Kyle Bryant

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Kyle Bryant

Kyle Bryant

@KyleABryant

@TheAtaxian, Speaker, Director of @rideATAXIA for @CureFA_org. Author of #ShiftingIntoHighGear. Co-host @2DDPodcast. #CureFA #RareDisease

Pennsylvania Katılım Eylül 2009
2.5K Takip Edilen2.3K Takipçiler
Kyle Bryant retweetledi
City of Kyle
City of Kyle@CityofKyleTX·
CALLING ALL KYLES! Tall Kyles, short Kyles, young Kyles & old Kyles are needed 4/21/23 at 4pm to attempt the Guinness World Record for the largest same-name gathering (1st name only). All participating Kyles will get a free Kyle Fair T-shirt. Info KyleFair.com #KyleTX
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The New York Times
The New York Times@nytimes·
Since the technology for bespoke genetic drugs debuted, about two dozen patients have received the infusions — costing as much as $2 million per patient. But hundreds of millions of others live with rare genetic diseases and have no treatment options. nyti.ms/3W9zFR1
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Andra Stratton
Andra Stratton@livinlavidalopo·
I do understand that I’m fortunate in many ways, but for Pete’s sake @RareDisease friends, I am tired of being told how lucky I am to not have fat at a rare disease conference. When I tell you that you need your fat, I’m not trying to be nice, you really do.🤦‍♀️ #Lipodystrophy
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Catrike
Catrike@Catrike·
Ride Wild! @KyleABryant recently assembled a six-person team to tackle a 750-mile bike packing adventure through the backwoods of Montana and Idaho. Read about their 23-day journey from Eureka, Montana, to Ketchum, Idaho at kyleabryant.com.
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biohub
biohub@biohub·
“How do you accelerate progress against #RareDisease? At @ChanZuckerberg we help bolster the power of patients to build strong, inclusive communities, engage researchers in their disease areas & partner with industry to create treatments + cures.” -@TaniaSimoncelli #AspenIdeas
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Neena Nizar
Neena Nizar@NeenaNizar·
“There comes a point where we need to stop just pulling people out of the river. We need to go upstream and find out why they are falling in.” Desmond Tutu Solve problems at its source. #RareDiseaseTruth
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Vibe Bio
Vibe Bio@VibeBio·
folks new to #biotech can be confused by the acronyms. here's a helpful, running list. 🧵 👇 (22)
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Matthew Zachary
Matthew Zachary@MatthewZachary·
Hey Twitter? Who are the top most talented, vocal and unapologetic rare disease voices out there?
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Keşfet

@livinlavidalopo @raredisease @RareDisease @HorizonNews @ChanZuckerberg @TaniaSimoncelli @vibe_bio @TracyDixonSalaz