Lymphoma Coalition

4.7K posts

Lymphoma Coalition banner
Lymphoma Coalition

Lymphoma Coalition

@knowyournodes

Global network of lymphoma patient organisations sharing resources & best practices; acting as a central hub for reliable information.

Global Katılım Temmuz 2010
1.7K Takip Edilen4.3K Takipçiler
Lymphoma Coalition retweetledi
Women in Lymphoma - wil@lymphoma.org.au
Series 18 (Spanish) of #WiLingWednesdays is coming 🎉 🗓️ Starting May 13 💻 Free educational webinars 🧠 DLBCL, CLL, cell therapies & Hodgkin lymphoma Regional experts sharing insights on innovation, clinical practice & access in lymphoma. 📌 Don’t miss it! #womeninlymphoma
Women in Lymphoma - wil@lymphoma.org.au tweet media
English
0
4
8
353
Lymphoma Coalition retweetledi
Lymphoma Canada
Lymphoma Canada@LymphomaCanada·
The Global Patient Survey (GPS) on Lymphoma & CLL is designed to drive positive change for people affected by lymphoma and CLL, both globally and here in Canada. Will you add your voice today? ow.ly/PIKo50YoOuO
English
0
2
2
67
Lymphoma Coalition retweetledi
EBMT
EBMT@TheEBMT·
Join the 20th Patient, Family and Donor Day at #EBMT26! 📩 The PFDD offers a meaningful platform for patients and families, patient advocates, donors and healthcare professionals to connect and exchange knowledge. Registration is completely free! Join us on 📅 Sunday, 22 March in person in Madrid or virtually. Learn more and register today ➡️ ebmt.org/annual-meeting… 🤝 With the support of @AnthonyNolan, @DKMS_uk and Josep Carreras Leukaemia Foundation #PatientCare #PatientAdvocacy #Hematology #HCT #CellTherapy
EBMT tweet media
English
0
4
6
1K
Lymphoma Coalition retweetledi
LymphomaAction
LymphomaAction@LymphomaAction·
Affected by #Lymphoma? Have you had or are about to have a stem cell transplant? Join us online as Michelle, a Consultant Nurse, discusses stem cell transplants including whether you are likely to be considered for one and what the procedure involves 👉 lymphoma-action.org.uk/events/special…
LymphomaAction tweet media
English
0
6
6
542
Lymphoma Coalition
Lymphoma Coalition@knowyournodes·
We are proud to have contributed to Close the Loop, which documents how ongoing financial pressure is affecting the role patient organisations play in cancer research. The report shows that constrained resources are forcing difficult trade-offs. When research activity is reduced or paused, it limits patient involvement, slows evidence generation and weakens the feedback loop between lived experience and policy, practice, and innovation. This matters not only for patients today, but for the future of cancer care, where patient-informed research is essential for progress, equity and relevance. 🔗 Read the report: worldbladdercancer.org/wp-content/upl… #CloseTheLoop #CancerAdvocacy #GlobalHealth
Lymphoma Coalition tweet media
English
0
0
1
68
Lymphoma Coalition retweetledi
Global Colon Cancer Association
As a proud GCCN member, we’re glad to have contributed to Close the Loop: a collective report built on collaboration across cancer patient organizations worldwide. It shows not only determination, but why sustained support and partnership are essential for patient organizations to continue their work. 🔗 gcca.info/GCCN_Report_26_ @ABCGlobalAll @GlobalCCN_org @IKCCorg @WorldBladderCan @OvCancerDay @globallungcancer @theIBTA @knowyournodes @worldpcc
Global Colon Cancer Association tweet media
English
0
2
5
128
Lymphoma Coalition retweetledi
LymphomaAction
LymphomaAction@LymphomaAction·
Are you a #Lymphoma healthcare professional? We offer information you can use to support your patients in coping with difficult feelings after a lymphoma diagnosis. Click here to access 👉 lymphoma-action.org.uk/Emotional-impa…
English
0
2
7
237
Lymphoma Coalition
Lymphoma Coalition@knowyournodes·
@FIL_ETS Thank you for helping amplify the Global Patient Survey on Lymphomas & CLL. Together, we can turn lived experience into evidence that improves care. 💙
English
0
0
0
3
Lymphoma Coalition retweetledi
FIL_ETS
FIL_ETS@FIL_ETS·
Il Sondaggio Globale sui Pazienti con linfoma e leucemia linfatica cronica è un’occasione per la comunità mondiale dei malati di linfoma e LLC per condividere le proprie esperienze al fine di migliorare gli esiti di cura. Condividi la tua⤵️ bit.ly/4thKXUg @knowyournodes
FIL_ETS tweet media
Italiano
1
1
1
72
Lymphoma Coalition retweetledi
World Bladder Cancer Patient Coalition
As @GlobalCCN_org members, we are proud to have contributed to #CloseTheLoop, which shows that funding pressure is a global issue but its impact is deeply unequal. In lower-resource settings, gaps in funding directly affect access to support & care. In higher-resource systems, organisations face a quieter squeeze that still limits what patients receive. 🔗 worldbladdercancer.org/wp-content/upl…
World Bladder Cancer Patient Coalition tweet media
English
0
2
6
93
Lymphoma Coalition
Lymphoma Coalition@knowyournodes·
We are pleased to have contributed to Close the Loop, which highlights how increased demand for patient support is one of the lasting impacts of COVID-19 — five years on. The report shows that more people are reaching out to cancer patient organisations not only for information, but for help navigating delayed diagnoses, disrupted treatment pathways, and ongoing uncertainty in health systems. This growing reliance places additional pressure on organisations already facing funding and workforce constraints. The findings reflect what many of our organisations experience daily and why sustained investment in patient organisations is essential for resilient cancer care. 🔗 Read the report: worldbladdercancer.org/wp-content/upl… #CloseTheLoop #PatientSupport #CancerCare #GlobalHealth
Lymphoma Coalition tweet media
English
0
0
1
52
Lymphoma Coalition
Lymphoma Coalition@knowyournodes·
@LymphomaAction Thank you so much for sharing! Every response helps build meaningful, country-level insights that can inform local planning, strengthen advocacy, and ensure the real experiences of people affected by lymphoma and CLL are reflected in decision-making.
English
1
1
0
30