Rare Dementia Support Impact Study

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Rare Dementia Support Impact Study

Rare Dementia Support Impact Study

@RDS_ImpactStudy

5-year research project investigating the impact of @RareDementia Support (RDS) group services for individuals living with, or affected by, rare dementias

UK (London & Wales), Canada Katılım Ocak 2019
189 Takip Edilen334 Takipçiler
Rare Dementia Support Impact Study retweetledi
Dr Emilie Brotherhood
Dr Emilie Brotherhood@embrotherhood·
Feasibility results from our @RDS_ImpactStudy - the online 💻 Better Living trial 💻 led by @Aida_Suarez_ and developed with supporters of people living with #PPA #PCA and #FTD 👇
Dr Aida Suarez-Gonzalez@Aida_Suarez_

We co-produced an online 💻educational programme for supporters of people living with: - #PCA - #bvFTD - #PPA Come check the results of our feasibility trial! 👉 Online Poster 75329 👈 #AAIC23 @RareDementia @AmberJohn715 @PaulCamic @DrMPSullivan @HoareZoe @embrotherhood

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The Times and The Sunday Times
The Times and The Sunday Times@thetimes·
The boss of the food chain Iceland will climb Everest to raise money for a new treatment centre for people suffering from rare early-onset dementia #Echobox=1677536285" target="_blank" rel="nofollow noopener">thetimes.co.uk/article/icelan…
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Eva Tait
Eva Tait@TaitEva·
Thank you @icelandrichard @KentonCool and @BearGrylls for everything you are doing to inspire and promote this incredible journey towards the summit of Everest and the world’s 1st @RareDementia Support Centre
Richard Walker@icelandrichard

From the man himself, thank you for your support @BearGrylls! If you want to find out more and support my expedition up Everest for @BrainAppeal, follow the link: justgiving.com/campaign/coolw…

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RareDementiaSupport
RareDementiaSupport@RareDementia·
Delighted to announce the launch of ‘Dementia and Hope’ from @Innov_Dementia for #onedementiavoice - a free resource setting out the collective vision of a group of dementia orgs inc. RDS ✨ featuring contributions from @drcionucl’s Prof Seb Crutch + @MillievdBW + Trish O’Hara
Innovations in Dementia@Innov_Dementia

Thread! 1) Today we launch an important new resource! 📢📢📢 A collaboration of 9 UK #dementia orgs "Dementia and Hope" bit.ly/3ZKA1Q3

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Dr Aida Suarez-Gonzalez
Dr Aida Suarez-Gonzalez@Aida_Suarez_·
Our @RDS_ImpactStudy clinical trial protocol is live. We are testing a blended (online+human) programme to support families of people living with: 🔸Posterior Cortical Atrophy 🔸Primary Progressive Aphasia 🔸behaviour variant FTD. Learn more about it 👇 clinicaltrials.gov/ct2/show/NCT05…
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Rare Dementia Support Impact Study
Rare Dementia Support Impact Study@RDS_ImpactStudy·
Check out our latest #protocolpaper led by @c_waddington + published in @JMIR_ this week 🤩 outlining #codesign, delivery + how we are evaluating the impact of videoconference-based @RareDementia Support group discussions @jmirpub @drcionucl @UCL_ECRs
Claire Waddington@c_waddington

Excited to share the recent @RDS_ImpactStudy protocol paper on the @RareDementia videoconferencing #supportgroups aiming to connect people affected by a rare #dementia #dementiaresearch researchprotocols.org/2022/7/e35376

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Young Dementia Network
Young Dementia Network@YoungDemNetwork·
As the theme of Dementia Awareness Week this year is diagnosis, we wanted to share this young onset #dementia diagnosis related fact with you. Let us know how long it took to get your diagnosis, or that of your family member.
Young Dementia Network tweet media
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Keşfet

@SamRossiHarries @RareDementia @Harrison_CR @DrMPSullivan @DrTGrillo @embrotherhood @CJHardy @celbaou