank you to all who are taking part and continue to help us understand the effects of #covid19 on #PCD. Please join us if you haven't! #raredisease #research #lungdisease #primaryciiliarydyskinesia #community

Well done #PCD community, 👏😷👏 Your regular participation in the survey is providing important information, so please keep completing the short surveys. If you have #PCD and are not yet involved in this international project, it's easy to join in covid19pcd.ispm.ch/study-info/

👍🏻PCD Shielding update 22nd June 2020👍🏻 pcdsupport.org.uk/latest-update-… @PCD_Scotland @PCD_UK @lunguk

Have you participated? Click on the link to see results 🤓, how many people have participated from each country 🏴󠁧󠁢󠁳󠁣󠁴󠁿 and if you haven’t completed the questionnaire, there is a red ‘participate in the study’ tab! 🔴 @PCD_UK @PCD_Scotland @lunguk covid19pcd.ispm.ch/results/

PCDers we need you! Please complete this questionnaire to help us understand the impact of Covid-19 on people with PCD. The study is open to anyone with PCD around the world: covid19pcd.ispm.ch/?fbclid=IwAR3u… #pcd #covid19 #primaryciliarydyskinesia #survey #help

👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏 #clapforNHS #ClapForCarers 💙#NHS💙

Great idea! Make sure you keep up your exercise regimes! 🏃‍♀️🏋️‍♂️🚴‍♂️🤸‍♂️🧘‍♀️⚽️🥊