David Arribas

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David Arribas

David Arribas

@arribas360

Fuck long covid🖕. Since Oct 2020.

barcelona Katılım Ocak 2011
1.3K Takip Edilen178 Takipçiler
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Manuel Ruiz
Manuel Ruiz@manruipa·
🔴🚩🧵 ¿Y si parte de los casos graves de Long COVID y EM/SFC no fueran “misteriosos”, sino daño del eje HPA no tratado y potencialmente reversible? Ya lo vimos tras el SARS-1. Volvió a ocurrir con el SARS-CoV-2. Y casi nadie está haciendo cribado. Algunos de los peores síntomas podrían ser prevenibles. Lee este hilo — y considera hablar con tu médico sobre estas pruebas. 👇
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PiPi lanubirt 👠 5.0
PiPi lanubirt 👠 5.0@Lanubirt·
@arribas360 Ni de coña, porque imagina dar un parte.... no lo das porque 2000 por cada parte jajajaj ni de coña. Además no es una aseguradora
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PiPi lanubirt 👠 5.0
PiPi lanubirt 👠 5.0@Lanubirt·
El seguro del taxi para un corolla sedan 1784 euros y poniendo al conductor 4200 euros. El musical. Estamos locos? Así quien cohones contrata a alguien?
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La Sotana
La Sotana@LaSotana_·
Des del principi us he manipulat perquè sigueu una comunitat unida. Esteu tots lligats entre vosaltres, som un tot. Ja no es pot desfer.
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ME/CFS Science
ME/CFS Science@mecfsskeptic·
The Rapamycin trial was published two days ago in the Journal of Translational Medicine. We made this summary of the trial when the preprint came out a couple of months earlier. 👇
ME/CFS Science@mecfsskeptic

1) Finally had a look at the new trial of Rapamycin, an FDA-approved drug that is used an immunosuppressant to prevent organ rejection. 86 ME/CFS patients were included in a pilot trial and received a low dose of rapamycin of 6 mg once per week.

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Christina Koch
Christina Koch@CK65375·
Absolutely love this #MEcfs Insta reel! It's hilarious, spot-on, and a total must-watch. 1/
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mswalker
mswalker@mswalker·
Just passed two months post #Pemgarda & still doing amazing. 🥂 Thank you @Invivyd! I posted previously, my post-vax symptoms began in January 2024 & were similar to those reported by post-viral long haulers. I still get lots of DMs from people asking if the effects have faded & I'd say the opposite is true. The vast majority of my existence feels completely normal again. I can detect mild arm weakness on some mornings, but that's about it. Fatigue is gone, orthostatic intolerance & dysautonomia is gone. Sleep is great (I woke up at 9am this fine morning!!!). My mind feels sharp. I've biked, hiked, swam, done extensive yard & house work. I can do normal stuff all day every day with no consequence. In the year prior to Pemgarda, I was mostly mild-moderate (thanks to meds). The 6 months before that was more severe (I know someone will ask). Most significant symptom was debilitating fatigue, followed by the others listed. I still think a lot about this illness and how much more we could be doing to save lives of Long Haulers. I know that mAbs alone won't have the same impact on everyone, but I wish that we would move more swiftly to treat people EARLIER in their illness. "Do no harm" means not allowing people decline for multiple YEARS before offering treatment.
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Jon Douglas
Jon Douglas@atranscendedman·
London study of 27 long COVID patients found their immune cells burn oxygen faster but waste energy as ATP synthase runs in reverse, hinting at a bioenergetic defect tied to fatigue and poor quality of life. tandfonline.com/doi/full/10.10…
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Òscar Broc
Òscar Broc@oscarbroc·
SÍ ROTUNDO
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David Arribas
David Arribas@arribas360·
@FreeShameless Me alegra oír que sigues recuperada. Yo encontré en low dose de abilify y rapamicina un combo que me permite ser algo funcional. Saludos.
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Sílvia Guerrero Caballero
Sílvia Guerrero Caballero@FreeShameless·
@arribas360 Sí. Por eso mismo. Me flipa que no lo lleven a la práctica clínica. Al menos como dice Manuel para reducir síntomas...
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Sílvia Guerrero Caballero
Sílvia Guerrero Caballero@FreeShameless·
Im tired too. It' s kind of unbelivable
Manuel Ruiz@manruipa

🎯 TIRED OF WAITING FOR A TREATMENT FOR LONG COVID OR MYALGIC ENCEPHALOMYELITIS? 
You’re not alone. ME/CFS patients have already been through this:
👉 Years of promises, studies, biomarkers...
👉 Hopeful headlines that never make it to clinical practice.
👉 Promising treatments published in journals that never get prescribed.
👉 And meanwhile… life goes on without answers. 🧬 As a researcher, I’m tired too.
Tired of seeing treatments that could relieve symptoms, that could offer quality of life while we wait for a cure… and yet are not being prescribed. 💊 Take antivirals, for example.
For bacteria, antibiotics are prescribed without hesitation. 
But for viruses… “the immune system can handle it.” 
Really? We already know not every body can efficiently clear viral infections. 📉 We know viruses like Epstein-Barr Virus (EBV) are linked to the development of diseases such as:
🔹 Multiple Sclerosis
🔹 Lupus
🔹 Crohn’s
🔹 Hashimoto’s
🔹 Sjögren’s
🔹 Rheumatoid Arthritis
🔹 Myalgic Encephalomyelitis (ME/CFS) And yet, antivirals aren’t even considered to reduce viral replication and the autoimmune flares it can trigger? 💭 Some say: “But antivirals don’t eliminate the virus (latency), they only reduce replication.” 
So what?
🔁 By that logic, why do we give antiretrovirals to people with HIV, if they don’t eliminate the virus completely either? 
👉 Because they improve quality of life and prevent long-term damage. ✔️ They prevent immune system damage.
✔️ They reduce opportunistic infections.
✔️ They improve quality of life and life expectancy.
✔️ They lower viral load to undetectable levels (which also prevents transmission).
✔️ And they reduce the risk of developing other autoimmune diseases and even certain types of cancer. 🚨 Patients with EBV-induced mononucleosis still come to emergency rooms and walk away without antiviral treatment — despite clear evidence linking EBV to a higher risk of developing autoimmune diseases. And this doesn’t just happen with EBV.
It happens with many other persistent viral infections. 
And we keep looking the other way. 📢 If you’re tired too, share this.
 Maybe someone will finally question why antivirals aren’t being considered.
 Maybe we’ll get people to start listening to patients.

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Putrino Lab
Putrino Lab@PutrinoLab·
We are so excited about our clinical trial of low dose rapamycin for people with #LongCOVID. Understanding the mechanisms behind WHO this helps and WHY is crucial for establishing safe and effective treatments for people with LC and ultimately other complex chronic illnesses. 🙏
CoRE at Mount Sinai@CoRESinai

Join a clinical trial assessing the safety and efficacy of sirolimus in adults with Long COVID. For more information, contact CoreResearch@MountSinai.org.

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David Arribas
David Arribas@arribas360·
@curemetogether - Rapamycin 6 mg weekly - Abilify 1.5 mg daily - Bilastine 60 mg daily (literally magic for MCAS) - Ativan 0.5/1 mg when needed. Rapamycin eliminated my sun and heat allergies. Abilify almost completely eliminated my headaches and brain fog. Ativan relieves my PEM.
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Natasha
Natasha@curemetogether·
Med list now Abilify 0.2 Metformin 500mg once a day Valtrex 1000mg once a day Ativan when needed (usually 0.5) a day Ivabradine 10-15mg per day LDN 2mg Ketotefin 1mg twice a day Vitamin C Vitamin D Magnesium Potassium Salt, a lot of salt
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Òscar Broc
Òscar Broc@oscarbroc·
Bueno, bueno, vaya pedazaco de serie
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Syd
Syd@fcknsyd·
I wanted to share this video with you all that was taken during my ICT on May 9th!! All the symptoms we measured at baseline disappeared at 35lbs of traction. This video is when he asked me to take a drink of water to test my dysphagia symptoms (one of my worst symptoms!!) 😭😭
Syd@fcknsyd

ICT went very smoothly. In recovery now w the pressure bolt. I qualify for a c0-c2 fusion 🥹🥹🥹 As soon as he put 35lbs of traction on I started balling. I just kept saying I feel like me again. I could finally take a deep breath. It was incredible. I'll never forget it ❤️

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Bettina Grande
Bettina Grande@GrandeBettina·
.@RobWuest (NL): Muscle changes in #MECFS & LongCovid are pathological – not caused by deconditioning. Exertion above the #PEM threshold causes measurable damage. We need more muscle biopsies and targeted research – not outdated assumptions. #PEMisnotnegotiable #MEAwarenessDay
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