Greg Ryan OAM
498 posts

Greg Ryan OAM
@gregmryan
Advocate for all born IA/ARM. Author of “A Secret Life - Surviving a Rare Congenital Condition” & “Rare and Resilient: ONE in 5000 Anthology.”
Melbourne Katılım Mayıs 2013
1.3K Takip Edilen374 Takipçiler

Today is a very special day as @ONEin5000 Foundation is proud to celebrate today, 20th March, as the inaugural “International Anorectal Malformations Day (ARM).
This important milestone has been made possible through the collaboration of worldwide IA/ARM patient organisations🧡💙
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@RalphyHeraldSun David Dench - Captain at 21; Wayne Carey - Captain at 21; Harry Sheezel at 21 is most definitely in the same category as these players to be considered for captaincy 🤍💙
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Greg Ryan OAM retweetledi

#OTD, 45 years ago, Dr. Alberto Peña created the Posterior Sagittal Approach to repair Anorectal Malformations.
We thank him for his creativity, sincere interest in improving the life of patients, as well as his continuous dedication to teaching other surgeons.


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Greg Ryan OAM retweetledi

Anorectal Malformations are frequently referred to as an Imperforate Anus. In reality, a true imperforate anus (blind ending rectum) is a rare anomaly that only happens in 5% of cases.
youtu.be/iLwIVYDwGCY

YouTube

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@KevinBartlett29 Les Foote is the North Melbourne player in back row between Charlie Sutton & Jack Dyer.
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For those diehard #shinboners, here is a story on our beloved @NMFCOfficial #joininthechorus #kangas theme song 🦘🤍💙
North Melbourne FC@NMFCOfficial
We have a particularly special song, with two verses sung before the version played over the loudspeakers, but which is its 'true' last line? Club historian Greg Ryan investigates. #Kangas
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Greg Ryan OAM retweetledi

🚨 New EU Guidelines for Anorectal Malformation (ARM)!
✅ Prenatal detection via US/MRI
✅ Newborn screening for spinal/urological anomalies
✅ Structured long-term follow-up
📌 Standardized diagnostics = earlier, better care! thieme-connect.com/products/ejour…
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Labor has cut funding for the Paediatric Colorectal and Pelvic Reconstruction Centre which was treating children born with debilitating conditions.
Put simply, this is a heartless decision.
Read my OpEd which appeared in today’s @theheraldsun here👇
michaelmccormack.com.au/media-releases…


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Very important piece titled “how cuts will hurt kids”written by former Australian Deputy PM @M_McCormackMP on the cruel closure of colorectal service at @RCHMelbourne @AlboMP @PeterDutton_MP @BevMcArthurMP @JacintaAllanMP @MaryAnneThomas @gedkearney
michaelmccormack.com.au/media-releases…
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@M_McCormackMP @theheraldsun Thank you @M_McCormackMP on your advocacy and passion to support the kids born with complex colorectal conditions and their families. We must save the CPRS @ONEin5000 @RCHMelbourne
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Anorectal Malformations Associated with Hirschsprung Disease: Insights from a Large Cohort of 2341 ARM Patients in a Single-Center Retrospective Study #some4pedsurg #some4surgery #sminaev #ARM thieme-connect.com/products/ejour…
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@EJPS_Reports @DrBernardoNunez I had Fowler-Stephens Orchidopexy at age of 6 & 7 after being born with #imperforteanus At the age of 22 I was diagnosed with testicular torsion and required emergency surgery. Is this a common occurrence? @martin_lacher
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Single vs. Two-Stage Laparoscopic Fowler-Stephens Orchidopexy:
Meta-analysis (17 studies, 500 testes):
Two-stage LFSO → Higher success (90% vs. 79%) & lower atrophy (11% vs. 17%) vs. single-stage.
Fung ACH, Eur J Pediatr Surg. 2025
#Cryptorchidism #Orchidopexy
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Families fight to Save Renowned Children’s Bowel Clinic from Closure at @RCHMelbourne Thanks to @MarcLevittMD for advocating and supporting the Colorectal & Pelvic Reconstruction Service in #Melbourne #Australia
chng.it/VvzbNbpgDn via @ChangeAUS
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Greg Ryan OAM retweetledi

Rectal prolapse in Anorectal Malformation:
- more common in patients with poor prognosis for bowel control
- surgery should only be offered when interfering with the quality of life (excessive mucous production, bleeding, or discomfort)
#SoMe4PedSurg #pedscolorectal

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Greg Ryan OAM retweetledi

🧩 New resources for #AnorectalMalformations! This #RareDiseaseDay, we’re highlighting guidelines, patient information materials & a sexual support website—all to enhance care & outcomes for ARM patients. Learn more: bit.ly/3D862Lw 💙 #EUfunded #EU4Health #SoMe4PedSurg
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Greg Ryan OAM retweetledi

This Tuesday, Feb 25, the International Center for Colorectal and Urogenital Care at Children’s Hospital Colorado in partnership with @hendrenproject will be hosting a FREE Bowel Management Course. #SoMe4PedSurg
Register here: us02web.zoom.us/webinar/regist…

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