Jean

@TSBurkhardt Or just do that. I’m just trying to get the message out for people who already got suckered into it. I’ve gotten messages from at least 4 drug war abolitionists. I’m working on a tool to flood the phishers with random submissions (it’s not a sophisticated attack).

@sigmundJake @VinoNStrosGal 2) I wrote that wrong. I meant to say my Dr didn't want to talk to my pharmacist! So I have no one sticking up for me.

@sigmundJake @VinoNStrosGal My pharmacist called while I was still at my appointment. My Dr got mad and told the nurse to say something. I don't know what. I didn't understand what was happening because he was just mad about having to talk to my Dr! So...🤷‍♀️

Pharmacists today aren’t just filling prescriptions anymore. They’ve been turned into gatekeepers, sometimes even “bouncers,” of pain medication. And look, I understand they have a responsibility to verify safety. But from what I’ve experienced and what many others have experienced, isn’t professionalism. It’s interrogation. It’s defensiveness. It’s being treated like you did something wrong… for bringing in a prescription written by a licensed physician. There’s a difference between: “I have concerns, let’s go over this together” and immediately assuming the worst and escalating the situation. You can refuse to fill a prescription. But how you treat people in that moment matters just as much. Curious, what have your experiences been like at pharmacies lately?

@shdwstar @JimMill20909980 I'd like to add to this. I was refused pain treatment a couple of months after neuro-surgery; besides not being able to move I couldn't communicate & I noticed my handwriting was horrible! Has anyone else noticed this? I'm finally starting to write much better after 7 1/2 yrs!

This applies to all drugs, (see alcohol) because you are removing the gangsters and unpredictability of the supply.

@VinoNStrosGal @AmerMommaBear They may be able to refuse to fill an RX but if we are disabled & they refuse a medication that can help us; we can file a disability claim. I have been trying different meds because it's hard to find something that works. This one was something he decided he couldn't fill!

@captive_dreamer @life_is_art___ I thought he quit over the war.

So Candace and Joe Kent go back some time. Looks like Joe may even be the guy who was leaking to Candace. Totally embarrassing

@VinoNStrosGal An accurate snapshot of what occurs with anyone with chronic pain. It sucks for sure! Have travel plans? Oh heck no, you can’t get an early refill. Holidays? You can get it refilled the day before the holiday, but just because the pharmacy is closed. 3 month supply? Oh heck no!

@VinoNStrosGal So true! I does feel like PTSD every month or if we need a change in meds. I suffered so long with nothing. I didn't know why doctors wouldn't treat me. Even though I was already on an SNRI the just passed out another SSRI. I don't know if they know how dangerous that is!

Something I don’t think most people understand about being a compliant chronic pain patient in 2026: Every month feels like a gamble. Your doctor writes the prescription. Once that prescription is issued, whether it’s a piece of paper in your hands or an electronic script called into a pharmacy, that part is done. But that’s when the system fractures. ⚠️ The doctor says it’s out of their hands. ⚠️ The pharmacy says they’re not comfortable filling it. ⚠️ The hospital says they can only treat symptoms if you go into withdrawal. And suddenly you realize something terrifying: No one is actually responsible for making sure you receive the medication that was legally prescribed. Pain patients live in a strange space where responsibility is fragmented. 📝 Doctors prescribe. 🚩Pharmacies decide whether they’ll dispense. 🏥 Hospitals stabilize the aftermath. But no single part of the system guarantees continuity of care. So every 28 or 30 days, patients across this country go through the same quiet ritual. We wait. We hope the pharmacy will fill it. We hope the medication is in stock. We hope the pharmacist doesn’t see a “red flag.” We hope nothing changes this month. And when the prescription is finally in our hands, there’s a strange kind of relief. Not just relief from pain. Relief that, for this month at least, we won’t be forced into withdrawal. But then the clock starts again. Twenty-eight days later, the entire process repeats. And that constant uncertainty isn’t just stressful. For many patients, it’s terrifying. Over time, that repeated cycle of fear and uncertainty can leave people living in a state that feels a lot like trauma. Many patients describe it as a kind of medical PTSD. So I want to ask the chronic pain patient advocates who have been fighting for this community for years, some of you for decades. When compliant pain patients are holding a valid prescription and pharmacy after pharmacy refuses to fill it, what recourse do we actually have? What are patients supposed to do in that moment when the clock is ticking and withdrawal is approaching? Are there steps people can take? Is there anyone they can call? Or are patients simply left to navigate it alone and hope they find a pharmacy before their bodies start to crash? Because I know I still have a lot to learn. And I suspect there are many patients out there who feel just as lost when this happens.

There is definitely a grifting problem. 1. Housing issues are caused because realty is a speculation and investment industry, not for people to find a home and live. Millions of homes sit empty. 2. The US economy only exists because of the staggering amount of debt that props the whole system up. As soon as most people are no longer able to pay off their ever accumulating debt, the system will collapse 3. There is no border problem because borders are just lines drawn in the sand with a stick. Humans aren't illegal. 4. Crime is often a result of society not caring about those that are struggling or having mental health issues. You can't prosecute yourself to safety if the underlying causes remain. 5. Homelessness is a societal failure of not having affordable housing or care centers adequate enough to help individuals with their underlying causes. 6. Education has been trashed, targeted, and chipped away at for decades. The only indoctrination going on is for students to become thoughtless worker drones and mindless consumers for corporations. There is 0 leftist cirriculum happening in American schools as there are no capable leftists organizations to advocate for it. 7. The theft is the ruling class taking from the working class. During the COVID pandemic trillions transfered from the working class to the ruling class, and that continues to this day. 8. The US is the only developed country that does not have universal Healthcare. It has hundreds of thousands of citizens going bankrupt annually due to medical debt. Insurance companies notoriously deny claims to the point an insurance CEO was assassinated for it. 9. The American Dream never existed. It was a fantasy sold to the populace by democrats and republicans so that their donors could exploit the middle and working American classes until there's nothing left to take.

There really is hyperalgesia. But it is not caused by the reasons the doctors claim. Obviously not everyone gets it. But It can come from under treatment of pain. Why are you so hostile to everyone you misinterpret? Or don’t understand? Stop it! I am on the side of pain patients and opioids are the best we have. You cherry pick to fit a narrative.

@carlso17546 @ibdgirl76 @CRNAskillz @DavidESmitty There is no evidence for hyperalgesia in humans

They also don’t mention that when using Tylenol and NSAIDs for moderate to severe pain, people are more likely to take higher levels because the pain exceeds the capabilities of the medication. 78,000 admissions a year to ERs due to Tylenol overdoses yet zero hysteria or outrage over these idiots creating the problem, which leads to 20% of liver transplants. Tylenol has its place- but not for moderate to severe pain. Then they’ll blame the patient for taking too much of the “safe” med they’re lied to and told they can’t OD on.

It's wild how doctors can just kill people. I suppose it is more wild that people let them. Doctors have power only because people participate in their system. It is time to build a system free from coercion.

No serious adverse events were reported at 12 grams. This is huge considering hardly anyone consumes 12g at one time, or in a 5 min window. I never have, nor has anyone I personally know or am acquainted with in Kratom communities.

@ACSHorg @cremieuxrecueil It's best to go right to the study to see if it is worthwhile. Sometimes it takes an expert to notice the truth.

@cremieuxrecueil News coverage is often just rehashed press releases. Worse, many news outlets and reporters are funded by the same foundations that finance the research they're covering. Biggest scam in the world, and few people know about it.

Reminder: Journalists will often talk about what some 'study showed' when the study never tested anything even remotely related to what they're claiming it showed. You should remember that many journalists are basically illiterate.

@rey34721 The Internet helps and social media helps to be able to share our experiences and solutions.

@kaake_rn I think I started experiencing that in 1980. 8 years old. My problems started and compounded from 1980 until I finally truly addressed them myself in 2024.

Dismissive doctors. So much energy expended trying to convince me I'm either fine or my problems are not what I think they are. I said enough in 2003. I've been right every time I identified and treated an issue myself since. Not talking about with crunchy esoteric crap either. Talking about with the pharma drugs I would have expected to be prescribed.

@DavidESmitty @AZAGMayes 2) it's private equity companies. They are taking over many different types of business but they definitely don't belong in healthcare.

@DavidESmitty @AZAGMayes What is wrong with the health care system these days? I'm hearing a lot about the pay systems owning hospitals and medical practices that only care about $$. We need oversight on health insurance & all healthcare practices!

Lung surgery PATIENT TORTURED TO DEATH with no pain meds and gabapentin only. Didn't survive the procedure! OUTRAGEOUS fraud is driving the state-sanctioned pain patient torture and mass murder program! @AZAGMayes