Plasma Users

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Plasma Users

Plasma Users

@PlasmaUsers

Platform of Plasma Protein Users, a coalition of organisations of patients with rare plasma-related disorders whose lives rely on plasma proteins products.

Katılım Eylül 2020
45 Takip Edilen113 Takipçiler
Plasma Users
Plasma Users@PlasmaUsers·
The annual PLUS conference concludes after two highly productive days of discussions. Our sincere gratitude goes to all participants for their valuable contributions toward improving access to plasma-derived medicinal products for patients in need. #PLUSConference #Plasma
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IPOPI
IPOPI@ipopi_info·
🌍 International Plasma Awareness Week is almost here, and we're excited to unveil something special! Join us on an inspiring journey to discover how plasma becomes life-saving medicines like immunoglobulins for patients with immunodeficiencies. 📅 Stay tuned for the release of our brand-new mini-docs on our Youtube channel! #PlasmaSavesLives #BeADonor #Immunoglobulins #LifeSavingMedicine #IPAW2024 #TogetherWeAreStronger #IPOPI
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IPOPI
IPOPI@ipopi_info·
IPOPI welcomes the adoption of the EU Regulation on Substances of Human Origin. We look forward to working with Member States and other stakeholders to ensure that the ultimate objective of meeting patients’ need for life saving plasma-derived medicines, such as immunoglobulin therapies, is met. 👉 Read more: lnkd.in/dgFKu4Xp #IPOPI #SoHORegulation #EURegulation #PublicHealth #EU #Brussels
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Johan Prevot
Johan Prevot@JohanPrevot·
The successful implementation of the #sohoregulation will be key to optimise patient access to #PDMPs. IPOPI believes that national plans geared at boosting #plasma collection through #plasmapheresis programmes & embracing a public-private approach for plasma collection are key!
IPOPI@ipopi_info

IPOPI is at the SoHO CONFERENCE in Brussels, advocating for a robust EU framework that will allow for patients with #PIDs to have an increased access to safe and efficacious #immunoglobulins. We look forward to the discussions to ensure that patients have access to the live-saving therapies they need. #IPOPI #SoHO2024 #EURegulation #PublicHealth #EU #Brussels

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Plasma Users
Plasma Users@PlasmaUsers·
Ending two amazing days at PLUS Stakeholders Consensus Conference. Big thanks to all the participants for diving into important talks on plasma-derived medicinal products, addressing the needs of patients. #PlasmaDerivedMedicinalProducts #Immunoglobulins
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Plasma Users
Plasma Users@PlasmaUsers·
PLUS Stakeholders Consensus Conference in Estoril. A great opportunity for patient representatives dependent of on #plasma-derived medicinal products with industry representatives, plasma collectors and donors on key dossiers of relevance for patients. #PDMPs #PlusMeeting
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Johan Prevot
Johan Prevot@JohanPrevot·
Thank you Commissioner @SKyriakidesEU for listening to us. We totally agree with you that the EU must work on #newbornscreening. The efforts made so far with the @Screen4Rare ERNs workstreams with the Commission's support is a great basis to take this work to the next level!
Stella Kyriakides@SKyriakidesEU

It is essential for 🇪🇺 to work to ensure access to neonatal screening and new treatments for children born and living with rare diseases. Today I had the opportunity to discuss this with several associations and patient advocates. #HealthUnion

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Martine Pergent
Martine Pergent@martinepergent·
We hereby express our gratitude to plasma donors 🙏and hope that everyone 💛💡understands the deep need that patients, children and adults, have for plasma-derived medicinal products like #immunoglobulins #YouAreMyMedicine
IPOPI@ipopi_info

It's International Plasma Awareness Week! We're excited to kick off our campaign: #YouAreMyMedicine! ❤️‍🩹 Your story is crucial. If you're a patient relying on immunoglobulin, we invite YOU to share your experience and encourage new donors to sign up. 🩸 #IPAW2023

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Leire Solis
Leire Solis@LeireSolis·
#YouAreMyMedicine - a fantastic way of recognising the crucial role of donors for patients depending from #immunoglobulins Are you a patient with PIDs relying on #immunoglobulins? Join the global @ipopi_info campaign and share your story!
IPOPI@ipopi_info

It's International Plasma Awareness Week! We're excited to kick off our campaign: #YouAreMyMedicine! ❤️‍🩹 Your story is crucial. If you're a patient relying on immunoglobulin, we invite YOU to share your experience and encourage new donors to sign up. 🩸 #IPAW2023

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IPOPI
IPOPI@ipopi_info·
Patients with primary immunodeficiencies in the EU need a strong #SoHORegulation, guaranteeing sustained access to immunoglobulins and adapting to advancements in science and tech. 📣 Join us in emphasising this essential call for change during #IPAW2023!
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IPOPI
IPOPI@ipopi_info·
We stand together during #IPAW2023, advocating for patients with primary immunodeficiencies! Immunoglobulins are medicines derived from plasma. These therapies safeguard those with weakened immune systems, offering protection from serious illnesses - a lifeline for patients. 🫂
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Keşfet

@EHC_Haemophilia @ipopi_info @alpha1bel @gbscidp @PlasmaProteins @IPFAevents @EUBloodAlliance @wfhemophilia