Chelsea BreeAnn Hardesty

503 posts

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Chelsea BreeAnn Hardesty

Chelsea BreeAnn Hardesty

@betterofendo

Founder | Research Asst. @wwendomarch | CEO @satirev_projects | Amplifying Patient Voices | Policy + Research @americanendofendoproject |

Denver, CO Katılım Kasım 2019
263 Takip Edilen141 Takipçiler
Chelsea BreeAnn Hardesty
Chelsea BreeAnn Hardesty@betterofendo·
2023: We showed up in D.C. with nothing but our stories. 2025: We showed back up in D.C, even stronger 2026: We changed federal health policy. No lobbyists. Just patients & advocates who refused to disappear. Being sick doesn't disqualify you from leadership. 💛
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Chelsea BreeAnn Hardesty
Chelsea BreeAnn Hardesty@betterofendo·
‼️Historic Breaking News‼️ The President has signed FY26 appropriations including first-ever report language recognizing endometriosis as a chronic, systemic, inflammatory disease. Patient-led advocacy works. This is the foundation.
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Chelsea BreeAnn Hardesty retweetledi
Bernie Sanders
Bernie Sanders@BernieSanders·
If Trump seizes Greenland from Denmark, does that mean that all Americans will be entitled to: Free healthcare with no deductibles? A free college education? 52 weeks of paid parental leave? 5 weeks of paid vacation? Because that’s what everyone in Denmark and Greenland has.
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jennifer permpipat
jennifer permpipat@itsPermp·
@DenSafetyDept I literally just moved to Denver 30 minutes before that alert came in. And downloaded X to see what the hell was happening. Welcome to Denver?!
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Denver Public Safety Department
Denver Public Safety Department@DenSafetyDept·
A wireless emergency alert (WEA) was sent to a broader area than intended for an incident at 2495 S. Vine Street. The shelter-in-place alert applies only to a two-block radius around that address and recipients outside that area should disregard the alert.
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Chelsea BreeAnn Hardesty
Chelsea BreeAnn Hardesty@betterofendo·
Language shapes research. Research shapes care. When the framework is wrong, the science is wrong. This is progress — not a final victory — but it is a meaningful course correction built through decades of patient advocacy. We share this with care. The work continues.
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Chelsea BreeAnn Hardesty
Chelsea BreeAnn Hardesty@betterofendo·
A historic shift in federal endometriosis language. For the first time, Senate report text recognizes endometriosis as a chronic, systemic, inflammatory, multi-organ disease — not only a reproductive condition.
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Chelsea BreeAnn Hardesty
Chelsea BreeAnn Hardesty@betterofendo·
We hold this update with care. We recognize the world is heavy and many are suffering. This progress does not erase harm or fix the system overnight. We share this to support future change, not to overshadow present reality.
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Chelsea BreeAnn Hardesty
Chelsea BreeAnn Hardesty@betterofendo·
If the framework is wrong, the science is wrong. This is where the shift begins. We are continuing to: • protect the integrity of this language through conference • engage House and committee offices • monitor the FY26 extension period • prepare for additional outreaches
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Chelsea BreeAnn Hardesty
Chelsea BreeAnn Hardesty@betterofendo·
A shift is underway. Senate FY26 report text now recognizes endometriosis as a chronic, systemic, inflammatory, multi-organ disease — aligning research framing with lived and clinical reality. This is progress, not final victory. It changes the direction of the future.
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EndoSpecialist
EndoSpecialist@DrSeckin·
In all my years caring for women with #endometriosis, I’ve rarely been as moved as I was by @RobertIrwin’s love and support for his mother & sister. His Blossom Ball speech was a defining moment — a young man standing up for women’s health with grace, respect & compassion.
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Chelsea BreeAnn Hardesty
Chelsea BreeAnn Hardesty@betterofendo·
@endostats @HHSGov @usphscc @ADM_Christine @CamranNezhatMD You exagerate & minimize others around you. That's not community advocacy. That's self service. Learn to be kinder & more collaborative. Instead you are defensive & harassing. It's a shame the route you've gone Julie. I almost died. You assume an awful lot behind that keyboard.✌️
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EndoStats
EndoStats@endostats·
@betterofendo @HHSGov @usphscc @ADM_Christine @CamranNezhatMD I have most every type of endometriosis. I’m Stage 5. So unless you fall into ER status, your voice is minimal. Please see my site as advocates are listed. Hospital are all reviewing my medical records as your information puts them in liability
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Chelsea BreeAnn Hardesty
Chelsea BreeAnn Hardesty@betterofendo·
@endostats @FAOWHOCodex @FAO You're crossing Correlation and Causation Julie. Learn the differences. Watch yourself. Back off. You've been warned. I do not need YOU of all people to tell me I am wrong. The evidence I have against you tells me all I need. ✌️
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Codex Alimentarius
Codex Alimentarius@FAOWHOCodex·
🤔 | #DYK | Codex General Standards, Guidelines and Codes of Practice apply to all products and product categories. 👉 These texts typically deal e.g. with hygienic practice, labelling, nutrition and residues of veterinary drugs and pesticides. ➕ℹ️➡️ bit.ly/CodexTexts
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