APPG for Down Syndrome

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APPG for Down Syndrome

APPG for Down Syndrome

@APPGDS

Our aims are to raise issues affecting people with Down syndrome, promote equality, campaign for equal access & highlight the innate worth of people with DS.

Katılım Ocak 2021
1.2K Takip Edilen957 Takipçiler
APPG for Down Syndrome retweetledi
Matt Dathan
Matt Dathan@matt_dathan·
It's been FOUR years since parliament passed the Down Syndrome Act, backed by the government and all mainstream parties. But it has STILL not been implemented The law is so vital for the 50,000 people in the UK with Down Syndrome: thetimes.com/uk/politics/ar… @LiamFox @kenross2011
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APPG for Down Syndrome retweetledi
National Down Syndrome Policy Group
National Down Syndrome Policy Group@NDSPolicyGroup·
We’re thrilled to announce that the draft Guidance for the Down Syndrome Act has officially been published! This is an important step forward for our community. The consultation runs until 28th January 2026, and we’ll soon share how you can take part and make a difference.
National Down Syndrome Policy Group tweet media
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APPG for Down Syndrome retweetledi
National Down Syndrome Policy Group
National Down Syndrome Policy Group@NDSPolicyGroup·
“The Bill presumes the best instead of legislating for the worst.” When we already know that disabled people face serious healthcare inequalities, overlooking these real risks would leave vulnerable people even more exposed under an #AssistedDyingBill.”
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APPG for Down Syndrome
APPG for Down Syndrome@APPGDS·
Thank you to contributors, guests and members for participating in today’s APPG for Down Syndrome. Details of topics below ⬇️ @garrettflo @DamianHinds  @grahamstuart    @CIDDRG @LiamFox @LeeBarronMP  @jackabbott90 @jackmrankin  @JimShannonMP @MoncktonR @LeeAndersonMP_
National Down Syndrome Policy Group@NDSPolicyGroup

A packed agenda incl. delays & ongoing issues with the #DownSyndromeAct guidance, the #AssistedDyingBill, & reported changes to EHCP eligibility. Thanks to Cambridge Uni @CIDDRG for their Alzheimer’s presentation & @garrettflo for sharing the Advisory Group ICB challenge results.

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APPG for Down Syndrome
APPG for Down Syndrome@APPGDS·
“As co-chair, it is a privilege to pick up on Sir Liam’s work; the next critical phase needs to be the publication of supporting guidance for the #DownSyndromeAct.” @DamianHinds
National Down Syndrome Policy Group@NDSPolicyGroup

A really encouraging article by @DamianHinds MP showcasing the voluntary work of founding officers @kenross2011 @rachaelross21 Its a pleasure to work with Damian & we’re grateful for his collaboration and efforts in the @APPGDS and #DownSyndromeAct damianhinds.com/news/power-loc…

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APPG for Down Syndrome
APPG for Down Syndrome@APPGDS·
Productive APPG for Down Syndrome with valuable contributions from @DownsCheshire and @NDSPolicyGroup Advisory Group highlighting their day to day challenges with education, employment, housing and healthcare.
APPG for Down Syndrome tweet mediaAPPG for Down Syndrome tweet media
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APPG for Down Syndrome retweetledi
Ian Blackford
Ian Blackford@blackfordian1·
Today we celebrate World Down Syndrome Day, a global awareness event aimed at amplifying the voices of people with Down’s syndrome, highlighting their vital role in our communities and calling for their full participation in anything affecting their lives. @APPGDS, @NDSPolicyGroup #WDSD2024 #NDSPG
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APPG for Down Syndrome
APPG for Down Syndrome@APPGDS·
Great team achievement from all involved in the #CountMeIn campaign. Such an important first step in supporting children and young people with Down syndrome in education.
National Down Syndrome Policy Group@NDSPolicyGroup

Today we launch our #CountMeIn campaign to celebrate the inclusion of #DownSyndrome as a separate category on the #SchoolCensus2025. Read more here ndspg.org/wp-content/upl… @educationgovuk @LiamFox @GillianKeegan @APPGDS

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APPG for Down Syndrome retweetledi
Rachael Ross MBE
Rachael Ross MBE@rachaelross21·
@LiamFox @GillianKeegan @educationgovuk @NDSPolicyGroup @APPGDS This is fantastic news & long overdue. Identifying pupil numbers & locations ensures targeted DS provision & efficient guideline dissemination resulting in better outcomes & greater accountability. Well done to all involved.
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APPG for Down Syndrome retweetledi
National Down Syndrome Policy Group
National Down Syndrome Policy Group@NDSPolicyGroup·
'Provide greater support' @LiamFox tweets. Great new measure to include #DownSyndrome in school census in England in future 😀 #progress #DownSyndromeAct
Sir Liam Fox@LiamFox

Great news that #DownSyndrome is to be included in the School Census for the very first time from January 2025, a move that will provide greater support to the educational needs of those with Down syndrome. #DownSyndromeAct @GillianKeegan @educationgovuk @ndspolicygroup @appgds

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Keşfet

@LiamFox @kenross2011 @zubirahmed @TommyJessop @UKHouseofLords @LeeBarronMP @S_A_Russell @tommyjessop