Simply Kristy

Why does it take 7-10 business days (minimum of 2 more weeks my family is out $5000) to review a file? It has already been weeks and daily calls on my end. The complete disregard for the Honda customer experience just keeps getting worse. @Honda #worstcustomerexperience

This is the power of social media. You treat someone like garbage, and it will cost you much more business in the long run. I will post about this horrible customer experience that has cost my family $5000 and taken 22 business hours of my life daily. @Honda @HaltonHonda

@HondaCanada This situation is exhausting and more upsetting than my actual vehicle being stolen. I waited over 2 weeks to be told Honda Canada doesn’t hold their dealerships accountable to honest dealings with customers. This is not how you treat someone who has been brand loyal for 12 yrs

@SimplyKristyD Hi Kristy, we’re sorry to hear of your experience and understand this can be frustrating. The Customer Relations team may be experiencing higher-than-expected call volumes. We can assure you that we are making every attempt to expedite your response, and we deeply apologize

@HondaCanada How long does a customer have to wait for a call back? One would assume a customer would be treated better after their vehicle was stolen?! I call every day, and every day I am told a Case Manager will call me back. It’s been weeks… #worstcustomerexperience

@clairehsnyman I have heard this a few times over the last few weeks. It isn’t sitting well. We can’t push pause on our health needs, in the hopes the next election brings some magical funding/common sense?

Finding this a hard one when hearing or being told that "can't do this as it's an election year" or "that's not available as it's election year" Really? I live with my conditions 24/7 - not by election calendars 🤯 #bcpoli

Happy Nurse Week! We love nurses and love to celebrate their contributions to healthcare and health IT. #Nationalnurseweek #NurseWeek24 #Nurses

@PatientWorthy You are not alone. Your life is going to look different than what you had planned, but you will find peace and happiness in your new normal. Don’t be afraid or ashamed to seek out resources, help and support. You don’t have to walk this journey alone.

What advice or insight would you offer to someone who was recently diagnosed with your #RareDisease?

@genni_butt @StCofA_HCDSB You are an amazing administrator. The staff and community of your school are lucky to have you!

So lucky to work with the wonderful staff @StCofA_HCDSB Appreciate every one of them each day for how they support one another, teach and guide our students and contribute to making St. Catherine’s a great place to be! ❤️

@NeilFlochMD This is a system problem - clinicians need to be driving for change in a system that isn’t working for them, not downloading more work onto the patient. It is 2024. This technology exists and is being used in other states/countries. This should not be a job for a patient.

Dear patients- When a CT scan is done at another hospital, practice, or institution, I cannot see the results or the pictures. The law does not say that I can see them or get them. A law passed by the past president says that YOU have the right to see all your records but NOT your doctors. You must get your records and send them to us. Only you have the right to get them or sign a waiver to have the records sent to us. The HITECH law and ACA do NOT allow us access to your chart at other institutions. Thanks so much

@thegr8chalupa You are the best 🩷🩷

@SimplyKristyD We've got this, mama! So honored to share breakfast with you today. ✨️💪

Thank you @thegr8chalupa for sharing my message and for the warm hug! So wonderful to meet you in person today. Keep fighting the fight. We are right behind you #patientrevolution #rarerevolution

The #SwaayHealth community is a BIG reason for my recent professional success. You took me in as one of your own, believed in me and my #advocacy message to empower patients, and amplified it. I will be forever grateful for your support. THANK YOU! 😘

Could not be more deserving! @GraceCordovano is the GOAT! #swaayhealth

“The difference between healthcare and football is that we just don’t have that same team mentality. Everyone is working toward the same goal to improve patient outcomes, but all the stakeholders are working separately.” - @CareersKristy at #SwaayHealth

Day one of #SwaayHealth Conference didn’t disappoint! I am representing my fellow #rare patients and caregivers, soaking in the learnings, which I will bring back and share. Really missing my conference partner in crime, @RareDiseaseDad 💚. You are here in spirit, Adam!

“Think about Nike. They don’t manufacture one cleat and expect it to work for football, soccer, and rugby. They have athletes from each sport who actually wear that shoe engaged every step of the way from ideation to product development to launch." @CareersKristy #SwaayHealth. 🌟

Congratulations to the incredible and inspiring ⁦@stacy_hurt⁩!!! 👏🤩💗 #SwaayHealth

Integrated care is a long-term investment and commitment. So incredible to hear about @BurlingtonOHT journey since 2017 @peterskath1 #ICIC24

@RWMhealth I didn’t get anywhere with my GP. They want to charge me $30 to get the data that isn’t available to me via the lab. Grrrrr! Tomorrow will be spent trying to get through to the lab. Hopefully this will bring a better outcome. Fingers crossed!

@SimplyKristyD I appreciate it and likewise. Perhaps a call to their compliance or legal office. Very sorry you are having to deal with this.

Why? Why are we still gatekeeping a patient’s information? This is MY body and MY data. Ugh. I thought we were past this. Gatekeeping causes unnecessary anxiety for patients who choose to access their PHI. This decision shouldn’t be made for me. #patientexperience

@RWMhealth Thanks @RWMhealth. I hope your results are ok. I am furious. It’s disrespectful of my time, to book an additional appointment to get the results but more so, it is extra anxiety over testing that is already sensitive. I am not being quiet on this. Patients deserve better.

@SimplyKristyD My providers interpret recent regs as not allowing this nonsense. Just on Monday, post-colonoscopy, I was explicitly asked if I would like to see the biopsy results when they came or post-physician interpretation. I would not be quiet about this, Kristy. tinyurl.com/2t7xjf3z