
Deb (parody) #LeagueOfDifficultWomen 🌈🥄🦓 🧬
166.1K posts

Deb (parody) #LeagueOfDifficultWomen 🌈🥄🦓 🧬
@deborahbrian
Recovering academic, research manager, #POTS, #ChronicIllness, etc. Same handle at 🦋. Opinions my own; fools not suffered. she/her
Brisbane, Australia Katılım Kasım 2009
3.7K Takip Edilen4K Takipçiler
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@DrNomyn I'd love to think that, in the wake of this crisis, we might be bolder about reassessing some of our personal and collective priorities, and be brave about finding new ways to do things, ways that are more accessible, more flexible, more human...
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@KimIversenShow @gospacecraft For symmetry, we now need to refer to "the Israeli terror regime".
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@_MegaPolitics Unfortunately, no, our pathetic PM has been too chickenshit to acknowledge the ongoing genocide or his own complicity.
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@sahouraxo anyone know about the Spanish military bases actually in the USA
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@sahouraxo @BreeNewsome Don’t leave NATO — suspend the membership of the US! There must be consequences for NATO members who breach international law?
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@Megatron_ron @BreeNewsome Recognising a fact is not ‘support', though.
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BREAKING:
🇫🇷🇮🇷 France’s most popular politician and Macron’s potential successor, Jean-Luc Mélenchon, leader of the LFI party announced support for Iran:
“Iran is exercising its legitimate right to defend its sovereignty, its people, and its resources, after being subjected to blatant aggression.”
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I asked Grok this. The answer is spot on IMO.
x.com/i/grok/share/2…
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@deborahbrian @HalfThePerson I hope you can have some lovely dreams during that rest time. Daydream and sleeping dreams. And if your pain allows, maybe a little audiobook enjoyment. Sending good wishes your way.
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@gospacecraft @HalfThePerson Thanks, just need a couple of days in bed, but like you, there are things I'd rather be doing…🫠
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@deborahbrian @HalfThePerson I hope you feel better. I hope that migraine releases its grip soon.
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@gospacecraft @HalfThePerson Sounds good — try scheduling rest and using a timer to limit activity, maybe? You’ll find your optimal pacing framework doing that and monitoring symptoms. ❤️🩹
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@deborahbrian @HalfThePerson I’m going to put a pin in this and save this and do better this week. I think this is what is happening.
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@gospacecraft @HalfThePerson It’s easy to overdo it … take care ❤️🩹
My week has caught up with me and I'm in PEM with bonus migraine, so I'm going off for a quiet rest…
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@deborahbrian @HalfThePerson Just happily reading and researching articles and attending a webinar. But my heart rate has been too high and my eyelids are drooping. Sending good wishes for your sleep tonight. I will go rest now. Thank you for the reminder.
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@terrified_kitty @HalfThePerson @reradkeebs Inflammation of that kind is a common feature across a lot of conditions. There are a bunch of autoimmune and genetic conditions that can produce inflammation and affect metabolism at the cellular level. I would pay close attention to thyroid function as relatively easily fixed?
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@deborahbrian @HalfThePerson @reradkeebs Except that in cfs the inflammation seems to be localized in neurons / brain and kicked off by a virus. For me the current idea is that accumulated cellular stress from ROS, lactate and lack of ATP kick off that inflammation on a cellular level and with edema around my muscles
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@terrified_kitty @HalfThePerson @reradkeebs Yeah, Germany is really floundering in this sort of thing, I'm so sorry. Hope you can manage with pacing, electrolytes, compression, etc, and that someday you find a doctor who knows what they’re doing 🤞
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@deborahbrian @HalfThePerson @reradkeebs The german healthcare is shit. They wont test me for dysautonomia but say its suspected. Basically brushing it off as yet another consequence of my labs. I dont get any meds at all. Yep Im trying very had to get genetic testing esp for mito genes bc i measurably barely make ATP
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Deb (parody) #LeagueOfDifficultWomen 🌈🥄🦓 🧬 retweetledi

So, he's gone from the Strait of Hormuz is open, to we're escorting ships through, to what is a so-called "Straight" (sic) anyway, to it will just open of its own accord when it’s ready, to you better open it or else! Quite the toddler bewilderment to tantrum arc…
Mehdi Hasan@mehdirhasan
This would be a war crime obviously. Collective punishment.
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Deb (parody) #LeagueOfDifficultWomen 🌈🥄🦓 🧬 retweetledi
Deb (parody) #LeagueOfDifficultWomen 🌈🥄🦓 🧬 retweetledi

@terrified_kitty @HalfThePerson @reradkeebs I hope you find some answers. I ended up seeing a (specialist) general physician with an excellent reputation for solving diagnostic puzzles — I hope you can maybe find someone like that 🙏
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@terrified_kitty @HalfThePerson @reradkeebs If you've had this since birth, it would make sense to look at genetic conditions, maybe? The delayed presentation is very PEM-like, and some people have pain as a leading symptom, but of course you need to take in the whole list of symptoms and patterns.
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@terrified_kitty @HalfThePerson @reradkeebs Not everyone has the same degree of sensitivity to physical and cognitive activity. But if you haven’t been tested for dysautonomia, it is worth doing that, as treatment can make a big difference to QoL. Take a list of all your symptoms in case something else is going on?
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@deborahbrian @HalfThePerson @reradkeebs I only had brain fog just once as a consequence of L carnitine. Nor does cognitive load make me sick or exhaust me. For me its purely a physical consequence. Fever comes if i did WAY too much. Could be dysautonomia. Otherwise its just disabling pain in my arms and legs.
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