Phil Stewart 💙

Millions of people around the world with #MyalgicEncephalomyelitis are missing from life due to years of neglect, abuse, ignorance and arrogance from medical professionals and politicians. This mass oppression is a #HumanRights travesty. #MEAwarenessDay #WorldMEDay #ME #pwME

Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review - Sign the Petition! chng.it/tJBVCzLn via @UKChange

"Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review" 5,264 Signatures so far, next goal 7,500 Please sign & share ✍️🔄✍️ #MEcfs #pwME #LongCovid change.org/p/cochrane-wit…

@KatyBruce108 I'm not too bad thanks Katy. Just trying to navigate how many clients I can realistically see which isn't easy!

@PhilStewart23 Thank you Phil, it's all too much for us all 🙏 How are you?

When you have severe ME for decades all the numerous small loses inevitably add up & lead to the huge loses Not being able to get to the bathroom Not being able to sit up & have a conversation ++ ➡️Not being able to have children Not being able to have a career ++ #MEcfs

"NIH Researchers Find New Mitochondrial Abnormality in ME/CFS" 'There was no holding back on this study. It was a full-court press by some NHLBI researchers who have apparently become very interested in ME/CFS.' healthrising.org/blog/2023/08/1…

@KatyBruce108 @TomKindlon All the best Tom.

@TomKindlon wishing you a very Happy Birthday, I do hope today is as good as it possibly can be for you. Endless thanks to you as always for all that you continue to do for everyone with ME 💙✨🎂✨💙

#MedTwitter Educate yourselves about #MEcfs Patients in the🇬🇧with ME are dying due to medical ignorance & stigma Watch these films on ME dialogues-mecfs.co.uk/videos/ Take this free 1 hour CPD course on ME studyprn.com/p/chronic-fati… Follow the '21 @NICEComms guidelines for ME

For #SevereMEDay New free short module on severe #ME /CFS – ME/CFS Medical Education Campaign from Dr Nina Muirhead #MedTwitter #LongCovid mecfs-med-ed.org/2023/08/09/new…

@KatyBruce108 Thank you Katy. 🙏

@PhilStewart23 I've only just seen this Phil It's amazing to see you use what energy you do have helping others, I'm just so sorry you're so limited. ME is horribly cruel, wherever we fit in with the standard criteria.

Many times I get down living with #ME and it frustrates me being unable to work more hours in order to help more people. Then I remember that I don't have #severeME and I'm grateful being able to do a little bit rather than nothing at all. My heart goes out to you 💙 #SevereMEDay

@HealthHubris Thank you Jo. 🙏

@PhilStewart23 Congratulations Phil! 🥳🎉 And congrats again on your degree results & dissertation. I’m really sorry to hear it’s taken its toll on your health. I really hope you soon start to feel back to where you were before 🙏🏻

I had my graduation at the beginning of this month for my diploma and wanted to say a big thank you to all #pwME who helped me through with words of support and encouragement. Relapsed since. As much as I appreciate what I've done, it's definitely taken its toll. #ME #MECFS

On #severeMEDay I’m sharing a new blogpost looking at how UK social policy on #MECFS changed (for the worse) after academic intervention from some of the usual suspects. I believe this is a contributing factor to the current neglect and misinformation. healthcarehubris.com/post/who-is-lo…

#SevereMEDay It can be life threatening for severe ME patients to be exposed to uneducated and ignorant medical professionals in U.K. hospitals Some have died, others have come close to starving to death. ME can happen to anyone. It’s a tragedy and nothing is changing.

On Severe ME Understanding and Remembrance Day my thoughts are with all those suffering silently, chained to their beds, hiding in the shadows, waiting in vain for a better day that never arrives. #SevereMEDay #EndMEMalnutrition #MyalgicEncephalomyelitis

#SevereMEDay Before & after. And there are so many who are more severe than me, who can’t speak, can’t move at all. In the last 1.5 years being bedbound, I learned how much you can suffer and not die. I also learned that the sicker you are, the less people will believe you.

Wouldn’t it be wonderful if people outside of the ME bubble posted or reposted our efforts to raise awareness of this illness? ME can happen to anyone. Your children, your family, your friends. No one is exempt and then life as you know it is virtually over. #SevereMEDay

#SevereMEDay #MECFS #ME

#SevereMEAwarenessDay In this poem, I pay tribute to Alem Matthees, a brave Australian spirit who fought for truth and justice, even as his health deteriorated. His efforts to expose the flaws in the UK PACE Trial data led to improved health guidelines for ME/CFS in the UK,

Highlighting very #severeME #mecfs #seid for #severeMEawareness Lois Owen struggled to speak & eat & seemingly it had been felt she was too weak to cope with going in hospital. She succumbed to infection caused by malnourishment & died in 2007 meassociation.org.uk/2012/02/tragic…

@tweetingmole 🙄

Feeling deflated a close family member just sent me this saying they are supposed to help with #mecfs I thought those closest to me would know this is more woo woo stuff - cures everything it seems. Sick of it . Cures Ear Seeds UK, Acupressure Acu Seeds acuseeds.co.uk