Gene Veritas

Brain donations from #HuntingtonsDisease patients like Dorlue Schulte to the Harvard Brain Tissue Resource Center are crucial for the cure of neurological disorders but could lose @NIH funding @HDSA @SenMcConnell @SenWarren @Harvard @McLeanHospital @maddow curehd.blogspot.com/2025/07/brain-…

Dr. Jody Corey-Bloom’s succinct, comprehensive, and up-to-the-minute annual overview of Huntington’s disease clinical research and trials. vimeo.com/1024249700

With $1 million grant from @HDFCures @harvardmed Mouro Pinto Lab is deploying CRISPR to target genetic modifiers of somatic expansion in #HuntingtonsDisease, testing an experimental drug in mice to deactivate harmful MLH3 scissors #CureHD @HDSA @Help4HDI curehd.blogspot.com/2024/10/at-har…

A big thank you to Cardinal Blase Cupich for presenting his Holy Father with a personalized copy of Profiles in Mental Health Courage!!

At symposium Hereditary Disease Foundation @HDFCures featured an interview with Michael about how he navigates #HuntingtonsDisease with joy, inner strength. “You’re a hero!” declared @FoxTacie. #CureHD @HDSA @Help4HDI @Neurocrine @Ionispharma @PTCBio curehd.blogspot.com/2024/08/at-hdf…

Learn how San Diego’s @Neurocrine developed INGREZZA for #HuntingtonsDisease chorea, how it compares to Xenazine, Austedo #CureHDNow" target="_blank" rel="nofollow noopener">curehd.blogspot.com/2024/07/explor… @HDSA @Help4HDI @Pontifex @GavinNewsom @ToddGloria @biocom

Louise Vetter is resigning as head of HDSA. It's critical for the HD community to find a superb successor.

@HDSA Thank you, Louise Vetter, for your service to HDSA and the HD community. You will be missed!

📢 A message from Louise Vetter, President & CEO of HDSA. To read the full message, please visit: hdsa.org/wp-content/upl… #HDSA #HuntingtonsDisease

Impactful @XWilliamYang1 Research Group @UCLA employs a multi-pronged effort to investigate potential therapeutic targets for #HuntingtonsDisease, spurs hope #HDAwarenessMonth #CureHDNow @HDSA @Help4HDI @Pontifex @POTUS @Roche @Ionispharma curehd.blogspot.com/2024/05/aiming…

A crucial interview with @RobertPacifici of CHDI Foundation about the fight to cure #HuntingtonsDisease #CureHDNow @hdfcures @HDSA @HuntingtonSG @Help4HDI @Roche @PTCBio @uniQure_NV @VertexPharma @NIH @NYTimes @statnews vimeo.com/918568167

After “terrific” conference, CHDI Foundation head scientist declares that #HuntingtonsDisease community will “get there” in search for therapies. #CureHDNow @Pontifex @POTUS @HDSA @Help4HDI @Roche @PTCBio @uniQure_NV @VertexPharma @NIH @NYTimes @statnews curehd.blogspot.com/2024/03/huntin…

In this review article, Dr Jenny Morton of @Cambridge_Uni argues that studies in HD animals provide compelling evidence that sleep and circadian deficits should be better studied in humans. ➡️content.iospress.com/articles/journ… #Huntingtonsdisease #Sleep #HDResearch

It is not necessary to be wealthy to do good. Rather, it is almost always common people who devote their time, skills and heart to caring for others. #ApostolicJourney #Mongolia

After @US_FDA approval of once-daily INGREZZA for chorea in #HuntingtonsDisease @Neurocrine vows to seek disease-modifying therapies. #CureHDNow @Pontifex @HDSA @HuntingtonSG @NIH curehd.blogspot.com/2023/08/adding…

Alarming, heartbreaking destruction by @Lahaina wildfires a reminder to strive for human solidarity, peace, and ensure resources to conquer devastating disorders like #HuntingtonsDisease, #Alzheimers #CureHDNow @Pontifex @POTUS @SecBecerra @NIH @HDSA @Maui curehd.blogspot.com/2023/08/lesson…

This holiday season with fears of World War III and millions needing cures for neurological disorders, cancer, and other maladies let people everywhere and their leaders embrace a new global ethic of #FightDiseaseNotWar @Pontifex @JoeBiden @KremlinRussia_E curehd.blogspot.com/2022/12/fightd…

Journal of Huntington’s Disease @journal_hd published my article “Striving for a Realistic and Unapologetic View of #HuntingtonsDisease,” about my blog: since 2005 321 articles giving voice to HD community, exploring history of the cause. #LetsTalkAboutHD content.iospress.com/articles/journ…

Tell your #Representatives & #Senators to ACT NOW to make sure the #HDParityAct is passed before the end of the year to remove the 2 year waiting period for #Medicare for people with #HuntingtonsDisease. ➡️HDSA.org/takeaction #LetsTalkAboutHD #HDSAFamily #PasstheHDParityAct

Ionis announces European Medicines Agency accepts Marketing Authorization Application of tofersen to treat rare, genetic form of ALS $IONS prn.to/3H6ZBbl

Dr. Jody Corey-Bloom’s annual comprehensive and up-to-the-minute #Huntingtonsdisease research update: therapies inching ever closer to reality @HDSA @jcoreybloom @ucsd_hdcrc @Roche @SageBiotech @neurocrine @uniQure_NV vimeo.com/774452745