Roli Rastogi

Patient & parent @curesmaindia r livin d worst nightmare We hv been requestin 4 Govt intervention but r loosin precious live despite an approved therapy being available but not accessible. @SanjayAzadSln 🙏🏻 4 agreein to take our plea to @narendramodi @PMOIndia #BattleAgainstSMA

In April 2022, I got Covid and was hospitalised. When we claimed the insurance, the policy for the entire family was discontinued. Why? Because of my congenital disability. Here's what happened. A thread.

#myartwork on♿ #InternationalDisabilityDay "Right to live equal life" 🤗Let's join hands to build a more inclusive world- spread the word & commit to action. #battleagainstSMA #DisabilityInclusion #everylifematters #disabilityawareness @PMOIndia @myogiadityanath @narendramodi

UDID to ek padav tha asli lakshya to #Risdiplam hai for our #SMAwarriors ♿ #zindagi_kliye_medicine_bhi_zaruri_hai #BattleagainstSMA @narendramodi @myogiadityanath @sudh @mansukhmandviya @curesmaindia @PMOIndia @Saurabhmlaup @CmoVaranasi @IamNaveenKapoor @sunilojh @AmitShah

@RohitRastogi26 @narendramodi @myogiadityanath @sudh @mansukhmandviya @PMOIndia @Saurabhmlaup @CmoVaranasi @IamNaveenKapoor @AmitShah Thanku @CmoVaranasi Sh.Sandeep Chaudhary Ji 4 helping ur SMArtWarriors @RRastogi95 n Akshat make d UDID card vthout having 2visit civil hospital on ♿ 🙏. @RohitRastogi26 @narendramodi @PMOIndia @myogiadityanath @MSJEGOI @mansukhmandviya @MoHFW_INDIA @NITIAayog @DDUttarPradesh

#SMAawarenessMonth Day 17: We are proudly sharing today the scholarly article on "SMA Nutrition" by Dr. Sudeshna Maitra Nag, Chief Dietician, Peerless Hospital, Kolkata. Heartfelt gratitude to Sudeshna Ma'am for this enriching article 🙏. #BattleAgainstSMA #SMAckSMA

#SMAawarenessMonth Today's factsheet addresses the swallowing problems in #SMA - how they arise, how to evaluate & how to manage. Risk of aspiration can lead to lung infection which can be fatal in some cases. #BattleAgainstSMA #SMAckSMA

#SMAawarenessMonth Day 18: Today's #factsheet is on "Gastrointestinal dysfunctions in SMA". Gastric problems lead to serious complications and are the second most common cause of hospitalisation in SMA. #BattleAgainstSMA #SMAckSMA

#SMAawarenessMonth Day 19: Today's factsheet is on the three major determinants of quality of life in SMA : ability to breathe, swallow and move - how to assess and preserve them. #BattleAgainstSMA #SMAckSMA

#SMAawarenessMonth Day 20: Today's factsheet creates general awareness on rehabilitation. To maintain functionality and to prevent contractures, rehabilitation measures are important for #SMAwarriors . #BattleAgainstSMA #SMAckSMA

#SMAawarenessMonth Today's #SMArtWarrior (Type 3) is Mr Hardik Mewada , currently aged 30 battling the symptoms since 18 years of age. He shares about his rollercoaster life journey which he took control of with sheer will power and confidence. #BattleAgainstSMA #SMAckSMA

#SMAawarenessMonth Today's #factsheet is: "Why is physiotherapy important in SMA?" #SMA causes low muscle tone, muscle weakness, & muscle wasting which lead to progressive loss of muscle strength, mobility & function. Physiotherapy helps develop & maintain muscle strength!

#SMAawarenessMonth Day 22: Our factsheet today gives the evaluation and therapeutic approach in physical therapy for #SMA . It has been proved that early treatment and physical therapy has helped to delay the progression of disease. #BattleAgainstSMA #SMAckSMA

Sushant was never ever depressed. He didn't commit suicide. He was murdered by a huge conspiracy. Big sharks ate him up mentally. Give him & his fans justice. @DoPTGoI @ips_nupurprasad SSR Murdered By Conspiracy

Respected Sh.@anandmahindra ji👏 Save the innocent #SMA Children are in a lot of pain if children are not given medicines on time, their condition will become more serious, you are our hope. @curesmaindia medicine #Evrysdi risdiplam 🙏

Our sincere gratitude Honr’ble @vijaybaghelcg 🙏🏻 meetin wid @prashantsahu271 Patient @curesmaindia r waitin 4 lifesaving treatment #Risdiplam #ZolgenSMA #Spinraza , @OfficeOf_MM @narendramodi @DrBharatippawar, @PMOIndia #SMApatient r dyin, please help us win #BattleAgainstSMA

Heartfelt gratitude 2 hon'ble Shri @myogiadityanath Ji n Hon'ble @anandibenpatel Ji 4 listening about #SpinalMacularAtrophy from ur #SMArtWarrior Roli n Akshat Rastogi 2day. V truly believe dat under yr leadership Roli, Akshat n ALL UP #SMA patients will get life saving medicine.

Heartfelt gratitude 2 Hon'ble PM Shri Narendra Modi Ji @narendramodi 4 sparing time 2day with our #SMArtWarriors Roli n Akshat Rastogi 🙏. V truly believe "मोदी है तो मुमकिन है". With yr blessings ALL #SpinalMuscularAtrophy patients in India will get life saving medicine soon 🙏

Tomorrow mtng wid our respected MP Pallab Lochan Das, about SMA & it's medicine Risdipalm. কালি তেজপুৰ লোকসভা সমষ্টিৰ মাননীয় সাংসদ শ্ৰী যুত পল্লৱ লোচন দাসদেৱক SMA আৰু আমাৰ চিকিৎসা সম্পৰ্কে অৱগত কৰাৰ মুহূৰ্তত। @pallablochandas @himantabiswa @CMOfficeAssam @curesmaindia

Dear Sir @himantabiswa Ji @keshab_mahanta Ji, pls don't take too long 2 provide access 2 life saving medicine 2 #SpinalMuscularAtrophy patients. Assam has few #SMA patients n funding their treatmt shouldn't b difficult 4 state 2 save lives of yr state citizens @Sarmisthaprita1